« previous next »
Pages: [1]

Author Topic: I'm back!  (Read 3487 times)

Joef

  • Hero Member
  • *****
  • Posts: 1345
  • ** I rather be Kayak Fishing **
I'm back!
« on: March 26, 2007, 11:25:53 am »
I'm back from my checkup/MRI at House Ear Clinic ...

the results are in .. my MRI was free of any AN  ;D and I do have a brain !  8)  ;D

He (Dr. Brachmann) was dead set against the 12/7 graft .. said my nerve was intact and progressing ... I wont come back 100%, but give it 3 years ... (ugggg) ...electric stimulation or exercises wont help ... just time.  He did strongly recommend a gold eye weight .. so any good doctors for this in the NYC,CT or Boston area? and the next MRI in 4 years...
Logged
4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: I'm back!
« Reply #1 on: March 26, 2007, 11:43:51 am »
Hi Joe:   YEEEAAHHH!!!!!   Wonderful news on the facial nerve coming back.
             So, YOUR doc said give the nerve 3 years, my neurologist said up to 2 years,
            hhmmmmmm.... are these guys ever in agreement...  I geuss Dr. Brachmann has seen
            improvement thru 3 years....
            My docs also said no electric stimulation/exercises UNTIL movement comes back
           (so, they agree on that !). 
            The eye weight really helps with appearance & protecting the cornea (but I'm sure you
            know that already..).   The surgery isn't a big deal;   as you know, my gold weight had to
            be removed, now I'm waiting for the lid to heal & the doc will see how I do once he puts in
            the platinum weight.
            Again, Joe,  glad to hear the GREAT NEWS!!!  All the best, Nancy
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Brendalu

  • Hero Member
  • *****
  • Posts: 1286
  • Smile..it makes everyone wonder what you are up to
Re: I'm back!
« Reply #2 on: March 26, 2007, 01:26:43 pm »
Great news! Joe!  Anytime I hear no MRI's for a while I'm all for it!
BrendaO
Logged
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

msuscottie

  • Sr. Member
  • ****
  • Posts: 350
  • Postie x 3
    • mytooma - the acoustic neuroma blog
Re: I'm back!
« Reply #3 on: March 26, 2007, 01:39:12 pm »
Congrats on the great news Joe!
Logged

TP

  • Sr. Member
  • ****
  • Posts: 337
Re: I'm back!
« Reply #4 on: March 26, 2007, 07:13:08 pm »
Hi Joe, great news on your recovery. Gold weight implant is very simple. I was somewhat awake for the surgery and didn't feel a thing. Took about 30 minutes for the whole procedure. I used my opthalmologist and he had no problem doing the surgery. He is recommending me see another surgeon to correct my double vision. That type of surgery is a bit more complicated.   
Logged
4+cmm left retromastoid of cerebellopontine angle tumor removed 6/5/06; Dr. Eric Gabriel, St. Vincents, Jacksonville, FL
Left ear hearing loss, left eye gold weight, facial paralysis; 48 year old female. Dr. Khuddas - my hero - corrected my double vision

1wareagle

  • Full Member
  • ***
  • Posts: 158
Re: I'm back!
« Reply #5 on: March 26, 2007, 07:54:42 pm »
Joe,

Congrats on your clean MRI! I was hoping that he told you of some exercises that would help! I also asked Dr. Brackmann about exercises and he told me to wait till I seen movement first. I know it's still too early but I haven't had any movements yet!

While I was in LA, Dr. Roberts put my weight in. I was awake for the entire surgery. The best part is I rarely use eye drops anymore. I still have to use the clear patch to work outside but that OK.

Good Luck on your continued recovery,
Ellis
Logged
Ellis- Age 50- Mississippi
3.2 cm AN Translab w/ BAHA Surgery
@ House Ear Clinic - LA - 01/04/07    Dr. Brackmann, Dr. Hilselberger, Dr. Stefan
Platinum weight in right eye-Dr. Roberts
Right side facial paralysis (slowly getting movements)

pearchica

  • Sr. Member
  • ****
  • Posts: 320
  • Hey!
    • Political Chic Chat- an Independent Political Cocktail for Women
Re: I'm back!
« Reply #6 on: March 26, 2007, 07:55:36 pm »
YEAH YEAH YEAH... and when are you going fishing???  ;)  Annie
Logged
Annie MMM MY Shwannoma (sung to the son My Sharona by the Knack-1979)
I have a TUMAH (Arnold Schwarzenegger accent) 2.4 x 2.2 x 1.9CM. CK Treatment 2/7-2/9/07, Stanford- Dr. Stephen Chang, Dr. Scott Soltys

Sue

  • Hero Member
  • *****
  • Posts: 1934
  • Que sera, sera
    • My Blog
Re: I'm back!
« Reply #7 on: March 27, 2007, 12:52:53 am »
Congrats Joe on your clean bill of health.  Cheers!

Sue in Vancouver USA
Logged
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

cookiesecond

  • Sr. Member
  • ****
  • Posts: 303
Re: I'm back!
« Reply #8 on: March 27, 2007, 02:47:29 am »
Thank you for sharing your GREAT news Joe. We praise the Lord with you!!!!
Have a blessed week all,
Lynn
Logged

Obita

  • Hero Member
  • *****
  • Posts: 985
Re: I'm back!
« Reply #9 on: March 27, 2007, 08:11:38 pm »
Welcome back you tumorless global moderator!!  Yeah!! 



Logged
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Larry

  • Hero Member
  • *****
  • Posts: 1464
  • Scallywags Rule
    • Chronologer of the PBW
Re: I'm back!
« Reply #10 on: March 27, 2007, 08:51:02 pm »
WOO HOO

Needed to hear some good news Joe,


Laz
Logged
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

MLB57

  • Full Member
  • ***
  • Posts: 227
Re: I'm back!
« Reply #11 on: March 27, 2007, 08:58:27 pm »
Hi Joe--WONDERFUL news all around!!  Looking forward to seeing you again at our Maxwwell's brunch!!!!

Regards, Mary
Logged
1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!
Pages: [1]
« previous next »