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Author Topic: Nancy's Spa Day - Lipo and a Face Lift  (Read 76147 times)

NancyMc

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #285 on: June 16, 2009, 09:30:04 am »
I ROCKED IT!
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Kaybo

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #286 on: June 16, 2009, 09:33:47 am »
...that's better!!   ;D

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

MissMolly

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #287 on: June 16, 2009, 09:45:56 am »
Yay Nancy!!!  You look fabulous, in my opinion.  I look at your smile and feel a little less anxious about surgery on Monday.  Looks and sounds like you feel well too.  Hooray and Hooray again.  You did Rock it!!

Molly
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

SML

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #288 on: June 16, 2009, 03:44:54 pm »
Quote from: NancyMc on June 15, 2009, 02:54:45 pm

I remember when I was terrified I would lose my smile.  It's baaaaaaack!
Yes it is! And a beautiful smile indeed! Looks like everyone was having a good time too. 8)

I would love to see your wildlife pictures. Any chance you can PM them to me?

Scarlett
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SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

joebloggs

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #289 on: June 16, 2009, 05:16:28 pm »
Yeah Nancy!!!!  Good girl!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

Keri

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #290 on: June 16, 2009, 06:22:37 pm »
uh oh, she's going to change her profile name again.... NancyROCKED.IT   :D
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Keri

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #291 on: June 16, 2009, 06:23:25 pm »
speaking of changing... maybe it's time i changed my signature!
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

NancyMc

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #292 on: June 17, 2009, 12:35:02 pm »
Yeah, Keri, what's the problem?  Too busy taking over for LADavid?  ;D
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

NancyMc

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #293 on: June 17, 2009, 12:42:24 pm »
I used to pretend that I did not have a cranial base tumor when I was between MRIs for the first seven years.

Now I don't have to pretend any more.  I really don't have a tumor.  That's amazing!

How can I thank Dr. Barker and Dr. McKenna enough?
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Keri

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #294 on: June 17, 2009, 02:12:19 pm »
that's a nice thought, NancyRI (about pretending and it's all gone now).

regarding being busy taking over for LADavid, well, yes, i constantly worry over what the next adjectve will be ! (well, not exactly, but i do wonder... he came up with good ones). and then when i go to look at the calendar so i can write the update, i still have to go find one of steve's posts because he has the calendar in his sig!i shoudl just do it, but haven't yet. too busy procrastinating, or not sure I know how to change it and add the link.

does your face feel totally back to normal? (it looks it). i'm still having some issues... will elaborate another time. got to get back to work!
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Jim Scott

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #295 on: June 17, 2009, 02:35:57 pm »
Keri ~

If it will expedite locating the calendar, try bookmarking it on your browser, as I do.  Here's the link: http://my.calendars.net/AN_Treatments

This allows you to open another window and bring up the calendar.  That way you can copy the dates/procedures/events as you compose that weeks update on another screen. 

Just a suggestion.  Thanks again for your work on the calendar.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

NancyMc

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #296 on: June 17, 2009, 02:58:23 pm »
Yes, I have the calendar bookmarked as well so I can open it separately.
As far as my face goes, no, it's not totally back to normal.  I still have a little irritation in my eye when I stare at something or drive for too long.  My cheek still feels as though I had work done at the dentist this morning.  And speech occasionally becomes a little like I have mashed potatoes in my mouth.  But all that is extremely manageable.
Do you feel as though you've had improvement since April?
Thanks for taking over the weekly newsletter.
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

NancyMc

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  • One year and all is well, almost.
Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #297 on: July 08, 2009, 03:19:44 pm »
Today is my three-month anniversary.  Outcome remains the same . . . very minimal facial weakness, slight metallic taste, lessened but constant tinnitus, i.e., more tinnitus than pre-op but of a more consistent nature and less annoying than immediately post-op, numbness of surgical site, no balance issues, eye irritation occurs about once a week for a few minutes, SSD is way worse than pre-op when I was told there was no usable hearing remaining (perhaps not for speech recognition, but certainly for sensing a presence).  So, all is well, and I will update Stoneaxe's poll if I can find it and retire this thread.
What a life experience!  If I'd known that it was going to be so personally fulfilling and that I would make friends with socially redeeming qualities by enduring this process, I might have actually chosen the diagnosis.
The only unpleasant aspect is the SSD, and who knows, maybe some day I'll buy myself a BAHA!  First follow-up MRI on Monday in the bun o' fun (open tube o' gloom for us claustrophobes).
Gratefully,
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

joebloggs

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #298 on: July 09, 2009, 07:01:16 am »
Yay Nancy!  Fantastico!  You are rocking it!  Enjoy the tube on Monday!  In the last week I have really noticed my hearing deficit since the op - I've been out to a few restaurants with friends and such and really struggled to hear and found myself nodding a lot and smiling without actually knowing what was being said - I'm sure I'll get myself into trouble with that tactic soon!  The rest of the time it's totally manageable but unfortunately everyone seems to be picking noisy restaurants all of a sudden!  Or maybe all restaurants are that noisy and I've only just noticed!

Logged
Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

NancyMc

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Re: Nancy's Spa Day - Lipo and a Face Lift
« Reply #299 on: July 09, 2009, 10:02:58 am »
Welcome to my world.  :-[
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness
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