Author Topic: Proton Therapy -MRI results 2 years and 4 months after end of 28 sessions  (Read 2565 times)

KeepSmiling

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Happy to be reporting quantitative news about my spouse: Per recent MR this week: No change in size of tumor. This recent MRI was taken -2 years and 4 months after end of 28 sessions of Proton Therapy. It is the second MRI since the treatment ended.

Qualitative outcome of Proton Therapy (1.5 cm vestibular schwannoma) No change in daily life since Proton Therapy treatment began.  No headaches. No balance issues. No facial issues. No cognitive issues. Tinnitus is only occasional, as it was prior to proton beam treatment. No energy loss or fatigue. No time lost at work. Deafness in left ear remains the same. Sensitive hearing in good ear remains the same. Often uses ear plugs to shield good ear from any loud noises that could cause damage.

My spouse is willing to talk about this positive experience, so just send us a private message if you are interested. Please be aware we  aren't looking at this forum too often because things are going so smoothly. Life is good. We are truly thankful for the good outcome from proton therapy for the acoustic neuroma. 

12/O6/2O12: 1.5 cm lesion.Proton Therapy-July/Aug, 2013 Massachusetts General Hospital. 2/23/2018 MRI: 1. Small .5 cm x(AP) x .8 cm (TV) x .8 cm (CC )left intracanicular acoustic schwannoma) Completely deaf in one ear. Occasional tinnitus. Zero side effects.

Patti

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Re: Proton Therapy -MRI results 2 years and 4 months after end of 28 sessions
« Reply #1 on: December 05, 2015, 09:00:29 am »
That is great news!!  So happy for you both!  Patti
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

KeepSmiling

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Re: Proton Therapy -MRI results 2 years and 4 months after end of 28 sessions
« Reply #2 on: December 14, 2015, 08:55:14 pm »
Patti
Thanks for caring. You are so nice.
12/O6/2O12: 1.5 cm lesion.Proton Therapy-July/Aug, 2013 Massachusetts General Hospital. 2/23/2018 MRI: 1. Small .5 cm x(AP) x .8 cm (TV) x .8 cm (CC )left intracanicular acoustic schwannoma) Completely deaf in one ear. Occasional tinnitus. Zero side effects.