General Category > AN Issues
Another AN case
Willbur:
--- Quote from: voron999 on March 06, 2017, 09:53:51 pm ---Well, finally made to the ENT specialist.
Short resume:
* I have a way to go yet before being too concerned (under 10mm is fine to wait-and-see he said)
* will check back in 6 months to see the rate of growth (the rate of growth - that is what to be concerned with)
* he up front discouraged me from doing radiation (GK) as at this point the potential side-affect on the hearing could out weight any gain for me (elimination of that annoying tinnitus in my case would be nice, but....);
* spoke about the permanent scarring caused by GK in the AN and I may want to wait just yet since there is no way back once that is done
* surgery - he could do it if I insisted; but he discouraged to be rushed
* regarding the tinnitus, echos, head discomfort he wants to consult another ENT specialist who works with such cases, but without invasive ways
In short, wait-and-see for me. At 48 I am young and healthy.
If can tolerate the symptoms, maybe should try to mitigate them for now and take the gradual path.
All for now.
--- End quote ---
Good choice.
voron999:
I have a sauna room (proudly - self-made) and enjoy using it during the cold season.
I was told recently that sauna is bad for my AN (coming from some more general idea that heat is bad for tumorous growths).
Can anyone comment?
Any reliable discussions about this anywhere?
I did google and nothing useful so far came up.
Nothing on this forum either that I can find.
Thanks in advance!
Willbur:
--- Quote from: voron999 on March 19, 2017, 10:20:25 am ---I have a sauna room (proudly - self-made) and enjoy using it during the cold season.
I was told recently that sauna is bad for my AN (coming from some more general idea that heat is bad for tumorous growths).
Can anyone comment?
Any reliable discussions about this anywhere?
I did google and nothing useful so far came up.
Nothing on this forum either that I can find.
Thanks in advance!
--- End quote ---
I workout quite a bit. I always use the sauna regardless. Can't comment on growth.
jim j:
Hello Everyone I hope everyone is getting better. I have a question? I had my 1 year post Gamma Knife meet with my Dr. I had a MRI of Brain and MRI of cervical spine has the Dr thinks i have lost a lot of strength on my left side unrelated to the second acoustic neuroma. I also have a feeling of pressure in my head and at times I told him the headaches are so bad on the side of my surgery and Gamma Knife surgery I get nausea debilitated. He stated its not related. I know I need surgery of my spine has I had L4-L5 fused in 1999 and my cervical spine is been bothering me. But when they did the cervical spine MRI they noted a "chronic ischemic lesion in the right cerebellar tonsil. Please correlate with dedicated brain MRI scheduled for the same day."
.He never mentioned it to me. I called and send 3 letters asking him to advice me as it is part of the brain and should have been picked up he is a neurosurgeon. But I was told I needed to see his partner another neurosurgeon that deals with that he does Gamma knife. He told me to get to him ASAP and I am a little taken back has a neurosurgeon my neurosurgeon I believe he could have given me a little time to explain it. All I was told my Tumor and Cyst are stable and not growing but i need to get to the other Dr. I look it up and it is on the bottom of the cerebellum and it can be caused by a few different things. I have had 3 MRI done before on my C-spine and that was never mentioned yet after Gamma Knife that is mentioned and also this “There are hazy confluent areas and scattered punctate foci of increased FLAIR signal in the white matter bilaterally, nonspecific, but likely related to mild microvascular disease.” again never there before? so why not tell me that all I was told 2 weeks later it could be just from getting older. I am 58 and had to many MRI of the brain to mention and never had these spots. Has anyone ever had this or heard of this?
ANSydney:
jim j, I see you've had a rough ride since 2003 when you had surgery for a 5 x 2 cm (or was it 2.5 x 4 x 7 cm) tumor followed by gamma knife February 2016 for a 0.7 x 1.3 cm tumor. Now it looks like you have a 5 cm cyst. From what I can gather, the current MRI report is confusing. Perhaps a meeting with a neurologist to go over your history and to explain what is going on would be good - no discussion on treatment yet, just understanding what is going on. He may in turn refer you to others that can help to understand where you are at.
Sorry that none of this helps, but clearly recording your history on paper and getting the latest status may help you move forward.
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