Author Topic: ANA Book Club?  (Read 409408 times)

Kaybo

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Re: ANA Book Club?
« Reply #1815 on: September 15, 2011, 07:03:58 am »
Susan~
We have always just used this thread to discuss the book also...

CHD~
I will be MORE THAN HAPPY to stop the ER trips, hosiptals and Dr visits!  Hopefully answers today!

For those that don't know, I spent the weekend in the ER/hospital with my 8 year old girly - they thought she had a STROKE!!  (She did an MRI for 45 minutes WITHOUT sedation - pretty good for a kid - according to the nurse) The official diagnosis was a TIA.  They have now detected a hole in her heart and we meet with the pediatric cardiologist today...Always excitement at our house...I think I prefer snakes and dancing to loud music though!!

;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

CHD63

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Re: ANA Book Club?
« Reply #1816 on: September 15, 2011, 07:14:45 am »
Snakes and dancing to music?????   Hmmmmmmmm.  (Couldn't resist!  ;D)

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Kaybo

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Re: ANA Book Club?
« Reply #1817 on: September 15, 2011, 08:01:41 am »
we have religious acts here, didn't you know?   :o ::)

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Soundy

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Re: ANA Book Club?
« Reply #1818 on: September 15, 2011, 04:02:22 pm »
glad your son is OK ...

and will add your girly to my prayer list ...

still no book as the one store we passed was out may resort to online order
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

moe

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Re: ANA Book Club?
« Reply #1819 on: September 15, 2011, 07:17:28 pm »
A little highjack for the health of Kaybo's girlie and Jan's son. Yikes, never a dull moment!
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Brewers7

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Re: ANA Book Club?
« Reply #1820 on: September 21, 2011, 10:40:42 am »
Kaybo,
I have just about finished "Left Neglected."  I am pretty sure that it is about my life, not yours, except for the young children.  Right now, Sarah (Susan) is arguing with her husband about going back to work.  Hmmm.  Very interesting.  I am definitely ready to ski again.
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

Kaybo

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Re: ANA Book Club?
« Reply #1821 on: September 21, 2011, 02:35:53 pm »
Susan~
I actually "skied" (for real not chasing any children or going SLOWLY down the hill) a year ago and it was WONDERFUL.  No problems going down the hill - just had to be a little careful of that "snow snake" in the lift line and tipping over!!

Sounds like we must have a LOT in common!!

Hope you enjoyed it!

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Soundy

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Re: ANA Book Club?
« Reply #1822 on: September 27, 2011, 05:20:28 am »
haven't got book yet but since I haven't had time to read lately I guess it doesn't matter ...working book fair all week at school ... they don't have any books in adult section that we haven't already read here ... I find it odd that they sent Water For Elephants , The Help , Hunger Game series , and 2 or 4 others we have read in this group ...

I found a pre-teen/teen version of The Art Of Racing In The Rain ... may get it for girls ... the one I read had a few scenes that were not kid friendly ... the kid version is just Racing In The Rain ....

found a teen read Out Of My Mind by Sharon M. Draper ... it is about a girl with CP that is very smart but until she is ten is trapped in a world where she can't walk or talk to tell people what is going on in her head ...a friend gets a laptop and with the help of her aide she gets a Medi Talker set up for her ... her class mates are amazed that she has anything to say since many thought she was retarded ... she types and it talks for her ... I read it last night ... now going to be draggy at school today

it makes me think of my late SIL who for last 5 years of her life was trapped by the inability to speak ... she also had CP ... she could use her hand enough to write out 1 -3 words to get a point across ... but she was so far from the girl that even with CP graduated near the top of her class ...

well that is all I have to say on books at the moment ... I figure that by the end of the week after straightening shelves and ringing up books and finding just the right book for a child that I will not want to see a book at all next week ...
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

Debbi

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Re: ANA Book Club?
« Reply #1823 on: September 28, 2011, 09:56:41 am »
Thanks for telling me about this Kaybo!   ;)  I just ordered it from Amazon so it should be here by Friday and I will start it sometime over the weekend. 

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: ANA Book Club?
« Reply #1824 on: September 28, 2011, 07:16:08 pm »
Finished Left Neglected this afternoon.  Had jury duty, so I had a lot of time on my hands  :P

Great book suggestion, Kaybo.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: ANA Book Club?
« Reply #1825 on: October 02, 2011, 04:24:46 pm »
How are we doing everyone - about ready to start discussing??

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

CHD63

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Re: ANA Book Club?
« Reply #1826 on: October 02, 2011, 05:22:57 pm »
I finished reading it Friday so whenever everyone is ready.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

saralynn143

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Re: ANA Book Club?
« Reply #1827 on: October 02, 2011, 06:31:39 pm »
Kaybo, it was your suggestion, so I nominate you for first question.
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

leapyrtwins

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Re: ANA Book Club?
« Reply #1828 on: October 02, 2011, 09:13:45 pm »
I second the motion.

Kaybo??

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: ANA Book Club?
« Reply #1829 on: October 04, 2011, 10:05:57 am »
OK - so here we go...I haven't been able to reread as much as I would like but I'm sure that I will think of more things as we go...I want to do a couple of the questions in the back of the book but really want to hear from you guys - feel free to pose questions.  Really, my first question is just what YOU thought of the book...part of my wanting everyone to read this was selfish - I KNOW that no one can fully understand having a stroke (or an injury) unless you have experienced it, but I thought that this was pretty close...therefore the secong reason...we will ALL encounter people that have strokes - probably people that are very close to us - so you think that since you have read this, you might deal with them a little differently?

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!