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Author Topic: I'm off to The Mayo Clinic  (Read 1758 times)

alwaysthere

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I'm off to The Mayo Clinic
« on: April 29, 2009, 07:35:32 am »
I leave on Monday to go to The Mayo Clinic in Rochester, Mn. I see Dr's on Tues (5th) & Wed (6th). I hope that I will finally get answers on this trip. I am going to discuss surgery as I do want this tumor out of me. Wish me luck.

Patty
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Diagnosed 1/09 1.6cm left side
5/09 2cm
hearing & balance problems
Surgery Date June 25, 2009 St. Mary's Hospital in Rochester, Mn
Surgery went great, can still hear!!!!

"This too shall come to pass and life will go on"

Lilan

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Re: I'm off to The Mayo Clinic
« Reply #1 on: April 29, 2009, 07:42:38 am »
Great luck!  :D
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Facial nerve hemangioma. Probable dx 7/2008 confirmed 4/2009. Combo middle fossa and translab to remove the blood vessel malformation and snip ruined hearing and balance nerves by Drs. House and Brackmann @ House 6/2009. Doing great!

grega

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Re: I'm off to The Mayo Clinic
« Reply #2 on: April 29, 2009, 07:54:48 am »
The best of luck to ya!

Keep smiling ;D.... Greg   
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1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

Keri

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Re: I'm off to The Mayo Clinic
« Reply #3 on: April 29, 2009, 07:55:51 am »
Have a safe trip, Patty, and I hope you can get something scheduled soon.
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

leapyrtwins

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Re: I'm off to The Mayo Clinic
« Reply #4 on: April 29, 2009, 02:09:19 pm »
Good luck, Patty  ;D

Hope everything goes well.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: I'm off to The Mayo Clinic
« Reply #5 on: April 29, 2009, 02:45:39 pm »
Patty ~ 

I'm happy to add my good luck wish as you travel to the Mayo Clinic.  I also endorse your desire to be tumor-free, soon.   :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

grega

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Re: I'm off to The Mayo Clinic
« Reply #6 on: April 30, 2009, 06:56:17 am »
Patty ... even tho you'll be meeting Mayo docs on Cinko-de-Mayo and the 6th ...........


......... May the 4th be with you !!!!!!!!!!!!!!!!!!


Sorry bout that ..........  :D   :D   :D   Greg
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1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

nteeman

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Re: I'm off to The Mayo Clinic
« Reply #7 on: April 30, 2009, 07:14:21 am »
Patty,

Best wishes.  ;D

Neal
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Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

Dismas72

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Re: I'm off to The Mayo Clinic
« Reply #8 on: May 05, 2009, 11:29:33 pm »
You may allready know by the time you read this,But you are going to a very well organized and run place. I remember not sleeping the night before my tests and meet and great with Dr's Link and Neff. But soon realized that I was in good hands. My LAST visit was in January,so atleast you'll have son warmer weather for travel.  My surgury whent well and thet begged me into staying 2 extra days after just because I lived farther away, in Friday out Wednesday morn. I have been visiting this site on and off during and before my now recovery and I just feel that maybe me writing something that might help you in you new adventure to find some peace of mind. I'm sure they're going to give you percentages and numbers odds if you will. Please remember to take only one day at a time and STAY POSITIVE, because you'll be ok..

God bless you 
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2.7cm diagnosed 6/08 removed 9/08 at the Mayo Clinic Rochester MN.
retrosigmoid approach (9hrs)  01/09 follow up, Got it ALL!!!

suboo73

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Re: I'm off to The Mayo Clinic
« Reply #9 on: May 06, 2009, 04:38:58 am »
Patty,  Hi!   Hope you are having great appts at the Mayo Clinic and getting the information you need and answers to all your questions!
I know from experience that no one in my local town would have been able to deal with an AN diagnosis - i am grateful to live within 2 hours of 2 major medical centers in VA, with the option to go to several more within 4 hours!
All my thoughts and prayers to you as you travel on this journey.
==============
Dismas72 --  Welcome to the Forum!  How very wonderful that you have taken the time to post for Patty and give her the assurances regarding Mayo Clinic.
Hope to see more about your AN journey in the coming days.  My older sister and i are both here and grateful for all the information on the Forum.
[Patty - SORRY for the hijack!  Please forgive me.    ::) ]

Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

alwaysthere

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Re: I'm off to The Mayo Clinic
« Reply #10 on: May 06, 2009, 08:35:11 am »
Hello all my fellow an's
I am at The Mayo Clinic in Rochester, Mn. Everything is going okay so far. I can't remember who on here first did this, but I have a webpage on Thestatus.com. It's a great way to keep my family and friends up-to-date on me without making all those phone calls. Please feel free to check on me anytime. Also, thanks for all the support.

Patty

thestatus.com
login ID: Smith
password: myjesus2
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Diagnosed 1/09 1.6cm left side
5/09 2cm
hearing & balance problems
Surgery Date June 25, 2009 St. Mary's Hospital in Rochester, Mn
Surgery went great, can still hear!!!!

"This too shall come to pass and life will go on"

leapyrtwins

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  • I am a success story!
Re: I'm off to The Mayo Clinic
« Reply #11 on: May 06, 2009, 09:05:05 am »
Patty -

thanks for mentioning your status page.

Congrats on getting through the tube of gloom (MRI).

It sounds like your visit has been - and will continue to be - very productive.

Best of luck today.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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