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Hello and introduction...

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ANSydney:
Matthew, I also experienced an episode of moving my jaw and suddenly the hearing being perfect. I had the phone up against my ear, as a rough hearing test in the early days, moved my jaw around and suddenly the dial tone was perfect. Could not reproduce it. Also, after installing a dental crown (no needles) the taste on the side of my tongue was altered. I mentioned to the neurologist that the jaw and the nerves that pass through the internal auditory canal must be related and he said no.

ChristineB1111:
Your symptoms sound very similar to mine, as far as the yawning and what not is concerned. I have tinnitus 24/7 though, it sounds like thumping, like I can actually hear my heart beat. And often have ringing with it, left ear. But I've experienced the same thing where my hearing will improve after that "pop" but only last a minute or two. I've actually tried yawning sometimes just to hear better for a minute. Sad what we do to ourselves. I was initially told my tympanic membrane had fallen last winter when I first really experienced the hearing loss.  Mine wasn't gradual. I woke up one day and felt like my ear was plugged and it's gotten worse since November. The first dr i saw said yawning changes the pressure in the ear and would help my tympanic membrane go back up. But my last dr who diagnosed my tumor didn't say anything about my tympanic membrane. So I don't know why that pop happens or the brief hearing experience. I don't have that as often anymore but on occasion I "get lucky" and can hear better out of that side for a minute or two.


--- Quote from: Matthew on August 10, 2017, 08:31:10 am ---Thank you to everyone for saying "hi"!

ANSydney- My first symptom (gradual hearing loss) started about 10 months ago. I thought it was allergy related congestion or eustacian tube dysfunction, mainly because I could not 'pop' my right ear. I've only had the tinnitus for about 3 or 4 months, at first very intermittent and now more frequently. Although when I'm at work or out and about I don't notice it, and I haven't lost any sleep because of it. Oddly, every now and then if I yawn or during exercise, my Right side hearing will all of a sudden greatly improve, but then subside again within a matter of minutes. Despite my AN diagnosis and the daunting decision in front of me, I am super grateful that my audiologist had the diligence to refer me for an MRI. Given my musical performance history, the hearing loss could have easily been chalked up to noise exposure. No matter my outcome, I am indebted to her for being a good practitioners.

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Matthew:
ChristineB1111- Thank you for the response. I haven't had my first consult yet (Aug 22) but I'm guessing the infrequent intermittent hearing improvements in my AN ear are the result of temporary pressure in my ear which causes either the eardrum or auditory nerve to become temporarily over sensitive. I'll definitely mention it at my consultation and see what the doctors have to say.

Matthew:
Update... After my initial consultation (which included lengthy meetings with more doctors than I can count) I've decided to go with the consensus recommendation of retrosigmoid surgery. Although not the only recommendation, it was by far the prevailing one amongst a team that does all modalities of surgery and radiation. Of interest, a lengthy portion of my consult was spent discussing who I am, what is important to me and my family, my fears/hopes as well as what I look forward to. I revealed that first and foremost I want my AN experience behind me, and that I did not want the problem to linger in my psyche any longer. Amongst the rationale for the team's recommendation: my age (46), my serviceable AN side hearing, my current lack of symptoms (hearing loss and tinnitus are my only symptoms) and that the majority of my AN is cystic. I'm now awaiting dates for both the surgery and pre-surgical balance testing.

The more steps I take toward dealing with my AN, the better I feel. I will keep everyone updated.

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