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Author Topic: Surgery day is here  (Read 2371 times)

mrgarlic

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Surgery day is here
« on: November 17, 2008, 07:52:19 pm »
Greetings to all,,,,,,,,,,,,,,,,Especially      MALegant,,,,, My day is finally here. I am now in Los Angeles for surgery for my tumor. MALegant
 ( MARCY ) and me are a little different. We were diagnosed with Trigeminal Neuromas. They are similar to AN's but these are pressing on our Trigeminal nerves. Just for ha ha's go to WIKIPEDIA and look up TN's. They are the tumors from hell and are referred to has suicide tumors because of the facial pain. I will be at St Vincent Hospital and my Dr Brackmann is """"THE MAN ! !  from the House Ear Clinic. He also rermoved my Acoustic Neuroma in 2004. My surgery is for Thursday 7:30 AM. I am scheduled for 24 hrs in ICU and about 4 days as in-patient. Then I need to stay in Los Angeles area for about a week befor I return to my home in Portland Oregon. I want tgo thank all of you for your advice and care and especiallly for all the wonderful gifts you brought to my pity party :)  :)  :)
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I am not the person I used to be,
 I am becoming the pereson I am.

AN surgery 2004- Trigeminal Neuroma  surgery scheduled    Nov 2oth 2008

leapyrtwins

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Re: Surgery day is here
« Reply #1 on: November 17, 2008, 08:20:55 pm »
Good luck, Larry!

You and Marci might be "different", but you're still family to all of us  ;D

Prayers,

Jan

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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Surgery day is here
« Reply #2 on: November 17, 2008, 09:51:31 pm »
Good luck Thursday, Larry.

I never realized you lived in Portland Oregon, like me. You should come to the next ANA Portland meeting - it just happens to be on facial issues. Here is a post on it:
http://anausa.org/forum/index.php?topic=7895.0

Just think, you would get to meet Daisy Head Maisy (4cm in Pacific Northwest), and find out her real name!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jackie

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Re: Surgery day is here
« Reply #3 on: November 18, 2008, 12:27:48 am »
Hello larry,

May I also wish you the very best with a speedy recovery! I also didn't realize you were a fellow Oregonian!!! hope you will be able to make our next ANA meeting! Looking forward to your post on the other side of this journey! God Bless.....
Jackie from Beaverton
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

wendysig

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Re: Surgery day is here
« Reply #4 on: November 18, 2008, 01:12:03 pm »
Larry,
Sorry I'm late -- wishing you much luck for a great surgical outcome.  I look forward to seeing you post as soon as you are up to it.  You are in my thoughts and prayers.

Best wishes,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Debbi

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Re: Surgery day is here
« Reply #5 on: November 18, 2008, 01:16:30 pm »
Hey Larry-

Good luck this week!  Although I am not a fellow-Oregonian, my parents are, and I love to visit.  I am thinking that when I come out there next year we may have to all try to get together! Meanwhile, tell the docs at HEI to take veyr good care of you - and post when you can see straight!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

MAlegant

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Re: Surgery day is here
« Reply #6 on: November 18, 2008, 05:17:15 pm »
Good luck Larry, I'll be sending good karma your way. 
Best,
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Jim Scott

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Re: Surgery day is here
« Reply #7 on: November 18, 2008, 05:29:22 pm »
Larry:

I'll be be hoping and praying for you and a great outcome for your surgery on Thursday.

Enjoy L.A.!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

NL

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Re: Surgery day is here
« Reply #8 on: November 20, 2008, 11:11:06 pm »
Hi All,

I just got a call from Larry's wife Linda to say that he got out of surgery a few hours ago and is doing very well. The doctors were able to remove the entire trigeminal neuroma. He has a little bit of numbness in his lower jaw, but no hearing loss and no facial problems. Since Larry won't be posting for a while, she asked that I pass on the good news.

Larry - looking forward to seeing you back on the forum as a "post-postie." :)

Wishing you a speedy recovery - and lots of long naps!

Nancy L
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

sgerrard

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Re: Surgery day is here
« Reply #9 on: November 20, 2008, 11:23:30 pm »
Thanks for the inside scoop, Nancy.  ;)

It sounds like Larry did well; I'm sure he mainly went down to CA for the weather, since it is rainy, rainy, rainy here in Portland. I would take those naps in a hammock at the beach if I were him.  8)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Tisha

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Re: Surgery day is here
« Reply #10 on: November 21, 2008, 03:51:09 am »
Chiming in late, here.  I'm so glad all went well, congratulations.  Those are wonderful things to read about.  Hoping for a speedy recovery.

Tisha
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1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys

leapyrtwins

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Re: Surgery day is here
« Reply #11 on: November 24, 2008, 11:18:12 am »
Thanks for the update, Nancy.

Larry -

happy to hear you are doing well.

Hope to see you back here soon.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

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Re: Surgery day is here
« Reply #12 on: November 24, 2008, 04:10:37 pm »
Nancy,
Thanks once again for updating us on one of our latest posties!

Larry,
Happy to hear the tumor was completely removed and that you are doing well. Rest and heal.  I look forward to seeing you post.  Congratulatoins!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!
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