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Author Topic: Trying to find peace...  (Read 16226 times)

Jim Scott

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Re: Trying to find peace...
« Reply #30 on: August 11, 2011, 02:03:45 pm »
Hi, Sarah ~

I'm sorry to learn about the blood clot and related hospitalization but glad it was quickly addressed and in the process, they removed the dreaded feeding tube so you could eat a normal meal!  I hope you'll be released soon and, of course, you'll remain in my prayers.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

New girl

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Re: Trying to find peace...
« Reply #31 on: August 11, 2011, 03:24:59 pm »
Sarah - You are a strong person to go through all of this with such a great attitude.  Hang in there!   :)
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9mmx14mmx9mm
Diagnosed 6/1/2011
Retrosigmoid Surgery 9/27/2011
Daniel Lee (MEEI) & Fred Barker (MGH) - Exceptional Surgeons

Mickey

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Re: Trying to find peace...
« Reply #32 on: August 11, 2011, 04:50:01 pm »
Have been reading your posts. My prayers are with you for a speedy recovery. Best wishes, Mickey
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Mei Mei

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Re: Trying to find peace...
« Reply #33 on: August 11, 2011, 05:58:32 pm »
Keep on keeping up the healing.   We are all thinking of you.   Sincerely yours,
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

sarahinPA

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Re: Trying to find peace...
« Reply #34 on: August 11, 2011, 08:54:23 pm »
Thank you again everyone! Still in the hospital waiting on these medications to level out. Getting so bored in the hospital and really wanting to go home. Surgeon won't send me home until everything is level out. He worries about bleeding so wants me to stay here just in case. Worst part is being so bored. I'm catching up on my reading and daytime tv!
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2.3cm Diagnosed 12/19/08
Gamma Knife @ UPMC Pittsburgh 1/12/09
.2mm Regrowth 6/2011
Translab 7/29/11 @ UPMC
     temporary paralysis of throat-feeding tube 8 days; SSD; facial numbness; blood clot & pnemonia developed; 11 days hospital stay.

Mei Mei

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Re: Trying to find peace...
« Reply #35 on: August 12, 2011, 07:35:20 am »
Being bored is a sign that you are on your way home.   Your doctor is right in caring for your and making sure you are OK.   Just keep on being bored and keep the reading light for a while.   Have you ever tried Janet Evanovich?   I read her books in order from book 1 to book 9.   They are quick reads and make you laugh.

Sending you good healing vibes... ;)
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

sarahinPA

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Re: Trying to find peace...
« Reply #36 on: August 13, 2011, 07:49:15 am »
I got discharged yesterday!!! Being home is the most amazing feeling ever!!! Now it's recovery and gaining back my engery!!!
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2.3cm Diagnosed 12/19/08
Gamma Knife @ UPMC Pittsburgh 1/12/09
.2mm Regrowth 6/2011
Translab 7/29/11 @ UPMC
     temporary paralysis of throat-feeding tube 8 days; SSD; facial numbness; blood clot & pnemonia developed; 11 days hospital stay.

Phillies

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Re: Trying to find peace...
« Reply #37 on: August 13, 2011, 08:56:11 am »
Yay! :)
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Anasazi42

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  • "Per aspera, ad astra"
Re: Trying to find peace...
« Reply #38 on: August 13, 2011, 09:57:35 am »
Let the healing begin!!  :D so happy for you!
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Diag. Dr. Saffran ENT 3-9-11; 45 yrs at time of diag. 3.5+ cm AN rt side; 9 hr retrosigmoid craniectomy 5-12-11 FL Hosp. South, Neurosurgeon Dr. Melvin Field; Gold wt implant
Post-op: facial para. (rt), double vision (cleared up), SSD, tinnitus, balance issues, ataxia, movement disorder

Mei Mei

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Re: Trying to find peace...
« Reply #39 on: August 13, 2011, 12:38:09 pm »
Recovoery is a big piece of the puzzle.   Take baby steps and don't get frustrated.
Hugs,
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

vsfunkhouser

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Re: Trying to find peace...
« Reply #40 on: August 15, 2011, 05:31:02 am »
For those of us awaiting procedure... it is good to know that we can be praying for those who have had their procedure and recovering.  Keeping you in my thoughts and continued prayer for your recovery!  :D
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LisaP

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Re: Trying to find peace...
« Reply #41 on: August 15, 2011, 04:31:34 pm »
Best wishes on a speedy recovery.

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Mei Mei

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Re: Trying to find peace...
« Reply #42 on: August 15, 2011, 05:57:46 pm »
Welcome home.    ;D ;D Take a big breath and make a big smile.

Hugs, 

Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Jim Scott

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  • 1943-2020 Please keep Jim's family in your hearts
Re: Trying to find peace...
« Reply #43 on: August 16, 2011, 01:22:02 pm »
Sarah ~

(Belated) congratulations on being released from the hospital!  Relax as best that you can and don't try to do too much, too soon - but do enjoy being home!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

rayden1

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Re: Trying to find peace...
« Reply #44 on: August 16, 2011, 02:06:09 pm »
Hi have been away for sometime so have only read your  thread now. Glad you are doing good and best wishes for full recovery'

Annx
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