Author Topic: Breast Cancer update  (Read 53802 times)

msmaggie

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Re: Breast Cancer update
« Reply #90 on: February 15, 2010, 06:29:49 pm »
Kathy,
I continue to lift you up in prayer every day for strength and peace.. It sounds like you are ready and have a good medical team to support you.
 I'm with Steve....the white wig just begs for a photo opportunity!

Love,
Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

wendysig

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Re: Breast Cancer update
« Reply #91 on: February 15, 2010, 09:42:41 pm »
Hi Kathy,

Sorry I haven't been around to wish you well lately but you have been very much on my mind.  Personal issues have been keeping me busy and away from the computer.  I'm glad to find you in good spirits and obviously, good hands.  If no one else has recommended it, 27 Dresses is hilarious.  I've seen it quite a few times and it always makes me laugh.

You and your family continue to be in my prayers.

Best wishes,
Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

moe

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Re: Breast Cancer update
« Reply #92 on: February 15, 2010, 10:18:51 pm »
Kathy,
thank you for the update of a very busy day. Keep up the good spirits. We are all cheering you on!
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

cindyj

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Re: Breast Cancer update
« Reply #93 on: February 19, 2010, 01:42:36 pm »
Kathy, so glad to see your update...and so glad to hear your sweet spirit about things!  You are doing so great!  Will be thinking of you this weekend as I am doing a 1/2 marathon to raise funds for Breast Cancer...

Many hugs heading your way,

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

NancyMc

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Re: Breast Cancer update
« Reply #94 on: February 19, 2010, 02:21:25 pm »
Fingers crossed.
Hugs,
Nancy
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Sue

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Re: Breast Cancer update
« Reply #95 on: February 21, 2010, 11:25:04 pm »
Thanks for the up-beat up date!  You are one awesome lady.   I have another movie to suggest in case you haven't seen it.  Well, two.  I loved Dan in Real Life with Steve Carell.  And I just watched The Visitor, and I enjoyed it very much.  I hoped the ending would be a bit different, but it was realistic, I guess.  But it was a nice movie. 

Hang in there, kiddo.

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Kathy M

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Re: Breast Cancer update
« Reply #96 on: March 02, 2010, 10:15:01 am »
Hi All!

Well, here is update #578 (aren't you sick of reading about my long and winding road?!)...

After a bit of a scare, my 1st chemo is tomorrow, 3/4, as initally planned.  Never thought I would say that I was excited for chemo, but I am thrilled that it is not going to be delayed!!!  I am apprehensive, as expected, but hopefully, the side effects won't be as ugly as we all hear about.  I have an arsenal of anti-nausea meds on my kitchen counter, prescribed by my oncologist, so at least I'm prepared!!!

I met with my infectious disease specialist on Friday, and the head incision (the AN gift that won't stop giving) was seeping  and showing all-too-familiar signs of infection.  He took a culture and there is no evidence of staph.  But, given my history, he extended the IV meds for another 2 weeks.  That will be a total of 10 weeks with this infernal fannie pack attached 24/7, but if it gets rid of this infection, it'll be worth it.  He did find a colony of new bugs in the culture, but they could be there hangin' out because the IV meds change the skin flora (don't I sound medical!), and may not be a problem at all.  Apparently, we are all hosts to lots of lil' borders and not all of them will cause trouble.  So, we'll continue to monitor the wound (like I've ever been able to forget about it!), and if it continues to seep, then the doc will prescribe a different ORAL antibiotic to deal with the new tenants.  They are not nearly the concern that the staph bugs were/are?.  I also learned last week, that he has been treating me for osteomylitis (bone infection) all this time, too, just in case.  None of tests I've had over the last 3 months have clearly shown I have one, but the symptoms sure did.  So the 8 weeks of IV meds thus far have addressed both staph AND bone infections.  I thought that was good news!  I'll take any and all.

Now for the most important thing - thank you all for your prayers and words of comfort & support.  They mean so much to me.  I so appreciate Donnalynn for her post last week - I never feel worthy of asking for prayer from my friends & family, but I surely do appreciate them and know that they are being heard loud and clear.  I love you all,

Kathy
AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

Kaybo

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Re: Breast Cancer update
« Reply #97 on: March 02, 2010, 10:37:59 am »
Kathy~
I know that you are ready to get on with this - with your wonderful attitude, I know you will come thru with flying colors!  You & your family are still in my daily prayers and that of my Women's Bible Study Group!

Good Luck and Prayers Thursday...may you feel the sweet PEACE of Jesus as you start this next phase of the journey!

K   ;)
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

lori67

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Re: Breast Cancer update
« Reply #98 on: March 02, 2010, 12:07:06 pm »
Kathy,

We will NEVER be sick of hearing updates, so please keep them coming!

I'm glad everything is on schedule and so glad you're geared up to win this war!  I guess some AN advice is appropriate for chemo too - prepare for the worst but hope for the best!

We'll all be with you in spirit!
Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

lawmama

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Re: Breast Cancer update
« Reply #99 on: March 02, 2010, 12:12:48 pm »
Kathy,

That sounds like (mostly) good news!  I'm glad to hear that there was no staph.  I'm sure that chemo will be no fun, but I hope this is just one step closer to you being all well again.  My prayers are with you!

Lyn
9mm X 7mm tumor (left side), diagnosed 10-15-09
Retrosigmoid on 12-14-09 by Drs. Antonelli and Lewis (my heroes!)
Shands in Gainesville, FL
SSD, but no facial issues.  Mild tinnitus.

Debbi

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Re: Breast Cancer update
« Reply #100 on: March 02, 2010, 12:18:25 pm »
Kathy-

You will be in my thoughts and prayers tomorrow.  I am humbled by your courage and sense of humor. 

Thoughts, prayers, hugs...

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

CHD63

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Re: Breast Cancer update
« Reply #101 on: March 02, 2010, 02:39:01 pm »
Kathy .....

Your optimistic spirit is an inspiration to all of us!  We never tire of sharing the problems we may have ..... and you have had way more than your share!

Many thoughts and prayers continue to be said on your behalf ..... as well as your family, because they are so very closely involved in this with you!

Love, Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

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Re: Breast Cancer update
« Reply #102 on: March 02, 2010, 03:17:51 pm »
Hi, Kathy ~

Please be assured that when I offer my thanks for your updates, I mean it, and I think everyone that posts on your threads feels the same way.

I'm pleased to learn that the incision infection is apparently mild and becoming less of a threat and more just a continuing nuisance - one that will soon be conquered, I'm sure.

Your anticipation of the upcoming chemo therapy is understandable (let's get on with it) and your stockpiling of the nausea medications is prudent.

We pray for you as a friend facing a battle with a disease that presents a definite struggle but that can be overcome.  God answers prayer and although not every prayer is always answered exactly as we might expect (or want), they are heard.  I'm a humble recipient of many prayers that were offered for me during my surgery and radiation procedures.  Both my doctor (I have no idea what his religious beliefs are) and I attribute my very successful outcome from both procedures to divine intervention - and I have no hesitancy in doing so.   To be sure, excellent physicians and a positive attitude help, and you have both so I think you'll be O.K.  :)

Jim     
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Keri

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Re: Breast Cancer update
« Reply #103 on: March 02, 2010, 03:59:38 pm »
Hello Kathy,
I'm so glad you keep us updated as well. It's an honor that you share with us. I echo what so man others have said - you're an inspiration to us all. I pray for you.

Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

moe

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Re: Breast Cancer update
« Reply #104 on: March 03, 2010, 09:37:33 am »


Well, here is update #578 (aren't you sick of reading about my long and winding road?!)...


No, NEVER my dear! You are an amazing courageous woman. I'm soo glad that you can start chemo and glad that YOU are excited about starting chemo! See-good thing you had that AN and infection ??? Good prep work.

Thinking about you daily, really I am. So much at one time. Hang tough like you are doing :)
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty