Author Topic: Cindys Nerve Ablaision Experience....11/2010  (Read 57886 times)

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #60 on: December 11, 2010, 07:29:03 pm »
Lots less pain.....but major fatigue..taking vitamin B and D and fishoil.....i think i need a Red Bull or something....Woke up at 7:am and had agreat start to the day but by 1pm...putt..putt...putt
Dishes will still be there tomorow,laundry too! ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #61 on: December 12, 2010, 01:49:09 am »
That's OK...leave the housework and take the naps.   Those naps are so restorative!
Hugs,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #62 on: December 14, 2010, 11:56:23 am »
Sleepless night lastnight.....makes for no balance in the mourning.Weebling today. ::)
Good side...No Tramadol for 5-6 days...no major pain .....just the stiff neck.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #63 on: December 14, 2010, 03:18:57 pm »
Get a microwaveable wrap filled with flax seeds and microwave it for two minutes every morning when you get to the kitchen.   I do this every morning before I even think about making coffee.   It takes some of the kinks out.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #64 on: December 15, 2010, 07:08:24 pm »
Yay.....great day today!!!!!No major pain...went to thrift store ....treated myself to a christmas present...went to the grocery store,,,,vacumed..the dishes again....dropped a cookie and thought well....thats the way the cookie crumbles...sense of humor retuns...tramadol sucked the life out of me i think....feel so much better w/o it.I had been on it for 3 years...no fun going off it...chills,nausesa lazy bum feeling...
I put the lights on my tree..stuffed and cooked a chicken....I wish every day could be just like today except 70 degrees warmer.....BRRRRR..its freezin here.
HUgs All! ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Jim Scott

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #65 on: December 16, 2010, 02:22:43 pm »
Cindy ~

Great post!  It was so good to read about your fun, productive day spent without the drag of the effects of the Tramadol.  Now, if it would only warm up a bit.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #66 on: December 16, 2010, 03:02:43 pm »
That was so nice to hear about your good day and I'm so happy that you're getting off the meds.   After all, I think that is all of our goals here.   Hang in there on coming off the Tramadol.

Enjoy your stuffed chicken!

Hugs,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #67 on: December 16, 2010, 03:30:08 pm »
Hi All....Another good day physically.....Not tired today at all....sleeping better w/ the help of amnitrypline.....funeral today for ex-fiances father...sad...he had a rare degeneration disease called
CorticalGanglionic Degeneration......it was slowly degenerating his brain..so he could not remeber the simple stuff that came as natural ...learned things from childhood..like tieing shoes...using a fork.. left from right....sense of direction.We had alot in common as he lost his balance and sense of perception.
His body slowly shut down limb by limb.Feel a sense of relief for him as he was in a nursing home and could not move to go to bathroom ect...i stayed w/ him most of the summer sitting outside and taking care of him while his wife got little breaks to go to tenniis...errands ect..
He was an active hunter,fisher,boater and builder..He and his son built half of thie town i live in.
Anyway....not in any apin phsically..neck is not stiff(but i had acouple hot totties):)
Relaxing now.
So....I say the pain of the nerve ablation is worth the suffering.Sore for 6 weeks and now in alot less pain w/o the pain meds.two tylenol today and gabepenton.
Started chiropractor again also 3rd visit tomorow.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #68 on: December 16, 2010, 04:25:33 pm »
I'm sorry for the loss of your friend, but he really was suffering...such bad luck to happen to him.    You are a wonderful person to help him in his time of need.   God will return the favor when you need it.

Keep on healing well.  I'm so happy for you!
Hugs,
Mei Mei   ;D
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #69 on: December 16, 2010, 05:22:41 pm »
Hugs bacK.. ;D
His wife said to me today That i was his angel,,,and lit up his life. ;Dwarm and fuzzy
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #70 on: December 16, 2010, 07:23:00 pm »
Utterly Nice!     ;D

He really knew how to recognize a good thing when he saw it.   May he rest in peace!

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #71 on: December 17, 2010, 03:02:14 pm »
Sooo....Day 36 i think....Going extremly well....no pain in the neck or head..couple spasms now and then...but everythink is mending so its to be expected.
I just hope this keeps on ,keepin on....Dr jergansen knows his spine stuff....good thing becouse i was reeady to throw the towel in and not try any more shots to the neck.
Now i kno this may have to be repeated in 8 months to a year...but out of pain for next 8 months  ;D.......I will do it again if needed down the road just to rejoice in the relief i feel now.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #72 on: December 17, 2010, 04:45:49 pm »
It's really worth it.  I'm so happy for you.   I'll ask my neurosurgeon about it on Tuesday when I see him.

Keep on enjoying your pain free days.    ;D
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Captain Deb

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #73 on: December 18, 2010, 11:44:13 am »
Soooo happy for ya Cin!  I saw my pain/spine doc on wed and we discussed getting on with the head/neck issues on my next visit and I am set up for the first of my "diagnostic" injections on the 28th.  Told him about your sucess.  He has given me quite a few options and he was amazed that I actually was in touch with fellow post AN headache sufferers who had had just about every different option on his list: nerve ablation, neurostim implant, nerve decompression surgery.

He said I had what is called "transformed migraines" which we should all google the crap out of.  Differs from a vascular migraine in that it is more cause by "mechanics" than chemical imbalance.  The bad news for me is that I've had them for so long (8 yrs) it may be tougher to treat.  So the word is--the sooner you get treated, the better.

I'm pretty pissed at my local neuro for not pushing me a little harder in this direction, but I had a huge deductible then, but it would have been worth it considering all the work I missed. Hindsite for me, but good advice to others who read this!

Hope you have continued relief--I may PM you requesting your phone # so we can talk in person.

Hugs,

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #74 on: December 18, 2010, 04:29:07 pm »
Sounds good Deb....You kno where i am on facebook......Little fatigue today but it has been a tough week emotionally...sleeping great w/ amnitryp.....taking a couple tylenol here and there..but no major head jams...
woot!
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old