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Author Topic: Very brief update!  (Read 2927 times)

DLM4me

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Very brief update!
« on: April 17, 2009, 11:42:51 am »
I am CRUSHED that I wrote out a long (under my current circumstances!) post updating my situation...hit "post"...got up to pee...came back...it was gone.  (I'm a UNIX/Linux programmer of 20+ years, so I have a TAD BIT of experience and know it wasn't "user error.")  I just can't even try to replicate it right now so here's the extremely brief version: I'm home!  I hadn't expected seven days in the hospital, but it's all good.  Special thanks to the lovely Nancy for posting updates and for visiting. :)  More later, folks...
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Middle fossa craniotomy 04/08/09, Drs Brackmann, Schwartz, et al, St Vincent/HEI in Los Angeles.

EJTampa

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Re: Very brief update!
« Reply #1 on: April 17, 2009, 11:48:52 am »
Hi Jo!
 
Great to hear from you, and of course, sorry about your long post.  I seem to recall someone else recently having that difficulty.
 
Hope you are feeling well, and I know you are glad to be back home!  Will keep sending my prayers for continued recovery,
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

Kaybo

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Re: Very brief update!
« Reply #2 on: April 17, 2009, 01:04:41 pm »
How's that Hokey-Pokey coming?? ;D

Glad you are home!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Jim Scott

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Re: Very brief update!
« Reply #3 on: April 17, 2009, 02:40:13 pm »
Hi, Jo!

I'm pleased to learn that you're home and doing well - except for your computer 'losing' your long post.  I've 'lost' posts in the past and it is very frustrating!  Seems like such a waste - and it's hard to find the time and energy to rewrite an entire long message - so we don't, and in this case, you don't have to....your brief post says it all.  Welcome back!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: Very brief update!
« Reply #4 on: April 17, 2009, 05:14:36 pm »
What a relief to be home.  I remember that feeling  ;D

Congratulations!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

cjtender

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Re: Very brief update!
« Reply #5 on: April 17, 2009, 05:35:17 pm »
glad your OK
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Patty  34 , RN ,  Dx with 3x2cm (plum grape) size AN on 3/6/2009 and ALL  removed-- retosigmoid on 4/28/09 with Selesnick/Gutin at SLoan Kettering in NYC

sgerrard

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Re: Very brief update!
« Reply #6 on: April 17, 2009, 06:45:29 pm »
Must be nice to feel Alive Like You.  ;D

Welcome home, have a good recovery.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Keeping Up

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Re: Very brief update!
« Reply #7 on: April 17, 2009, 07:14:18 pm »
Welcome home Jo

Gaining huge respect for you surgery types - can't quite imagine right now (hopefully won't have to for many years!)

Take care and recover.

Ann
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dx Dec/08 - 5mm x 8mm AN
'watch and wait'

cindyj

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Re: Very brief update!
« Reply #8 on: April 17, 2009, 07:55:29 pm »
Know it's SO good to be home!  Get your rest and we'll get the "long" version from you when you're ready!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Syl

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Re: Very brief update!
« Reply #9 on: April 17, 2009, 09:04:42 pm »
Great to know you're home.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Keri

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Re: Very brief update!
« Reply #10 on: April 17, 2009, 11:26:05 pm »
oh darn ... and i bet the long version had what DLM meant (everyone's been debating this while you were in the hospital).

welcome home!

keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

leapyrtwins

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Re: Very brief update!
« Reply #11 on: April 18, 2009, 10:37:11 am »
Quote from: Keri on April 17, 2009, 11:26:05 pm
oh darn ... and i bet the long version had what DLM meant (everyone's been debating this while you were in the hospital).


Note to Keri -

it's on another thread.   Apparently Steve solved the mystery and DLM means Dead Like Me.  Some type of TV show according to Pooter.

Jan

Sorry for the hijack, Jo  :)
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

tenai98

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Re: Very brief update!
« Reply #12 on: April 18, 2009, 12:24:56 pm »
i sure know what it feels like to be home.  NOthing like it....
JO ;D
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

MAlegant

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Re: Very brief update!
« Reply #13 on: April 18, 2009, 12:27:10 pm »
So glad you're home.  Rest well and update us when you can.
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

moe

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Re: Very brief update!
« Reply #14 on: April 19, 2009, 09:26:06 am »
WELCOME HOME! There's no place like home.... there's no place like home.........there's no place like home.............. :)
Rest well, look forward to hearing more.
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty
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