« previous next »
Pages: 1 [2] 3

Author Topic: A new drug, and less pain!!  (Read 6850 times)

msmaggie

  • Hero Member
  • *****
  • Posts: 665
  • Blessings abound!
Re: A new drug, and less pain!!
« Reply #15 on: May 01, 2009, 08:59:54 am »
HI Marci,

I wanted to check in with you and see if the Lyrica is still helping you w/your facial pain.  My prayers and good wishes are with you for the relief to continue!
I've realized through this experience how debiliatating pain can be, and mine is very minor compared to other forumites. A good day is a blessing beyond compare!

Priscilla
Logged
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: A new drug, and less pain!!
« Reply #16 on: May 02, 2009, 05:36:48 am »
All,
I think I offended the gods with my post.  Pain is back.  Maybe the Lyrica takes a few weeks to really get into the system and my pain-less days were just coincidence.    ???
Marci
Logged
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Migoi

  • Full Member
  • ***
  • Posts: 116
  • Loving life as a hill dweller.
    • Migoi's Mumblings
Re: A new drug, and less pain!!
« Reply #17 on: May 02, 2009, 05:44:45 am »
It has always seemed to me over this past year that recovery is cyclic. Good days are followed by not so good days are folllowed by good days. I have been fortunate to not have pain, but my balance, hearing, and facial twitchiness seem to vary quite a bit from day to day.

On one day I'll feel like I could take up tight rope walking as a hobby... the next I'm driving along really hoping that a cop doesn't ask me to do that heel to toe walking or standing on one foot thing.

Sorry to hear your pain has returned for the moment... here's to hoping for the roller coaster up...

..take care.. tim b
Logged
Arkansas Support Group Leader
The wild places are where we began. When they are gone, so are we. - D.B.
AN's only affect the smartest, most interesting people in a population.
On a hill in Onda, AR
http://www.facebook.com/migoi

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: A new drug, and less pain!!
« Reply #18 on: May 02, 2009, 05:51:00 am »
Thanks Tim.  Roller-coaster is right!!  Appreciate the encouragement.
Marci
Logged
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Kate B

  • Hero Member
  • *****
  • Posts: 743
    • AN World
Re: A new drug, and less pain!!
« Reply #19 on: May 02, 2009, 06:10:31 am »
Marci

Tim's post is so accurate.  Just curious, did you eat or do anything differently yesterday?

I hope this adjustment period is short-lived.

Kate
Logged
Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: A new drug, and less pain!!
« Reply #20 on: May 02, 2009, 07:24:21 am »
Hi Kate,
You know, my life is a roller-coaster so no surprise that my recovery is following the same pattern. Very stressful job and all that.  (I love it and wouldn't change it for the world.)  My diet is very strange and I have lost a lot of weight because the pain always gets worse after eating.  Hence, no inclination to snack between meals, except for ice cream.  The cold makes everything feel better and the sugar doesn't hurt!  I am trying to eat in a healthy way but I know I'm falling short.  Your post made me realize that I'm not helping myself in that regard so thank you.  I think I'll start keeping a journal to see if I can detect any patterns. 
Best,
Marci
Logged
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

yardtick

  • Hero Member
  • *****
  • Posts: 1321
  • I have to keep smiling, or else I WILL cry.
Re: A new drug, and less pain!!
« Reply #21 on: May 02, 2009, 10:57:15 am »
Marci,

This entire week has been a huge roller coaster ride of pain for me.  I'm sure the weather has been a major factor.  I feel for you sweetie.  I'm patiently waiting for an appointment with a pain Dr.

Take care my friend,
Anne Marie
Logged
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: A new drug, and less pain!!
« Reply #22 on: May 02, 2009, 11:15:21 am »
Here's hoping that wonder drug kicks back in for you!
K
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: A new drug, and less pain!!
« Reply #23 on: May 02, 2009, 06:31:34 pm »
Marci -

sorry to hear about the roller coaster - you, too, Anne Marie  :(

Hope both you guys are feeling much better very soon.

Jan
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

yardtick

  • Hero Member
  • *****
  • Posts: 1321
  • I have to keep smiling, or else I WILL cry.
Re: A new drug, and less pain!!
« Reply #24 on: May 02, 2009, 06:43:54 pm »
Thanks Jan,

I still had a brain wreck today and I remembered I had a drug called Avert.  I took it and the pain behind my eye finally left me.  I've got one left so.......here's hoping I will not need it any time soon. 

How are you feeling Marci?

Anne Marie
Logged
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Kate B

  • Hero Member
  • *****
  • Posts: 743
    • AN World
Re: A new drug, and less pain!!
« Reply #25 on: May 02, 2009, 07:50:02 pm »
Quote from: MAlegant on May 02, 2009, 07:24:21 am
Your post made me realize that I'm not helping myself in that regard so thank you.  I think I'll start keeping a journal to see if I can detect any patterns. 
Best,
Marci

Marci,
I wish for you that it is that simple:-) 

Kate
Logged
Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

Kate B

  • Hero Member
  • *****
  • Posts: 743
    • AN World
Re: A new drug, and less pain!!
« Reply #26 on: May 02, 2009, 07:55:19 pm »
Quote from: yardtick on May 02, 2009, 10:57:15 am
This entire week has been a huge roller coaster ride of pain for me.  I'm sure the weather has been a major factor. ..  I'm patiently waiting for an appointment with a pain Dr.
Anne Marie

Anne Marie,

I am glad the Avert works.  Any idea about how long  it will be before you can get an appt with the pain doctor?

Kate
Logged
Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

yardtick

  • Hero Member
  • *****
  • Posts: 1321
  • I have to keep smiling, or else I WILL cry.
Re: A new drug, and less pain!!
« Reply #27 on: May 02, 2009, 08:59:44 pm »
NOPE  ???  I'm going to call the neurologist on Monday.

Anne Marie
Logged
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

sgerrard

  • Hero Member
  • *****
  • Posts: 3475
Re: A new drug, and less pain!!
« Reply #28 on: May 02, 2009, 11:16:19 pm »
Quote from: MAlegant on May 02, 2009, 07:24:21 am
The cold makes everything feel better and the sugar doesn't hurt!  I am trying to eat in a healthy way but I know I'm falling short.

Tumbleweed may come along and set you on the right path. You can look forward to far less sugar, and far more steamed leafy greens.  ;D

I don't think the roller coaster ride ever ends, but you can get to the end part, where it is longer gentler swoops. Year two should be better.

I hope the gods won't hold a grudge and the Lyrica will start working for you soon.

Steve
Logged
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: A new drug, and less pain!!
« Reply #29 on: May 03, 2009, 06:31:05 am »
Still hanging in here, though yesterday was not good.   Am determined that I will not feel sorry for myself today and will try to be productive.  (repeat 100 times)
Thanks all,
Marci

Anne Marie,
I hope you are feeling better.  You are in my thoughts.
M
Logged
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.
Pages: 1 [2] 3
« previous next »