Author Topic: Strange  (Read 2989 times)

saralynn143

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Strange
« on: February 11, 2009, 07:15:05 am »
I am about eight and a half months out, and have just reached symmetry at rest and a small closed-mouth smile.

As my face has improved, though, I am now biting my lip more when I eat, it is harder rather than easier to drink without a straw (I drool a lot more), and it looks like the corner of my mouth on the weak side is actually higher than on the other side.

Is this just a bump in the road to recovery? I see my nerve specialist again in about a month.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

CROOKEDSMILE

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Re: Strange
« Reply #1 on: February 11, 2009, 08:51:05 am »
Hi Sara,
Sounds like your muscles are drawing up and heat and massage might help. Some times I'll get a joker smile that won't quit and heat and massage help to relax those tense muscles.
Angie

MKLady

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Re: Strange
« Reply #2 on: February 15, 2009, 07:00:14 pm »
Sara,  the exact same thing is happening to me as I gain more movement.  It's like the left side of my mouth has a hole in it and I now have more trouble eating and I drool.  I think it is because the muscles are now drawing that side higher as Angie said.  It does seem to be getting better.  All this is definitely a killer to any vanity I might have had. The other night I slept really well but when I woke up my bedroom door was shut.  I ask my son if he had shut it or was I sleep walking.  He said I was snoring so loudly he couldn't sleep so he got up and shut it.  ;D  My mom and I got a big laugh out of it when I told her.  I can just imagine what I looked like...one eye half opened and rolled back in may head...snoring loud enough to rattle the house.  Very sexy!  It's a good thing I'm single or a husband might have run for the hills.  Ha Ha.   ;D ;D
Translab 4/10/2008; 1.3 cm; total facial paralysis left side.

CROOKEDSMILE

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Re: Strange
« Reply #3 on: February 16, 2009, 03:53:28 pm »
Sara,
This is really weird but this could also be a cause of your new symptom. I am currently going through a miscarriage since Valentine's Day and I am very tired and really just flat worn out and my bottom lip is acting up. It is lazy and I am dribbling alot more when drinking from a glass. I normally do okay. It isn't tight or drawn up but just not doing its thing this week. So I believe that fatigue plays a big factor in whether our faces work right or not.
Angie
« Last Edit: February 16, 2009, 06:18:29 pm by CROOKEDSMILE »

Kaybo

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Re: Strange
« Reply #4 on: February 16, 2009, 03:59:20 pm »
Sara~
I had started a response to you, but never got it finished and posted.  I have found that I can go for YEARS without any problems and then all of the sudden, I have more trouble again.  Of course, you aren't going to have the long-term, lasting effects like I do, but I just wanted to say that it just kind of comes and goes.  It might be associated with tiredness or just a "change" in something very minute, but is a change none-the-less and so I have to retrain myself again!  Keeps me humble, I guess!

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

mimoore

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Re: Strange
« Reply #5 on: February 16, 2009, 06:39:15 pm »
Sara we are very close in recovery. I too notice that drinking from a straw is a challenge. I also bite my tongue sometimes when I am talking (I am sure my husband has something to do with this). I also notice I drool a tiny bit from the corner of my mouth after I have talked a long time. My AN side is also a bit higher and my facial therapist said mine is getting a bit tight. I apply a heating pad for 15 minutes each day, it addition to massage I apply hot wash cloths when I have a bath and of course my exercises each day.
I think it is all part and parcel of recovery.
Michelle  ;D
« Last Edit: February 16, 2009, 06:45:32 pm by mimoore »
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

1cANAdian

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Re: Strange
« Reply #6 on: February 16, 2009, 06:56:22 pm »
Hello Sara,

My facial nerve has been pretty cooperative, both pre and post op.  But one thing I that has been and still is there is a bit of lip biting (the inside of my lip was quite raw and swollen a couple of weeks post op).  I also find my jaw, without warning, snaps shut every once in a while, sometimes taking out a small bit of lip in the process.  I don't recall anyone mentioning this in a post before.  Do you have any issues with jaw snapping?  I'm also snoring more than ever since the surgery.  I know because my wife keeps kicking me at night.

Cheers!

Ken
Right side trans lab surgery on Dec 8th, 2008
4+ cm AN removed
Post Op Symptoms: SSD, tinnitus, facial numbness, minor balance issues, weakened facial nerve
Attitude: POSITIVE

saralynn143

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Re: Strange
« Reply #7 on: February 16, 2009, 08:16:14 pm »
Oh Angie, I'm so sorry to hear that. I have been praying for you since you first posted, and hoping for better news. Now I will pray for the angels to take good care of your dear baby in heaven.

Love, Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13