Author Topic: Can sensation of pressure in the affected ear affect hearing?  (Read 4215 times)

wendysig

  • Hero Member
  • *****
  • Posts: 1937
I always have a feeling of pressure or "fullness" in my afectted ear, often accompanied by  numbness of the inside of my ear, my entire ear and also sometiimes my cheek and cheekbone.  I also think when these sensations are really strong, the hearing in my ear is also different.  Does anyone else have this problem?  Any idea of what causes this?
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #1 on: May 19, 2008, 06:49:56 am »
Wendy -

fullness or "pressure" in your ear is often one of the symptoms of having an AN.  I had it, as well as, diminished hearing in my AN ear prior to diagnosis.

In my case my AN was pressing on my 7th and 8th cranial nerves - maybe your AN is pressing on those same nerves (?).

I never had numbness, but I'm sure someone else has.  As we always say, everyone is different.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #2 on: May 19, 2008, 06:58:02 am »
Wendy~
I never really remember having a numb ear, but my face would sometimes have this.  I remember when my sweet hubby & I started dating, I told him that I sometimes got food on my chin & didn't know (feel) it.  I found out later that was when the tumor was pressing more on that 7th nerve.

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

wendysig

  • Hero Member
  • *****
  • Posts: 1937
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #3 on: May 19, 2008, 02:36:14 pm »
Thanks for yoru replies.  I e-mailed my doctor and am going to see him tomorrow.  He thinks there is a good chance my AN is growing is compressing my acoustic nerve and possiblly the blood vessel supplying my cochlea. He said there is probably facial nerve involvement too.  Thiis not what I was hoping to hear although  I'm not terribly surprised.   He put me on a tapering dose of prenisone in the meantime for the next two weeks in the hop that this will help return some of my hearing.  He  is also scheduling a new audiogram to see if I have additional hearing loss.  I hope it's nothing permanent as I was hoping he could save the hearing in my affected ear.    I'm having an ENG tomorrow so that might tell part of the story.  Wish me luck.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #4 on: May 19, 2008, 02:37:52 pm »
Good luck, Wendy.

I'm hoping for the best!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

  • Hero Member
  • *****
  • Posts: 1937
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #5 on: May 19, 2008, 02:41:26 pm »
Me again.  I meant to say I'm having an ENG tomorrow and CT scan on Wednesday so that might tell the story.  Sometimes my mind works faster than my hands and I don't always reach what I write.

Anyway, wish me luck.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #6 on: May 19, 2008, 02:45:26 pm »
Me again.  I meant to say I'm having an ENG tomorrow and CT scan on Wednesday so that might tell the story.  Sometimes my mind works faster than my hands and I don't always reach what I write.

I know the feeling, it happens to me all the time!  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

  • Hero Member
  • *****
  • Posts: 3113
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #7 on: May 19, 2008, 03:10:38 pm »
Wendy -

I had the numbness inside my ear and half of my face too prior to surgery.  I told the doctor that when I cleaned my ear out with a q-tip, I couldn't feel it (then quickly realized that you're not supposed to tell the doctor you actually do that because they yell at you!  I recall another thread on that issue a few months back..).

It's possible your AN just happens to be leaning right on the nerve to cause the numbness, and it certainly wouldn't have had to grow a lot to do that.  I hope you get some relief from the prednisone.  Good luck with the ENG and the CT.

And we must be opposites because my hands can definitely work faster than my brain most days!   :(

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Debbi

  • Hero Member
  • *****
  • Posts: 1921
  • Originator of the Magic Scarf
    • Debbi's AN Blog
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #8 on: May 19, 2008, 03:12:25 pm »
Wendy-

I am sending lots of good thoughts your way - hopefully the tests tomorow and Weds will give you more information.  Meanwhile, try not to stress too much. 

What time is your appt tomorrow? 

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

yardtick

  • Hero Member
  • *****
  • Posts: 1321
  • I have to keep smiling, or else I WILL cry.
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #9 on: May 19, 2008, 03:47:51 pm »
Wendy,

I wish much luck with the prednisone.  I was on it a month ago and what a ride.  Be ready for the the manic mania.  It made my NUTS!!!

All the best,
Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

wendysig

  • Hero Member
  • *****
  • Posts: 1937
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #10 on: May 19, 2008, 09:40:34 pm »
Hi and thanks to all of  you for your good wishes and information.

Thanks Lori, my doctor also told me it doesn't even have to grow enough to show up on an MRI to take out my hearing and that's why he put me back on prednisone.  I' m crossing my fingers on one hand for me, if that's okay with Debbi  She can have the luck from my other fingers and toes.

Debbi - My appointment is at 1:30, I probably won't get home until at least 5:00 or 5:30 since I'm using public transportation.  I won't drive in Manhattan.  The traffic is too crazy for me.  I also have an appointment fpr a CT scan on Wednesday.  Hopefullly, I won't have to wait too long to get the results from that too.  I'm kind of anxious to know what's going on.

Thanks to you too Ann Marie - This is my second go-around with prednisone, so I know what you mean.  It really was not fun for me, but apparrently, my kids got a kick out of the way it made me act.  Sometimes they tease me unmercifully.  Thank goodness for them.  They make me laugh when I'm getting too crazy over all of this.  Anyway, it didn't change anything the first time around.  Maybe round two will be the charm.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #11 on: May 20, 2008, 06:21:19 am »
Wendy~
Good Luck with all of your tests today and tomorrow - AND navigating Manhatttan!   ;)

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

wendysig

  • Hero Member
  • *****
  • Posts: 1937
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #12 on: May 20, 2008, 09:25:10 pm »
Hi all-

Went into Manhattan today to see what my doctor had to say about my AN.  I had a new ENG and audiogram today.  The ENG really didn't show anything new, but the audiogram was very upsettiing.  It showed a 30 decible hearing loss.  I also told the doctor I am much more off balance when I walk and he agreed that from what he remembered, I am walking much more like a drunken sailor.  He also told me he is certain my AN has grown, although he feels another MRI is not necessary because the amount of growth that's taken place would probably not be measureable on the MRI.  .  The CT scan I'm having tomorrow is not for this.  It is part of the pre-op stuff so they can see the  bony structure of my head where the surgery will take place.   He also said  unless the prednisone brings back my hearing,it is not recoverable , so I should probably have a translab instead of the middle fossa he had been planning, but that discussion is two weeks down the road when I am finished with the prednisone taper.    Well, at least there is still the chance the prednisone might dor its job.  If not, I'll join the ranks of those of you with SSD.  Not something I look forward to, but not the end of the world.  I just keep reminding myself to be thankful.  No matter how bad it seems right now, the bright side is that it's not cancer; I have a great doctor I know will do everything he can to help me and I have my family and all of  you wonderful people to complain to.  Plus, I'm sure my daughters will continue to make me laugh by constantly making fun of me (only in a good and innocent way).  Laughter is good for the  body, mind and soul.
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #13 on: May 20, 2008, 09:39:18 pm »
No matter how bad it seems right now, the bright side is that it's not cancer;

Great point, Wendy.

I've been thinking about Ted Kennedy all afternoon and evening since I heard the news about his brain tumor.

Definitely puts my AN into perspective.  His diagnosis could have been my diagnosis - or the diagnosis of any one of us for that matter.

We are all truly blessed,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

  • Hero Member
  • *****
  • Posts: 3475
Re: Can sensation of pressure in the affected ear affect hearing?
« Reply #14 on: May 20, 2008, 09:41:55 pm »
Hi Wendy,

Is the 30 db loss the total amount of loss? I have lost about 45-50 db in my left ear, I think. While treatment didn't restore any  (I had CK radiation), I did not lose more, and am now using a hearing aid. It isn't perfect by any means, but with the aid, it is a pretty good working ear now, especially for conversation.

I don't know if middle fossa surgery would have the same chance of preserving what you have left, but if you could come out of it with only a 30-50 db drop, I think it would be worth trying to preserve it. Partial hearing is still pretty valuable.

If you do end up SSD, though, you still have the option of a BAHA, which I think are cool because they are high tech and they snap onto your head.  8)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.