Author Topic: Thoughts and Prayers Please  (Read 15386 times)

JudyT

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Re: Thoughts and Prayers Please
« Reply #30 on: April 05, 2009, 10:08:23 pm »
Oh my God Soundy.......a parents worst nightmare. Be assured prayers have been sent up for this family. This is sooooo sad.....children are my passion and this is truly heartbreaking news. I can't even fathom the devastation they must be going through. Keep your AN family informed and I will continue to pray .
Judy

leapyrtwins

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Re: Thoughts and Prayers Please
« Reply #31 on: April 13, 2009, 05:57:34 am »
Soundy -

I was thinking of Gabe yesterday.

Any news?

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

EJTampa

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Re: Thoughts and Prayers Please
« Reply #32 on: April 13, 2009, 06:58:58 am »
Just wanted to add my conern here as well.  I'd like to hear if there has been more news??
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

moe

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Re: Thoughts and Prayers Please
« Reply #33 on: April 14, 2009, 12:58:18 pm »
Just read the sad news :(I can't imagine what the family is going through.
My prayers are with all of them. Let's pray for a miracle...
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

CROOKEDSMILE

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Re: Thoughts and Prayers Please
« Reply #34 on: April 14, 2009, 01:07:10 pm »
wow. My problems seem so small now. This really makes me sick to my stomach thinking about a little boy going through this and the poor family. My heart aches for them.
Angie

ppearl214

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Re: Thoughts and Prayers Please
« Reply #35 on: April 14, 2009, 02:06:29 pm »
thoughts, prayers and wishes continue......

"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

msmaggie

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Re: Thoughts and Prayers Please
« Reply #36 on: April 14, 2009, 07:06:51 pm »
So hard to hear the latest news.  My heart goes out to the family and prayers go up for strength and peace in the coming days.

Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

suboo73

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Re: Thoughts and Prayers Please
« Reply #37 on: April 15, 2009, 08:35:52 pm »
More prayers for Gabe and his family.
Please send update when you can.
Sue
suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

leapyrtwins

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Re: Thoughts and Prayers Please
« Reply #38 on: May 02, 2009, 03:37:32 pm »
Soundy -

it's been a while.  Any more news on Gabe?  I think of him and his family a lot.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Soundy

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Re: Thoughts and Prayers Please
« Reply #39 on: May 03, 2009, 11:53:59 pm »
Gabe at last report was holding his own ... he is at St Jude's ...they have him on several
treatments ...some tried some more experimental ... as his aunt told me they are hitting him from
all sides and hoping the combination they are using is the right one

his parents have relocated to Memphis and as soon as school is out the other kids who are with the aunt
will move to Memphis so the family is all together...

From what the aunt said the cancer had gotten into his nervous system and the doctors are fighting an
uphill battle ... I still have a hard time thinking of him being treated as a bad child and not really listened to ...
to have such a horrible thing going on in his little body and no one taking him seriously

keep him in your prayers still ...

3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

saralynn143

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Re: Thoughts and Prayers Please
« Reply #40 on: May 04, 2009, 05:37:28 am »
Thanks, Soundy. Praying for a miracle for Gabe. I'm sure his parents are devastated about so many things, so keeping them in prayer as well. Please keep us updated.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

leapyrtwins

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Re: Thoughts and Prayers Please
« Reply #41 on: May 04, 2009, 06:30:14 am »
Thanks for the update, Soundy.

I wish the news were better, but I'm glad to hear that Gabe is holding his own.

St Jude's is one of the best places for treatment, so if anyone can pull him through, they can.

I can't even imagine the toll his condition is taking on his family, and I will definitely keep them, as well as Gabe in my prayers.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Thoughts and Prayers Please
« Reply #42 on: May 04, 2009, 06:39:36 am »
Thanks, Soundy for the update...prayers still going up!

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Jim Scott

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Re: Thoughts and Prayers Please
« Reply #43 on: May 04, 2009, 04:03:07 pm »
Soundy ~

Thanks for the update.  You've done one of the best things you could do in this situation.   Gabe and his  parents are in the prayers of many - including mine - thanks to you.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

catlover

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Re: Thoughts and Prayers Please
« Reply #44 on: May 05, 2009, 06:06:50 pm »
Soundy,
I'm so terribly sorry to hear about what is going on with Gabe and his parents. I really wish for a miracle! If anyone can, God can. Such terrible things shouldn't be allowed to happen to children! As a parent you are always afraid of what could happen to your children. I can't think about what I would have done if it was my child.

I'm sending prayers to Gabe and his family from Sweden

Helene
AN found in February, 2006, size 0,8 cm
Surgery 20th May, 2009, retrosigmoid approach
SSD and balance issues
Forever grateful to Dr Siesjo and Dr Kahlon, University Hospital of Lund, Sweden
Two AN:s found 1st March, 2016
Waiting for GK