Author Topic: Balance problems/residual nerve conductivity  (Read 2976 times)

mike

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Balance problems/residual nerve conductivity
« on: November 14, 2005, 10:52:47 pm »
A short time ago I read SOMEWHERE here a patient was talking about balance problems.  I recall that they said sometimes the nerves remain partially intact and they got a neurologist to give them some type of a injection in that "bad" ear to kill the remaining nerve sensitivity, thereby ending their balance problems.

For the life of me I can't find that post.  Has anyone seen that post or can find it?

I am 3 years post op and still fighting balance issues.  I saw my neurologist today and he is certainly open to any new idea.  I would love to speak to that person and forward their treating physician's information on to mine.

Any help would be greatly appreciated!!

Michael

nannettesea

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Re: Balance problems/residual nerve conductivity
« Reply #1 on: November 16, 2005, 08:11:29 pm »
Mike,
I searched under injections and this is the e-mail address of the person who talked about it. I would e-mail her.  rntiggergirl@yahoo.com

I'm having severe dizziness 3 months post-op, god, three years--so sorry.

Hope the lead helps.
Nan
1.7cm x 1.4cm x .8cm, right ear
Trans-lab approach
Dr. Jay Rubinstein, U of WA
8/29/05

mike

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Re: Balance problems/residual nerve conductivity
« Reply #2 on: November 16, 2005, 08:19:42 pm »
Man, what a MORON.  I obviously searched every word EXCEPT the right one.  Many thanks for the assistance.

Cheryl R

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Re: Balance problems/residual nerve conductivity
« Reply #3 on: November 16, 2005, 08:51:53 pm »
  Gentamycin is a very potent antibiotic and is what was probably referred to with the injection to kill the nerve,    it is used for people with Mereries Disease.           Hope this helps.     
                             Cheryl R.
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

matti

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Re: Balance problems/residual nerve conductivity
« Reply #4 on: November 16, 2005, 08:58:41 pm »
Mike - Timely topic. I am 7 years post op and am finally seeing a vestibular/ocular rehabilitationist. My dizziness seems to have gotten worse during the past two years. I had my yearly check-up last friday and was given a posturgraphy test for balance. I failed miserably. I never realized how bad I was and how my body took over, but not in the right way. I should have been in therapy right after surgery. Anyway, I am in the process of doing different excercises to retrain my vision/body/brain. I was told it would help tremendously. Keeping my fingers crossed.

I would be interested in finding out more info on the injection, although my hearing/balance nerve was removed.

matti
3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

sirialison

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Re: Balance problems/residual nerve conductivity
« Reply #5 on: November 18, 2005, 03:16:11 pm »
Matti - I am interested in learning about your therapy. Does it have anything to do with visusal midline shift syndrome or post-traumatic visual midline shift?

Siri
Siri Meyer
3.5 cm left side AN
Retro-sig surgery
@ Mayo Clinic, Rochester MN
November 24, 2004

nannettesea

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Re: Balance problems/residual nerve conductivity
« Reply #6 on: November 18, 2005, 07:24:35 pm »
You're not a MORON!  You had brain surgery, remember?

Now I'm thinking about that injection.  I can't imagine being dizzy for 3 years.  Can't imagine I might seriously have to think about disability.  Are you on it?

Nan
1.7cm x 1.4cm x .8cm, right ear
Trans-lab approach
Dr. Jay Rubinstein, U of WA
8/29/05