Author Topic: Those with 1.9cm or similar  (Read 4871 times)

am2lady

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Those with 1.9cm or similar
« on: May 03, 2014, 10:23:15 pm »
Hi those of you with a 1.9 cm AN or similar, what method of treatment did you elect?
MRI showed - 1.9cm x 1.9cm x 0.9cm AN - as of 5/11/13
MRI showed - 20.5mm AP x17mm  transverse x 20.7mm - 5/8/14

Echo

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Re: Those with 1.9cm or similar
« Reply #1 on: May 04, 2014, 08:11:39 am »
My AN was 1.8cm when diagnosed.  One year later it was 2.4cm and I had Gamma knife.

Cathie
Diagnosed: June 2012, right side AN 1.8cm
June 2013: AN has grown to 2.4 cm.
Gamma Knife: Sept. 11, 2013 Toronto Western Hospital

am2lady

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Re: Those with 1.9cm or similar
« Reply #2 on: May 04, 2014, 02:40:39 pm »
Is that radiation?
MRI showed - 1.9cm x 1.9cm x 0.9cm AN - as of 5/11/13
MRI showed - 20.5mm AP x17mm  transverse x 20.7mm - 5/8/14

Echo

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Re: Those with 1.9cm or similar
« Reply #3 on: May 04, 2014, 05:05:48 pm »
Yes, Gamma Knife and Cyber Knife are radiation treatments.  Translabyrinthine, Retrosigmoid and Middle Fossa are surgical approaches.  If you look on our home page www. anausa.org, check out the info in the lower right corner under Treatment Option Summary.   There is lots of excellent info on this site and in the members section under webinars.

Cathie

Diagnosed: June 2012, right side AN 1.8cm
June 2013: AN has grown to 2.4 cm.
Gamma Knife: Sept. 11, 2013 Toronto Western Hospital

cagneyd

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Re: Those with 1.9cm or similar
« Reply #4 on: May 04, 2014, 06:13:30 pm »
I have a 1.2 X .70 CM and I had Gamma Knife.
Dan Cagney

Diagnosed:  March 2014, with 1.2 cm AN left side.
Symptoms:  Tinnitus, 70% hearing loss, some balance issues.
Status:  Gamma Knife April. 11, 2014,
             Alexian Brothers Medical Center -
             Illinois Gamma Knife Center, Elk Grove Village, IL

wsflyer

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Re: Those with 1.9cm or similar
« Reply #5 on: May 07, 2014, 09:06:19 pm »
2.0 AN--normal hearing prior. 

Retrosigmoid surgery retained normal hearing post op.

 
2.0 AN -Right side

Diagnosed (incidental-no symptoms on AN side) early Feb 2014

Retrisigmoid at USC Dr Friedman/Dr G 3/18/14
Normal Hearing/ No facial paralysis

john1455

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Re: Those with 1.9cm or similar
« Reply #6 on: May 09, 2014, 12:08:59 am »
Mine was 1.9 cm when diagnosed and I chose CyberKnife.
At 7 weeks postop I feel the same as preop. I had no recovery problems to deal with and drove to and from all my sessions. My preop symptoms were tinnitus, hearing loss on right side, and minor disequilibrium. All symptoms remain and are at the same level as before treatment. There has been absolutely no interruptions in my daily routines and no fatigue issues so far.
« Last Edit: May 09, 2014, 12:34:02 am by john1455 »
Diagnosed with 19x16x19mm cystic AN right side on 7/2013
MRI on 3/2014 showed AN increased to 21x20mm
right side 70% hearing loss, tinnitus, balance issues
CK at Stanford completed 3/21/2014 (3 sessions)
Dr Steven Chang and Dr Iris Gibbs

Bonnie B.

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Re: Those with 1.9cm or similar
« Reply #7 on: May 09, 2014, 02:17:27 pm »
Mine was 1.7 cm and I chose Gamma Knife after I researched all possibilites.  That was two years ago and am doing fine.
1.7 cm AN
diagnosed January, 2012 - no hearing L ear
GK surgery done March 15, 2012 at Yale New Haven Hospital, New Haven, Ct.
Dr. Chiang and Dr. Yu

am2lady

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Re: Those with 1.9cm or similar
« Reply #8 on: May 14, 2014, 07:53:21 pm »
Radiation isn't something I want so we'll see what my neurosurgeon recommends. I had my follow up MRI. Tumor went from 1.9 to 2.1cm.
MRI showed - 1.9cm x 1.9cm x 0.9cm AN - as of 5/11/13
MRI showed - 20.5mm AP x17mm  transverse x 20.7mm - 5/8/14

john1455

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Re: Those with 1.9cm or similar
« Reply #9 on: May 15, 2014, 01:22:06 am »
You have apparently determined what your treatment choice will be by the process of elimination. Radiation has been eliminated because you don't want it; Watch & Wait is eliminated because your tumor is growing; and that leaves only one option left - surgery.
Diagnosed with 19x16x19mm cystic AN right side on 7/2013
MRI on 3/2014 showed AN increased to 21x20mm
right side 70% hearing loss, tinnitus, balance issues
CK at Stanford completed 3/21/2014 (3 sessions)
Dr Steven Chang and Dr Iris Gibbs