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Author Topic: Very Good News!  (Read 4304 times)

Cheryl R

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Very Good News!
« on: April 17, 2013, 09:37:09 pm »
Very good news again today of no new tumor and my audiogram remains the same!    Dr Gantz even really surprised me by saying did not need to see him for 5 yrs unless something does show some symptoms.   That was a big surprise and unexpected to hear as figured would maybe get to go longer someday.       I did get the audiologist to say that even though the part of the test where you repeat the words that man says goes well, I have some low frequency issues which does make some people harder to understand so I still do my share of saying  What?                Today was 5 yrs to the day of my last surgery so a special day anyway.                    What a roller coaster ride this all has been!                             Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

ginsue

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Re: Very Good News!
« Reply #1 on: April 17, 2013, 10:29:57 pm »
CONGRATULATIONS!!!!!

 That is wonderful news, you deserve it

 I also get tired of saying "what" so I change it up and repeat what I thought that I heard ...The cat had blue mittens on the roof top...it always gets a giggle first then secondly they repeat what they said and I never have to say "WHAT?"
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1991 tumor size- tennis ball (6.7 cm - Wikipedia)
facial paralysis, deaf, balance issues
1997gold weight and facial reconstruction
May 2013 SoundBite
Oct. 2013 Scleral lens

ewchisek

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Re: Very Good News!
« Reply #2 on: April 18, 2013, 11:00:57 am »
Congrats! I am so happy for you!!
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Jim Scott

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Re: Very Good News!
« Reply #3 on: April 18, 2013, 11:45:10 am »
Outstanding news, Cheryl!  Congratulations!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

CHD63

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Re: Very Good News!
« Reply #4 on: April 18, 2013, 02:14:39 pm »
Hi Cheryl .....

Passing that 5-year mark following AN treatment with a clean MRI is cause for rejoicing, indeed!!  So happy for you!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

jaylogs

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Re: Very Good News!
« Reply #5 on: April 20, 2013, 08:22:19 am »
Yayyyyy Cheryl! Congrats on your 5th, good news indeed! :)
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

jsanders1379

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Re: Very Good News!
« Reply #6 on: April 20, 2013, 09:57:09 am »
Congrats! So happy for you!
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Jeanne
Dx 10-25-2012
5x6x4 mm
3-27-2013 MRI 9x6x6 mm
GK  5-7-13 Swedish Hospital, Denver

saralynn143

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Re: Very Good News!
« Reply #7 on: April 20, 2013, 10:38:13 am »
Always great to hear Very Good News. Best to you always, Cheryl.
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

MDemisay

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Re: Very Good News!
« Reply #8 on: April 23, 2013, 08:07:17 am »
Dear Cheryl,

Simply wonderful news! Congratulations! Continued GOOD HEALTH to you!

Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

leapyrtwins

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Re: Very Good News!
« Reply #9 on: April 23, 2013, 11:41:04 am »
Quote from: Cheryl R on April 17, 2013, 09:37:09 pm
What a roller coaster ride this all has been!                             Cheryl R

That sums it up very nicely!

Sure glad the ride has gotten better and that the news is good  ;D

Congrats!!!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Mickey

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Re: Very Good News!
« Reply #10 on: April 23, 2013, 12:13:34 pm »
Way to go Cheryl! Thats great news... Congrats, Best wishes Mickey
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