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Author Topic: Two year Tube of Gloom appointment  (Read 3924 times)

cin605

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Two year Tube of Gloom appointment
« on: July 17, 2010, 07:18:56 am »
Monday...coming fast...little scared...Wish me luck on seeing no regrowth and scar tissue healing.
Also seeing olotariangologist and neurosurgeon and hearing test...The whole team that removed my AN
Kudos to DR.Erkman and Dr.Saunders at Darthmouth Hitchkock Medical center.Lebannon,N.H.
Its a three hour trip there..my sis will be driving.
« Last Edit: July 17, 2010, 07:22:32 am by cin605 »
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

nanramone

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Re: Two year Tube of Gloom appointment
« Reply #1 on: July 17, 2010, 08:29:59 am »
Tube of Gloom...I hadn't heard that one!

Well wishes to you~
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Jim Scott

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Re: Two year Tube of Gloom appointment
« Reply #2 on: July 17, 2010, 12:46:04 pm »
Cindy ~

You'll be in the thoughts and prayers of many for your upcoming MRI scan.  I'm confident that your results will not show any growth and your tests will come back just fine.  Let us know.

Incidentally, I've belatedly entered your MRI appointment on our AN Treatment Calendar  http://my.calendars.net/an_treatments/d19/07/2010?authenticate=&display=M&style=B

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

cin605

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Re: Two year Tube of Gloom appointment
« Reply #3 on: July 17, 2010, 02:08:51 pm »
Thanks Jim~
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

stevecms

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Re: Two year Tube of Gloom appointment
« Reply #4 on: July 17, 2010, 06:12:58 pm »
Cindy,best of luck for mri,had my 1st mri post op a week ago,just waiting on results.Everything crossed for both of us. :) :) :)steve
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4 cm acc neuroma 99.9% removed queen elizabeth hospital 6 sept 09 by dr walsh.thought it was trigeminal neuralga,lots of facial pain for 18mths,now deaf on rh side little taste and ear pressure.13 hour surgery.

jazzfunkanne

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Re: Two year Tube of Gloom appointment
« Reply #5 on: July 19, 2010, 03:37:08 am »
good luck x
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over 4.5cm AN removed dec 06

suboo73

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Re: Two year Tube of Gloom appointment
« Reply #6 on: July 19, 2010, 03:59:35 am »
Cindy,

Best wishes for an uneventful MRI, with no regrowth.

[I also go 2 1/2 hour drive for appointments - for me, it is easier to see the docs, get the MRI, and hearing test, all in same day - and i get the MRI results, too.
Now i have added another specialist at the same medical center, so my next appointments will probably span most of the day!]

Have a safe journey with your sis.

My thoughts and prayers are with you.

Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

cin605

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Re: Two year Tube of Gloom appointment
« Reply #7 on: July 20, 2010, 07:08:07 pm »
Thanks All!!!Great news.....no sign of the tumor....scar tissue unchanged!!!!!Wooott....down side they want another MRI of cervical neck and spine to see whats going on w/ muscles spasing and major pain when neurontin wears off....love.love .love neurontin!
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Jim Scott

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Re: Two year Tube of Gloom appointment
« Reply #8 on: July 21, 2010, 12:57:39 pm »
Cindy ~

Congratulations!  More answered prayers - and good news!  I hope the neck & spine MRI is helpful for locating the source of your pain, so that it can be treated and relieved.  Let us know.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tumbleweed

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Re: Two year Tube of Gloom appointment
« Reply #9 on: July 22, 2010, 01:05:18 am »
Congrats, Cindy!

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Vivian B.

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Re: Two year Tube of Gloom appointment
« Reply #10 on: July 22, 2010, 02:07:21 pm »
Tube of Gloom. I always remember that everytime I go into an MRI, it makes me laugh. I will be praying for good results for you.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

Sonja

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Re: Two year Tube of Gloom appointment
« Reply #11 on: July 25, 2010, 07:36:44 am »
Concrats Cindy! Glad you are clear of the awful AN
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Symptoms 2005
AN diagnosed January 2007
Watch & Wait until now
Surgery (Translab) scheduled February 18, 2009 HEI (Dr. House, Dr. Schwartz, Dr. Stefan)
No servicable hearing in affected ear

Tumbleweed

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Re: Two year Tube of Gloom appointment
« Reply #12 on: July 27, 2010, 01:02:59 am »
Tube of Gloom
Jackhammer Alley
The Cone of No Silence

:-)
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

DR

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    • Dennis vs. The Tumor
Re: Two year Tube of Gloom appointment
« Reply #13 on: July 27, 2010, 04:17:12 am »
That is great news Cindy!  No better way to start the day, a cup of coffee and some good news at the ANA Forum.
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AN right side 12mm x 9mm x 9mm
Middle fossa surgery 11/4/09 at House (Dr. Brackmann/Dr. Schwartz)
Tumor removed, no facial issues, hearing intact!
http://denvstumor.blogspot.com/

"The greatest trick the devil ever pulled was convincing the world he did not exist."
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