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Author Topic: Infection is back - I am weary  (Read 29998 times)

texsooner

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Re: Infection is back - I am weary
« Reply #60 on: December 31, 2009, 06:59:09 pm »
Kathy, thanks for the update. Sounds like you've got a great plan that will have you coming out strong in a few weeks. Know that we are all pulling hard for you. Good luck...we're praying for you. When you think about it, let us know how you're doing when you feel like it. Happy new year. 

Patrick
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3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

pjb

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Re: Infection is back - I am weary
« Reply #61 on: January 01, 2010, 09:31:46 am »
I am so glad you responded to us we were all very concerned I am so sorry you have to go through so much for one person and in just one year. You mentioned about the antidepressant and the anti-anxiety with all that is happening now and in the next few weeks I wish you would reconsider and start taking the medication now so you will maybe be able to cope a little bit better you deserve a little calm for now....

My thoughts and prayers will be with you,

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

Kathy M

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  • Kathy
Re: Infection is back - I am weary
« Reply #62 on: January 01, 2010, 10:50:29 am »
I am constantly pinching myself to make sure that I am really reading your posts and not dreaming that there is such a warm supportive and compassionate group of friends out there who care so much.  Your comments mean the world to me and they are not small things at all!!  I always feel so much better when I read them.

Donnalynn - thanks for sharing your mom story....I have accepted my situation as you have...most of the time.  I'm much better at it of late, and my husband told me yesterday that he will always be there for her to complain to since she gave him "me"!  He also said that if he had to do it over again 30 years ago, he would do nothing different (which of course, made me weep!) and that even though things are getting lopped off, he thinks I'm just wonderful!!  Wow, how did I get so lucky!!!

Anyway, in an odd sort of way, it is good telling the story - guess journaling is really good for the soul.  I am grateful for this forum that allows us to do it.  Even though the stories might not be bestsellers, they are ours to tell and we kindred spirits are forever linked through the written word.

I promise to get my prescriptions filled today so they are on the ready.  I will check with the pharmacy to make sure nothing that I'm taking or plan to take during my upcoming adventure will not interfere.  Thanks, Pat, for the gentle nudge!!!!

Love to all of you and happy new year to all forumites!

Kathy
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AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

Sue

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Re: Infection is back - I am weary
« Reply #63 on: January 01, 2010, 01:50:51 pm »
Kathy, you have my thoughts and prayers also.  So very sorry you are having to go through all of this!!  Think of it as the roots of your best selling book that you will be authoring.  Of course, it will be made into a Major Motion Picture and Meryl Streep can play you!  You'll be invited to the Oscar party after she wins Best Actress and you will be on Oprah right before she retires.  Hey, it could happen!  ;)

Hang in there, kiddo.

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

yardtick

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Re: Infection is back - I am weary
« Reply #64 on: January 01, 2010, 06:49:43 pm »
Kathy.

That husband of yours is a KEEPER!

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

moe

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Re: Infection is back - I am weary
« Reply #65 on: January 01, 2010, 09:39:44 pm »
Oh dear Kathy,
I just read the update, and had no idea you got an additional dx of breast cancer.
Why? Why? Why?
We ANers are a glutton for punishment no doubt. You have a lot of people praying for you, and rooting you on and I know you will do great
Keep the faith,
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Goldie

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Re: Infection is back - I am weary
« Reply #66 on: January 03, 2010, 04:04:41 pm »
Kathy, you continue to be in my prayers, and I wish you all the best as you face surgery AGAIN!    >:(  God bless you as you continue on this new journey. 

Denise
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GK 5/06 at Mayo for small AN after balance and slight hearing issues.  Progressive hearing loss following GK.
3/09 - facial spasms began.  MRI shows tumor growth.
9/09 - MRI shows further growth.  "GK failure."  Translab 10/1/09 success!  BAHA 10/8/10.

Anomar11

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Re: Infection is back - I am weary
« Reply #67 on: January 03, 2010, 06:26:14 pm »
Kathy,

Add me to the list of those praying for you.  I know many women who have beat breast cancer.  You can too.  Take care.

Mona
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L An diagnosed 5/08 2.0 x 1.1 x 1.3 cm.  Cyberknife Stanford Drs Chang and Gibbs Nov '08.  One yr: 2.1 x 1.4 x 1.6, Two yr: 2.2 x 1.5 x 1.8, Three yr: 1.9 x 1.5 x 1.5, Four year 1.6 x 1.1 x 1.1, Six yr: 1.4 x .7 x .9

leapyrtwins

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Re: Infection is back - I am weary
« Reply #68 on: January 04, 2010, 11:00:09 pm »
Kathy -

wishing you the best tomorrow.

Thinking of you,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Infection is back - I am weary
« Reply #69 on: January 05, 2010, 07:33:06 am »
Kathy~
You are in my thoughts & prayers - especially today - your whole family too!  You are going to beat all this & be a stronger lady on the other side!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

CHD63

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  • Life is good again!!
Re: Infection is back - I am weary
« Reply #70 on: January 05, 2010, 07:49:26 am »
Kathy .....

Thinking about you today ..... praying that this step of the process goes as planned with a minimum amount of discomfort.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Lynn Mc

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Re: Infection is back - I am weary
« Reply #71 on: January 05, 2010, 08:04:03 am »
Kathy,

You are in my prayers today as you have been since I started reading your story.  You are one strong lady. 

Thoughts & Prayers with you,
Lynn
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Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

pjb

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Re: Infection is back - I am weary
« Reply #72 on: January 05, 2010, 08:32:59 am »
You are in my prayers today hope that someone will let us know how things went today.

Best Wishes,

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

wendysig

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Re: Infection is back - I am weary
« Reply #73 on: January 05, 2010, 08:35:00 am »
Kathy,

Please know that you are in my prayers today also.  I'm hoping, as we all are, that someone will let us know how things went.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Cheryl R

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Re: Infection is back - I am weary
« Reply #74 on: January 05, 2010, 08:39:20 am »
Kathy, you know I am thinking of you and hope all is going well!            Cheryl R
Logged
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care
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