Brain Tumor and Fatigue Brochure

[ppearl214]

Hi all,

This has been posted in the past and I repost for newbies that may find it an interesting read.

Nancy Conn-Levin and Dr. Peter Black examined brain tumor (malignant and benign) patients, fatigue, pre and post-treatment.  The link below is a brochure they put together to help all brain tumor patients understand the fatigue that we tend to experience.  The brochure is a ".pdf" file, so you will need either Adobe Acrobat or Adobe Reader to open the link.

http://www.modularmisfits.com/forums/files/Brain_Tumor_and_Fatigue.pdf

They offer info regarding the why's and even how to conquer it.  I found it to be a good read and wanted to share with you as well.

If anyone needs an original, hard copy of it, please let me know and I will obtain from Dr. Black's office for you.

Happy reading!
Phyl

[nancyann]

Phyl:  I made a copy of it awhile back when you put it up,  it truly lets you & others around you know how bad it can really be, & that it can last a LONG TIME.
        So I don't think I'm being 'a baby' when I get so tired still, I realize what the cause is & it has helped me tremendously. Also lets you know about the concentration
issues, etc.    I keep it on my office desk !!
        Thank-you,   & good thoughts always,  Nancy

[johnsli]

Phyl,

Thank you so much for that post.  I thought I was losing my mind.  I have been so tired.  Some things that I used to do simply wear me out.  I hung out 4 loads of wash on Saturday, and I was exhausted.  (Now of course I have to iron).  I think alot of it is just adjusting to the fact that I have a tumor.   This really put things in perspective

Thanks
LOL
Laura

[Ellenmn]

Thank you for posting this.

[ppearl214]

Glad to help. I, personally, found it very insightful and helpful in ways to help conquer the fatigue.

Phyl

[er]

Hi Phyl

Thank you for the info. I went straight to the web site.  This issue is one of my biggest problems!
eve

[ppearl214]

*bump*

Seems this topic of interest comes up every now and then, so I am re"bumping" this thread so others that may be interested in the topic/brochure can locate it easy..... hope it helps as it's helped many already with the question of brain tumors (in general) and how fatigue go hand in hand.

Phyl

[Jim Scott]

I'll bump the thread up again by thanking Phyl for posting it.   

Very practical information here that we all can use to some extent. 

Jim

[Victoriah1999]

Phyl, all I can say is YOU ROCK GIRLFRIEND! 
THAT is the article I've been wanting to read.  It pisses me OFF that I have to ask for HELP, but I know it's true.  ugh...
I went to a store yesterday, and I could not relocate my husband, so I sat down for about 20 mins.  I thought he was in the restroom, but nooooo.  He was looking for a closed cell oil heater to save us some MAJOR money on heating and some other detritus that he found "necessary".  LOL!
I sat and waited, and when I got up, it was AMAZING!!  I felt sooooooooooo much better for having rested just that little bit.
I reccommend that if anyone already operated on has to go out, you just wave the "high sign" and just simply REST for a bit.

I deeply appreciate your help, Phyl.  It will get me through the holidays! 
Love,
V

[ppearl214]

*bi-annual bump of thread*

Hi all,

I know there are recent discussions about this, so "bumping" this thread for those that haven't seen it... as it may help.

Phyl

[Melissa778]

THANKS SO MUCH for the great info.  I will be making my husband read it tonight so that he can stop telling me how lazy I am and that's "it's all in my head"....LOL  No, sh&* it's all in my head....It's a TUMOR..  LOL