Author Topic: Atlanta Area Group Meeting  (Read 5778 times)

Doc

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Atlanta Area Group Meeting
« on: May 03, 2010, 01:20:38 pm »
Is anyone else planning on attending the Atlanta Area Support Group Meeting on Saturday, May 8th at 10:00 at the Northside Hospital Doctors Center? I plan on being there!

Take Care!
  ;)
Doc
Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

cindyj

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Re: Atlanta Area Group Meeting
« Reply #1 on: May 03, 2010, 03:35:19 pm »
Hey, Doc!  Thanks for making note of the meeting out here...I had plans to do it, just hadn't done it yet ;)  Glad to know you'll be there - know we have several who are coming that don't participate here on the forum, but I hope some others from here do come also...

See you on Saturday - snow should not be a factor this time :D

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

saralynn143

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Re: Atlanta Area Group Meeting
« Reply #2 on: May 03, 2010, 05:30:58 pm »
Have fun!

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Doc

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Re: Atlanta Area Group Meeting
« Reply #3 on: May 04, 2010, 08:55:55 am »
Hi Cindy - Look forward to it...if it does snow I'm blaming it on you...see you Saturday. Oh, what should I bring for the snake table?

Take Care!
  ;)
Doc

PS: Thanks Sara...you should come join the fun!
Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

GRACE1

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Re: Atlanta Area Group Meeting
« Reply #4 on: May 04, 2010, 11:36:10 am »
I have not been on this site since Apr 9;.  I won't be able to attend the meeting.  I hope I will be able to come to the next one.

On Apr 12, my 31-year-old daughter, my only child, was headed to Macon GA (about 1.5 hr from home) for a class.  She was an RN who worked at the Medical Center in Macon.  At 7:30am, outside of Milledgeville, the driver of an 18-wheeler crossed into her lane and hit her head-on.  Needless to say, she did not survive.  She was married and has a 20-month-old son.  I still can’t believe it happened.  It did not have to happen.  Our grandson is what is keeping us going. 

God has given me the strength to get through this. 

Grace


Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

saralynn143

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Re: Atlanta Area Group Meeting
« Reply #5 on: May 04, 2010, 12:15:00 pm »
Oh Grace, I am so sorry for your loss. I will keep you and your family in my prayers.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

CHD63

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Re: Atlanta Area Group Meeting
« Reply #6 on: May 04, 2010, 12:50:15 pm »
Grace .....

I am so sorry!  Losing a child has to be a terrible blow, especially when it happens under these circumstances.

Many, many thoughts and prayers for peace and strength in the coming days.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

GRACE1

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Re: Atlanta Area Group Meeting
« Reply #7 on: May 04, 2010, 12:53:50 pm »
Thank you so much, Sara.  Everybody's prayers have helped get me through this.  Even though the loss of Rita was devastating, the Lord had our family in his open hands that awful morning.  The last time Rita had a class, she took Renner, her son, with her and a girl she works with babysat him.  That girl could not keep Renner on Apr 12, so we still have a part of Rita with us every day.

Grace
Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

GRACE1

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Re: Atlanta Area Group Meeting
« Reply #8 on: May 04, 2010, 12:58:23 pm »
Clarice,

Yes, it is indeed an awful blow.  You never think you child will be gone before you are.  Thank you for your prayers.

Grace
Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

Jim Scott

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Re: Atlanta Area Group Meeting
« Reply #9 on: May 04, 2010, 01:28:24 pm »
Grace ~

My condolences on the loss of your daughter, Rita.   May God comfort you as you mourn the inexplicable death of your adult child.  The Lord is close to the brokenhearted and saves those who are crushed in spirit.  Psalm 34:18

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

GRACE1

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Re: Atlanta Area Group Meeting
« Reply #10 on: May 04, 2010, 01:37:55 pm »
Jim,

Thank you for your thoughs.  Each time someone shares a Bible verse with me, it does bring me much needed comfort.

Grace
Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

cindyj

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Re: Atlanta Area Group Meeting
« Reply #11 on: May 04, 2010, 05:31:01 pm »
Oh, Grace...so, so very sorry.  Can only imagine what you and your family must be going through.  This and similar tragedies we sometimes hear of on the forum always puts our AN problems in perspective doesn't it...

Many hugs to you, Grace.  Take care,

Cindy

(Doc, I'll PM later in the week...)
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

yardtick

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Re: Atlanta Area Group Meeting
« Reply #12 on: May 04, 2010, 05:36:27 pm »
Grace,

My sincere condolences.  An extra kiss for your grandson from me.

Anne Marie XO
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

GRACE1

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Re: Atlanta Area Group Meeting
« Reply #13 on: May 05, 2010, 12:56:39 pm »
Cindy & Anne Marie,

Thank you for your kind words.  I will give precious Renner many extra kisses.

Grace
Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

Doc

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Re: Atlanta Area Group Meeting
« Reply #14 on: May 08, 2010, 04:15:26 pm »
Nice seeing everyone today at the Atlanta Area Group Meeting!  Thanks to Cindy J. for organizing todays get together. I for one was happy to meet so many new fellow ANer's and the spouses! Good group...lively conversation...I enjoyed my morning with everyone! Even got to meet Judy, the direct of ANA from the head office in Cumming, GA...nice to meet you Judy!

Take Care!
  ;)
Doc
« Last Edit: May 08, 2010, 04:22:00 pm by Doc B »
Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.