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Author Topic: A big article on AN in today's medical news  (Read 4616 times)

jerseygirl

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A big article on AN in today's medical news
« on: April 21, 2010, 11:30:06 am »
There is a big and pretty comprehensive article on ANs in today's medical news. Here is a link:

http://www.medicalnewstoday.com/articles/186184.php

In treatment options section it names endoscopic removal as possible choice!

            Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

lori67

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Re: A big article on AN in today's medical news
« Reply #1 on: April 21, 2010, 12:08:44 pm »
How about that?  We're finally getting some publicity!   :)

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

CHD63

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Re: A big article on AN in today's medical news
« Reply #2 on: April 21, 2010, 12:29:29 pm »
Yeah!!  ..... and ANA and the forum (virtual support group) are even mentioned specifically on the Treatment Options page.

Thanks, Eve, for finding and sending this link.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

grega

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Re: A big article on AN in today's medical news
« Reply #3 on: April 21, 2010, 12:37:53 pm »
Thanks Eve, for passing this along.

I read the main page and will read the links later.  IMO, Stephanie Brunner made this kinda confusing by writing 2 completely contradictory phrases only two short paragraphs apart:

"According to Medilexicon's medical dictionary:  Vestibular schwannoma is "a benign but life-threatening tumor..."

And then "An acoustic neuroma is not normally a life-threatening condition."

What's she thinking .... time to override Medilexicon's medical dictionary?
« Last Edit: April 21, 2010, 12:41:26 pm by grega »
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1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

nanramone

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Re: A big article on AN in today's medical news
« Reply #4 on: April 21, 2010, 02:20:29 pm »
also - why do some articles say this is one of the most common kinds of brain tumors, and others call it a rare brain tumor? Which is it? Curious....
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Sue

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Re: A big article on AN in today's medical news
« Reply #5 on: April 21, 2010, 02:55:53 pm »
Brain tumors are rare, but of brain tumors, AN's are most common.  So it's a common rare tumor! ;D

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Pooter

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Re: A big article on AN in today's medical news
« Reply #6 on: April 21, 2010, 03:20:31 pm »
So, we're all commonly rare?  Heh..

B
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Jim Scott

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Re: A big article on AN in today's medical news
« Reply #7 on: April 21, 2010, 03:45:49 pm »
Eve ~

This description of an acoustic neuroma is generally correct and similar to the many other descriptions I've read for ANs.  There are a few slight contradictions ('common/rare') but overall, I found the description accurate and thus, useful.  Thanks for the link.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lori67

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Re: A big article on AN in today's medical news
« Reply #8 on: April 21, 2010, 08:26:28 pm »
Or maybe we're rarely common?
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: A big article on AN in today's medical news
« Reply #9 on: April 22, 2010, 05:55:19 am »
Hmm.  I always thought we were unique  :P
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Lizard

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Re: A big article on AN in today's medical news
« Reply #10 on: April 22, 2010, 09:26:46 am »
Pretty good article it was nice to see some good concise information all in one place...
I am still unique no matter what that article says...1 in 100K?  Hmmmm....
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Sue

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Re: A big article on AN in today's medical news
« Reply #11 on: April 22, 2010, 12:58:08 pm »
We're something, that's for sure.

Sue in Vancouver USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

leapyrtwins

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Re: A big article on AN in today's medical news
« Reply #12 on: April 22, 2010, 03:44:01 pm »
Quote from: Sue on April 22, 2010, 12:58:08 pm
We're something, that's for sure.

LOL  :D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

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Re: A big article on AN in today's medical news
« Reply #13 on: April 23, 2010, 05:59:05 am »
Eve

Thanks for sharing this article.  It's nice to know we're getting some attention from the medical community as a resource.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!
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