Author Topic: atrophy  (Read 3815 times)

timj

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atrophy
« on: August 21, 2010, 09:53:55 pm »
i searched and couldnt find much info on this.  had my AN removed over 4 years ago and my face is starting to atrophy in the forehead and cheek.  btw still receiving very small improvements every other month or so to this day.  Was thinking of getting one of those electrical stimulation units but was worried about nerve damage.  at this point though would eletrical stimulation reverse the atrophy and will it be safe to use?

leapyrtwins

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Re: atrophy
« Reply #1 on: August 22, 2010, 09:23:30 am »
timj -

this is not a situation I'm familiar with and honestly, I know absolutely nothing about electrical stimulations units.

My advice is to ask your doctor about this.  You don't want to do anything that isn't safe.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: atrophy
« Reply #2 on: August 22, 2010, 01:04:22 pm »
Tim ~

I agree with Jan ('leapyrtwins').  Although other members may be able to offer you some information about electronic facial nerve stimulation, I would be cautious and  consult with your doctor before going this route.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

jazzfunkanne

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Re: atrophy
« Reply #3 on: August 24, 2010, 12:32:45 pm »
what is atrophy ? is it muscle getting shorter?
over 4.5cm AN removed dec 06

leapyrtwins

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Re: atrophy
« Reply #4 on: August 24, 2010, 03:22:32 pm »
Muscles that atrophy are like muscles that get weak and shrink from not being used.

If someone is a paraplegic - in a wheelchair - their legs may atrophy.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Cheryl R

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Re: atrophy
« Reply #5 on: August 24, 2010, 03:36:52 pm »
But facial muscle fibers are different than a regular muscle fiber which is why one goes much longer before than a regular muscle.    Direct quote from Jackie Diels.          Talking to facial therapist might be a good idea just as much as to a dr.         I am now 4 yrs with no movement in my forehead area and no atrophy.                               Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

leapyrtwins

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Re: atrophy
« Reply #6 on: August 24, 2010, 08:14:47 pm »
Thanks for the clarification, Cheryl R.  I was just "winging it" with my explanation.

Coming from a nurse, I'm sure your answer is much more scientific.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Cheryl R

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Re: atrophy
« Reply #7 on: August 24, 2010, 10:10:48 pm »
Not really as this is talked about by Jackie Diels at every AN symposium.          I am so far past when became a nurse and you lose over time alot of what you learned unless is something you use as part of the type of nursing you are in.      It is kind of spooky though in how I remember reading a maybe 2 sentence definition of acoustic neuroma back in the neurology textbook and thinking I never want that!          Little did I know!                              Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care