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Author Topic: It's Growing !!  (Read 2505 times)

alwaysthere

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It's Growing !!
« on: May 29, 2009, 07:40:01 pm »
I recieved copies of the Doctor's reports from Mayo Clinic yesterday. These were the reports that they sent to my local Doctor's. In the papers was a copy of the MRI report. Apparently the thing (whatever it is) has grown. In January it was 1.5cm. In February it was 1.6cm This month it is 2cm. I'm so glad it is coming out in June, cause the rate it's going, it could be bad. The report says it couild be either a meningioma or acoustic schwannoma and that there is a dural tail. 

Anyways, so much for me wondering if I was doing the right thing with surgery. Now I know for sure that I am. June 25th can't get here soon enough.

Patty
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Diagnosed 1/09 1.6cm left side
5/09 2cm
hearing & balance problems
Surgery Date June 25, 2009 St. Mary's Hospital in Rochester, Mn
Surgery went great, can still hear!!!!

"This too shall come to pass and life will go on"

yardtick

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Re: It's Growing !!
« Reply #1 on: May 29, 2009, 08:07:10 pm »
Patty,

Wishing the best. 

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Vivian B.

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Re: It's Growing !!
« Reply #2 on: May 29, 2009, 08:41:55 pm »
Hi Patty,

Good luck on your surgery. You will do great! Keep us posted.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

suboo73

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Re: It's Growing !!
« Reply #3 on: May 30, 2009, 07:22:25 am »
Patty,

My thoughts and prayers are with you today.
Best wishes for a successful surgery on the 25th.

Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

kenneth_k

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Re: It's Growing !!
« Reply #4 on: May 30, 2009, 08:48:23 am »
Hi Patty.

Good thing you will get it dealt with soon. I'm sure you will do fine.

Regards, Kenneth
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CHD63

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Re: It's Growing !!
« Reply #5 on: May 30, 2009, 08:53:36 am »
Patty....

So glad your surgery is soon.  It will be a huge relief to have it out of there and get on with life!

My thoughts and prayers are with you.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

cin605

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Re: It's Growing !!
« Reply #6 on: May 30, 2009, 09:08:40 am »
Glad to hear you have a date!I had surgery 6/26/08.I will be thinking of you & saying many prayers.
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Jim Scott

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Re: It's Growing !!
« Reply #7 on: May 30, 2009, 02:20:42 pm »
Patty ~

I'm sorry your 'mystery tumor' is growing but relieved (as you are) that it's coming out within the next month.  Good vibes and prayers are with you all the way.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

MissMolly

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Re: It's Growing !!
« Reply #8 on: May 30, 2009, 04:19:40 pm »
Patty,  Good vibes being sent your way.  I hopeyour surgery goes smoothly and succesfully and that your recovery is easy and speedy.

Miss Molly
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

CTPatient

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Re: It's Growing !!
« Reply #9 on: May 30, 2009, 04:50:07 pm »
Patty,

Sending good thoughts for your upcoming surgery. 
I'll keep you in my prayers.

Sally
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EJTampa

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Re: It's Growing !!
« Reply #10 on: May 30, 2009, 07:20:16 pm »
Hi Patty,
 
Also here to say I'm sorry that it is growing so quickly, but glad it will be taken care of sooner than later!
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

moe

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Re: It's Growing !!
« Reply #11 on: June 01, 2009, 09:26:48 am »
Patty,
What a relief to know the bugger is coming out! Enjoy some fun and pamper yourself prior to surgery, ya hear?
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Mickey

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Re: It's Growing !!
« Reply #12 on: June 01, 2009, 09:49:07 am »
Best Wishes! Many prayers are with you, Mickey
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bell

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Re: It's Growing !!
« Reply #13 on: June 01, 2009, 11:22:04 am »
Hi Patty,
  I am sorry your tumor is growing so fast.  I am happy that you are ready for surgery.  I wish you the best and will keep you in my thought and prayers.
I hope all of your questions were answered form the Dr.s at the Mayo.  I felt extremely comfortable with both of them.
Late answers for you concerning headaches:  I have horrible headaches.  I have one about every 7-8 days.  My head is going to explode.  Some of the time I take a 2mg fast release oxycodone, yesterday I took four tylenol and it knocked it down in about 45minutes.
Nails, I took off all polish, I do not wear artifical.
I think the head was mimimally shaved.  I have chin length hair and thin, they shaved about 2 inch strip from top of ear to bottom of neck.  My hair on top of my head would cover up my scar.  I have the same bob but shorter in the back.  My new hair is growing extremely fast.  I did get some vitamins with extra Bioitin and B vitamins to help with growth, I think it is working.
If you think of any questions please ask.
God Bless,    Bell
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