Recent Posts91
AN Issues / Re: New member, symptoms questions.
« Last post by Drlld on May 12, 2025, 03:39:26 pm »I am 6 months post surgical removal of a facial schwannoma with transplant of a nerve from my ear. Leading g up to my surgery. I was told worst case to expect. Had my nerves going insane. I couldnt sleep for weeks leading up to it. I had a wonderful team of surgeons at the University of Penn. My surgery lasted 12 hrs. Just prepare your family for a long wait. I on the other hand had a wonderful anesthesiologist and I never remember leaving g.preop and woke up to my husband giving me a kiss. With the best days sleep I ever had.
To give some back ground my AN needed to be completely removed and was causing palsy on the right side of my face and was.miss diagnosed for 6 months. Thanks to a great nurse practitioner she got me the correct diagnosis and to the correct doctors. They told me to expect to be in the hospital 3 to 5 days and I would most.likely loose all hearing in the right ear. I was prepared for the worst. The hospital being 5 hrs drive one way from home, my husband would be staying at a local hotel. As it turned out, I lost no hearing they were able to avoid removing those bones and went under. I was discharged the following morning to recuperate at home. It's now 6 months later and they tell me it will take another 6 months before they can determine how much recovery will be co.plete. but so far things are.improving. I just wanted to reach out and try to ease the anxiety. If it wasn't for family and friends, I would t have gotten this far. I joined today to look at some other issues that may or may not be related, but my over all experience with my surgical team has been great. You have to go in with a good attitude and.possative outlook. I'm 56 and have 6 kids, so when I told them I was dying my hair blue for surgery, they thought it was cool. I have kept crazy colors since to keep my mood upbeat. I get lots of compliments to and it's a talking point for my situation but has lead to lots of outside support. Every month I change the color and do update photos to keep track. My surgeons love it. I shaved the underside of my hair to prevent them from. Making a mess of my hair style but it's been woth it. Hair goes back. You have to do what gets you in a possative outlook. One of the best thi gs that happened, I was waiting for a dr apt and someone who had surgery 15 yrs prior came up to me and Introduced herself to let me know I wasn't alone and that thi gs will get better. I'm trying g to pay it forward by speaking out and supporting those who need it. I wish you luck and the best recovery. Everyone is different but it does get better. I don't know if you are religious or not but I accepted every prayer anyone offered. I will say a prayer for you that you have a speedy recovery and the best.possible outcome. Best of luck.
To give some back ground my AN needed to be completely removed and was causing palsy on the right side of my face and was.miss diagnosed for 6 months. Thanks to a great nurse practitioner she got me the correct diagnosis and to the correct doctors. They told me to expect to be in the hospital 3 to 5 days and I would most.likely loose all hearing in the right ear. I was prepared for the worst. The hospital being 5 hrs drive one way from home, my husband would be staying at a local hotel. As it turned out, I lost no hearing they were able to avoid removing those bones and went under. I was discharged the following morning to recuperate at home. It's now 6 months later and they tell me it will take another 6 months before they can determine how much recovery will be co.plete. but so far things are.improving. I just wanted to reach out and try to ease the anxiety. If it wasn't for family and friends, I would t have gotten this far. I joined today to look at some other issues that may or may not be related, but my over all experience with my surgical team has been great. You have to go in with a good attitude and.possative outlook. I'm 56 and have 6 kids, so when I told them I was dying my hair blue for surgery, they thought it was cool. I have kept crazy colors since to keep my mood upbeat. I get lots of compliments to and it's a talking point for my situation but has lead to lots of outside support. Every month I change the color and do update photos to keep track. My surgeons love it. I shaved the underside of my hair to prevent them from. Making a mess of my hair style but it's been woth it. Hair goes back. You have to do what gets you in a possative outlook. One of the best thi gs that happened, I was waiting for a dr apt and someone who had surgery 15 yrs prior came up to me and Introduced herself to let me know I wasn't alone and that thi gs will get better. I'm trying g to pay it forward by speaking out and supporting those who need it. I wish you luck and the best recovery. Everyone is different but it does get better. I don't know if you are religious or not but I accepted every prayer anyone offered. I will say a prayer for you that you have a speedy recovery and the best.possible outcome. Best of luck.
