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Author Topic: Marianna's updates  (Read 21150 times)

mk

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Marianna's updates
« on: April 24, 2011, 12:03:08 pm »
Hi all,

I won't have access to internet starting tomorrow, so I am starting this thread for updates. I have asked Vas, my hubby to use this thread to post updates.

Next time I will post I hope to be a postie-toasty.

Marianna
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

Jim Scott

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Re: Marianna's updates
« Reply #1 on: April 24, 2011, 01:25:45 pm »
Marianna ~

Thanks for starting the thread. We'll look for your husband's updates.  Our thoughts and prayers will be with you on Tuesday. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

jerseygirl

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Re: Marianna's updates
« Reply #2 on: April 24, 2011, 01:29:49 pm »
Marianna,

I want to wish you the best of luck in your upcoming surgery and recovery! Can't wait to hear the good news!

                Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

rayden1

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Re: Marianna's updates
« Reply #3 on: April 24, 2011, 02:03:56 pm »
Hi Marianna

Good luck Prayers with you

Ann x
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Kaybo

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Re: Marianna's updates
« Reply #4 on: April 24, 2011, 04:20:09 pm »
Prayers coming your way...

K  ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

sgerrard

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Re: Marianna's updates
« Reply #5 on: April 24, 2011, 05:54:51 pm »
Best wishes. You are going to rock it.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

CHD63

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Re: Marianna's updates
« Reply #6 on: April 24, 2011, 07:26:31 pm »
Praying all the way!!!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Keeping Up

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Re: Marianna's updates
« Reply #7 on: April 26, 2011, 09:49:18 pm »
Thinking of you Marianna ... Hope all is well and we hear from your hubbie soon. 

Ann
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dx Dec/08 - 5mm x 8mm AN
'watch and wait'

Tumbleweed

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Re: Marianna's updates
« Reply #8 on: April 26, 2011, 10:41:50 pm »
I'm waiting anxiously to hear how your surgery went, Marianna. Wishing you the very very best.

TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

valerie_g

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Re: Marianna's updates
« Reply #9 on: April 27, 2011, 06:34:55 am »
I'm also waiting...and thinking about her a lot...hope to have some news soon!
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March 2009 5 mm X 4 mm
July 2010 6 mm X 5 mm
March 2011 7mm X 6mm Cyberknife radiosurgery Ottawa General Hospital
June 2011 BAHA surgery Ottawa Civic Hospital

mk

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Re: Marianna's updates
« Reply #10 on: April 27, 2011, 07:34:15 am »
Hi folks,
This is Vas using Marianna's account for a first update
Marianna had the surgery yesterday. It lasted 10 hr.
Coming out, the doctor said that he was happy with the way things went
She is currently in the ICU
I will post more news when I have them
Regards to all and thanks for your kind remarks
Vas
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

moe

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Re: Marianna's updates
« Reply #11 on: April 27, 2011, 08:44:31 am »
Vas,
Thanks for the update. 10 hours is a long one, and sooo glad to hear the doctor said everything went well.
Gentle hugs to Marianna :)
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

MARAKI

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Re: Marianna's updates
« Reply #12 on: April 27, 2011, 10:58:54 am »
Hi Vas
Today I was thinking Marianna all the day and I was waiting anxiously for your update!
So glad to hear that everything went well!
Best wishes for the recovery! And I want to wish you your wife will be soon with you and your children.
Maraki
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Jim Scott

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Re: Marianna's updates
« Reply #13 on: April 27, 2011, 01:37:29 pm »
Hi, Vas - and thanks for the update.

Definitely a long surgery but the doctor's comment about being "happy with the way things went" is very encouraging.   I know (from experience) that she'll sleep a lot for the next day or two and you won't know much but whatever you can pass along to Marianna's friends on this forum will be much appreciated.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

CHD63

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  • Life is good again!!
Re: Marianna's updates
« Reply #14 on: April 27, 2011, 01:50:48 pm »
Vas .....

Thanks so much for this news ...... many of us have been anxiously waiting to hear.  10 hours is a long surgery but so glad the doctor was pleased.  That is very encouraging.

Tell Marianna we are all pulling for her during this recovery time.

Many thoughts and prayers, not only for Marianna, but you as well!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011
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