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Author Topic: Bern's MRI Update  (Read 4661 times)

bern

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Bern's MRI Update
« on: January 26, 2009, 01:47:15 pm »
Thank you all for your support.  My AN has not grown. It is only 1 cm.  No swelling or necrosis.  Told me hearing will be gone for good.  BAHA again was recommended.  I was so happy the i went tanning and was over the speed limit when the po po pulled me over and hit with 109.00 speeding tickent. I smiled and said it is ok, my brain tumor is not growing.

I know yesterday I was anxious and scared.  Today I feel great and not psycho.  Thank you all for your continued support.

I don't have to go back for 6 months. 

I love that you are all here for me.
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ppearl214

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Re: Bern's MRI Update
« Reply #1 on: January 26, 2009, 01:53:30 pm »
... and this is the news we love to hear, bern! continued wellness wishes to you!!!!!!!!  Tanning... I wish... :)


BTW, moved this to "Post Treatment" as it's better suited there. Hope you don't mind.

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Kaybo

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Re: Bern's MRI Update
« Reply #2 on: January 26, 2009, 02:22:21 pm »
BERN~
That is GREAT news!!  YIPEEEEE!   ;D  So glad that all that worry was over nothing!  Now you can pursue the hearing issues!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

lori67

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Re: Bern's MRI Update
« Reply #3 on: January 26, 2009, 03:01:44 pm »
Bern,

Great news!  I'm sorry about the ticket!   :-[

But good news about your MRI seems worth the $100!

Next time you decide to celebrate - have someone else drive!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Cheryl R

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Re: Bern's MRI Update
« Reply #4 on: January 26, 2009, 03:11:53 pm »
Bern,      I am thrilled about your MRI!               I was really worried that the worry you had was making you in really bad shape!            It is nerve wracking when you don't know how it is going to all come out.            I go by that, It is all one day at a time.           
Your kids at school when try to tease and scare you, just tease them right back.     Kids know when they can scare someone.              I have a special ed daughter teacher.     
           I am very happy for you!                   Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

mindyandy

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Re: Bern's MRI Update
« Reply #5 on: January 26, 2009, 03:14:17 pm »
YEAH!!!! Thats great news!!!! I'm very happy to hear. I was thinking of how your MRI went today!!!!
I do hope you feel better  :D
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Pooter

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Re: Bern's MRI Update
« Reply #6 on: January 26, 2009, 03:30:29 pm »
Yahoo!  Congrats on the MRI news.  Bummer about the ticket, but I think I would have been smiling to the po po too with that news!  Now we can all just look back and laugh about it.  Crooked smiles and all!  At least you weren't pulled over for weaving in traffic.. ;)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

MAlegant

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Re: Bern's MRI Update
« Reply #7 on: January 26, 2009, 04:33:22 pm »
Great news, Bern.  I'm surprised that you still got a ticket--"my tumor has not grown"--is not an excuse they hear everyday.  Tonight--eat dessert first!
Best,
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Sue

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Re: Bern's MRI Update
« Reply #8 on: January 26, 2009, 04:59:47 pm »
Good for you Bern!  So happy everything is okay.  Yeah, I bet the cop had never heard that one before!   ;)

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Jackie

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Re: Bern's MRI Update
« Reply #9 on: January 26, 2009, 05:05:08 pm »
Congratulations  bern!!!! May the blessings continue!!!!
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

wendysig

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Re: Bern's MRI Update
« Reply #10 on: January 26, 2009, 06:26:53 pm »
Hi Bern,
Congratulations on getting such a great report on your MRI today!   I'm so glad you're feeling better now that this MRI is behind you.  Hopefully the next one will show necrosis.   I understand your need for speed -- sometimes a girl's gotta do what a girl's gotta do -- sorry about the ticket though.  I agree with Cheryl -- when the kids tease you at school give it right back -- they need to see they can't intimidate or walk all over you.  If you do it with a bit of humor that might be even better. 

Best wishes,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

sgerrard

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Re: Bern's MRI Update
« Reply #11 on: January 26, 2009, 08:00:33 pm »
Excellent. I would go to court on the ticket - not to get out of it, just to plead guilty and then regale the judge with the story of your AN and your GK and your MRI. I'm sure the judge would be fascinated.  ::)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Joef

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Re: Bern's MRI Update
« Reply #12 on: January 26, 2009, 09:27:43 pm »
we should have "I have a brain tumor .. thats my excuse"  t-shirt  ;)
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

leapyrtwins

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Re: Bern's MRI Update
« Reply #13 on: January 26, 2009, 10:50:34 pm »
Bern -

this is INCREDIBLE NEWS!!  ;D

I think I'm probably about as happy as you are to hear that your AN isn't growing. 

News like this makes the ticket seem trivial - and I'm with Steve, go to court and tell the judge your story.  You may just save $109.  It's definitely worth a try!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Tumbleweed

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Re: Bern's MRI Update
« Reply #14 on: January 27, 2009, 01:25:13 am »
This is terrific news, Bern. I am so relieved.  :)

Be well,
Tumbleweed
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08
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