Author Topic: Capt Deb cancer update  (Read 42813 times)

saralynn143

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Re: Capt Deb cancer update
« Reply #60 on: September 12, 2010, 07:56:53 pm »
Now that sounds like fun. We are going to be needing pictures. Just where do you find shoe paint, anyway?

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
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CHD63

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Re: Capt Deb cancer update
« Reply #61 on: September 13, 2010, 06:44:06 am »
Ditto to Sara's words, exactly!!  What fun and a delightful diversion!   ;D

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

NancyMc

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Re: Capt Deb cancer update
« Reply #62 on: September 13, 2010, 07:12:08 am »
Well, I thought I  was having a bad month.  Just looking for a little company on a rainy day and got hit over the head with this one.  How does one person get continually hammered and bounce back with sparkly shoe projects?  Only you, Darlin', only you.
I'm sure you'll be fine, but really, you do have better things to do with your time.  Enough hospitals already!

Now where's that nickel I had. 
Heading over to emotional/cognitive to purge vampires,
Nancy
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

msmaggie

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Re: Capt Deb cancer update
« Reply #63 on: September 13, 2010, 08:16:08 am »
You know, they let me wear my socks into surgery.  Maybe you should jazz up a pair of socks, too, so you can dazzle them all the way into the operating room!

Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

Brendalu

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Re: Capt Deb cancer update
« Reply #64 on: September 13, 2010, 11:43:09 am »
Great idea, Priscilla!  We can all wear our pirate sox like we used to when someone was having surgery or treatments, when Capt Deb has her surgery...that should send some good vibes!

Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

HeadCase2

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Re: Capt Deb cancer update
« Reply #65 on: September 13, 2010, 02:24:02 pm »
Capt,
   We're expecting some photos on this web site, called If Shoes Could Kill.
http://ifshoescouldkill.com/

Regards,
  Rob
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

free2be

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Re: Capt Deb cancer update
« Reply #66 on: September 13, 2010, 08:23:05 pm »
Well, Deb, you certainly do sound like the adventuous pirate type. Glad you have the inclination for such creative projects. You're obviously one who is not willing to let the "stuff" get you down. You keep going, girl!

Connie
Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

Brendalu

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Re: Capt Deb cancer update
« Reply #67 on: September 14, 2010, 03:58:32 am »
Donnalynn,
I found some glow in the dark skull headed socks at Walmart.............back ground is black and the area hoot!  I may add some bling to "jazz" them up a bit!  The background is black on mine, but they have them in a lot of colors.
Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

leapyrtwins

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Re: Capt Deb cancer update
« Reply #68 on: September 14, 2010, 05:47:55 am »
Deb -

the shoes sound like a wonderful project - and we definitely need pictures.  Great website from Rob - I think you should post pictures there too!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Lizard

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Re: Capt Deb cancer update
« Reply #69 on: September 14, 2010, 10:16:11 am »
Capt, Waiting on these pictures, you can't keep a creative woman down!
Liz
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

msuscottie

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Re: Capt Deb cancer update
« Reply #70 on: September 14, 2010, 01:10:43 pm »
Deb,

I haven't been on here much, but saw your update on Facebook. You're definitley in my thoughts & prayers.

No problem... you got this!   :)

Captain Deb

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Re: Capt Deb cancer update
« Reply #71 on: September 14, 2010, 07:41:34 pm »
The painted shoe site is here:

http://www.sassyfeet.com/

But you can get the paint cheaper here:

http://www.dharmatrading.com/html/eng/1847-AA.shtml?lnav=paints.html

Official pirate sox were started by the PBW crew when someone bought a boatload of 3 pack assorted jolly roger sox in pink, black and white and mailed them out to a bunch of us.  The skulls had little pink bows on them. 

I painted my third pair of shoes today--a pair of rather boring black ballet flats with a leather flower are at this point a bright raspberry although the flower is still black.  It might end up deep metallic purple with a few Swarovsky crystals on it.

 
 I have a pair of boring Clarks clogs which may end up with lil pink skulls on 'em!!

In case you dint know, I made a living for years hand-painting t-shirts, clothing, bags, hats, visors, pillows, etc in between captain-for-hire gigs.
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Captain Deb

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Re: Capt Deb cancer update
« Reply #72 on: September 14, 2010, 07:46:25 pm »
Donnalynn,
I found some glow in the dark skull headed socks at Walmart.............back ground is black and the area hoot!  I may add some bling to "jazz" them up a bit!  The background is black on mine, but they have them in a lot of colors.
Brenda

I cruise the accessories dept at Walmart on a regular basis--that's where I found all the pink skull and crossbones bandanas that I mailed out to people when I first started recruiting crew for the PBW.  I'll have to check them out!!

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Cheryl R

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Re: Capt Deb cancer update
« Reply #73 on: September 14, 2010, 08:43:21 pm »
 Capt Deb, I can not see the skull and cross bones now without thinkiing of you!     Seems there are alot of them out there, some on kids toys and clothes but other places too.         Occ think if should pass it on if in a place that is one that others would see it!
        The footware artistry sounds very neat!       Not all of us are super creative!    I enjoy seeing those that are!             Cheryl R
         
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Soundy

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Re: Capt Deb cancer update
« Reply #74 on: September 14, 2010, 09:51:00 pm »
I think my brain has shut off ... was reading about painted shoes and pirates and vampires and think what the heck does that have to do with anything and had to go back and read several pages to remind myself of things ...too tired and not fully functional

as for vampires ... sarcasm gets rid of them for me when garlic breath doesn't ... ain't got time for vampires feeding on me so don't allow it

Pirates ... I am suppose to make a tatti bogles (scare crow of sorts ) to go on the square and had read a mesage sent me and couldn't figure out how people here knew about pirates here as the Tattie Bogles have a pirate theme this year ... winner gets $5 out of every $20 entry fee and there were about 100 last year ... money goes to local charitable causes ... I am entering one to take a chance at winning some money for my Girl Scout Troop's bronze award ... the girls are helping design our Tattie Bogle

then shoes ... painted at that ... brain humming off key trying to figure it out ...glad there were notes to re-read and figure out what my brain scrambled ...

OK...back to present ... the painted shoes sound so cool ... my 11 year old would love to paint shoes ... she has painted everything else from pants , shirts and hats ... shoes would be right up her ally ...

Our walmart has alot of pirate stuff ...and I saw some in Claire's when I stopped in the mall last week to get something to eat ...even Dollar tree has pirate things ...

Keep up the painting of shoes and your spirit in this new fight ... and thank goodness for good doctors with little hands ...

if this makes no sense just toss it come morning ... I am almost typing while unconscious
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery