« previous next »
Pages: [1]

Author Topic: Tumor free!  (Read 3817 times)

Sue Vogel

  • Jr. Member
  • **
  • Posts: 75
  • https://get.google.com/albumarchive/11576991862935
Tumor free!
« on: November 04, 2009, 07:32:38 pm »
My one-year MRI came back tumor free today! I feel so much better.  Every time I get the tingling lower lip, the facial headaches, or the "corkscrew tightening" on the side of the head I get nervous.  My surgeon says the tumor is gone!  He thinks I should seriously consider a BAHA for my SSD.  I have noticed lately that those darn 9th graders (no matter how much they love me) DO KNOW that I can't always hear what is being said around the room.  I think perhaps they are taking advantage of the situation.  So...what do you think?  Should I give the BAHA a try?  I would love to hear some comments on the subject.

SUE
Logged
3 cm left side
Translab. surgery 10/13/08
Dr. Gantz/Dr. Woodson
Univ. of Iowa Hospitals and Clinics
SSD, adjusting to balance issues
BAHA surgery 1/29/10 Dr. Gantz/Dr. Woodson (dynamic duo)

moe

  • Hero Member
  • *****
  • Posts: 1697
Re: Tumor free!
« Reply #1 on: November 04, 2009, 07:36:56 pm »
Definitely go with the BAHA, especially with all those kids. Good results, and people love em!
Maureen
Logged
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

another NY postie

  • Full Member
  • ***
  • Posts: 232
Re: Tumor free!
« Reply #2 on: November 05, 2009, 07:27:18 am »
Sue,
That is such GREAT news!  I can't speak for the Baha yet, but I can speak for those trickster 9th graders!  My biggest fear is going back to the classroom....what will I hear and more importantly what WON't I hear! ;)  they're good kids, but I am not sure how they can NOT play with me a bit with the hearing - it is almost beyond their control at that age.  I have always had a high tolerance for noisy classrooms but not anymore.  My PT just told me that I need to hang out in the mall on the weekends to help prepare me for the school's hallways! lol  My daughters LOVE this idea! ::)  You can "test" the BAHA, right? 

So keep me posted on what you decide and how it works in the classroom as I am following in all fellow AN teachers' footsteps! :)

Good luck - HOpe you have that BAHA moment they write about!

Cheryl
Logged
5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'

Tamster

  • Jr. Member
  • **
  • Posts: 70
Re: Tumor free!
« Reply #3 on: November 05, 2009, 07:40:04 am »
HI Sue,
   Congratulations on your MRI result! How wonderful to be tumor free!
Logged
6mm AN left side, diagnosed Sept 22, 2009
Middle Fossa  December 8th 2009,  Drs. Brackmann and Schwartz.
Facial nerve preserved, tumor out, SSD. tinnitus.

Life isn't t about waiting for the storm to pass. It's about learning how to dance in the rain.

http://www.caringbridge.org/visit/Tamst

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: Tumor free!
« Reply #4 on: November 05, 2009, 02:52:05 pm »
Hi, Sue ~

Kudos on the clear MRI and yes, if your lack of hearing is becoming a problem in the classroom, I would advise that you consider a BAHA to help alleviate the problem.

Jim
Logged
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Doc

  • Sr. Member
  • ****
  • Posts: 376
  • “Shake off the BooHoo and get with the program”
Re: Tumor free!
« Reply #5 on: November 05, 2009, 02:59:59 pm »
Congratulations Sue!  My first MRI since surgery (7.30.09) was just done this past Monday...won't know the results until a 30 November appointment with the Neurosurgeon.

I'm very happy for you...that's great news!

Take Care and be well!
  ;)
Doc
Logged
Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Tumor free!
« Reply #6 on: November 05, 2009, 05:16:45 pm »
Sue -

go for the BAHA.  You'll be happy you did  ;D

BAHAs are amazing!!!

Jan
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

mimoore

  • Hero Member
  • *****
  • Posts: 736
  • Believe!
Re: Tumor free!
« Reply #7 on: November 05, 2009, 07:38:42 pm »
Yahoooo Sue tumour free I am jealous!
I also teach but I teach kindergarten. At times I don't always hear what someone says but another is always willing to repeat it for me especially if it is something they should not have said.
They have also learned to tap me or tug on my shirt. Oh and really kindies are extremely loud anyway.
I can imagine those niners thinking cool we don't have to pass notes when Mrs. _ is here.  ::)
Let us know how it goes if you do decide to go with the BAHA.
Michelle ;D
Logged
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

wendysig

  • Hero Member
  • *****
  • Posts: 1937
Re: Tumor free!
« Reply #8 on: November 06, 2009, 07:02:52 am »
HI Sue,

Congratulations on a clean MRI!  Definitely check into BAHA.  I had my surgery in January and got my processor in April.  It's made a huge difference in my life.  I love my Divino but even though there appear to be a few glitches, it seems the BP100 might be even better.

Best wishes,
Wendy
Logged
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Vivian B.

  • Hero Member
  • *****
  • Posts: 583
Re: Tumor free!
« Reply #9 on: November 06, 2009, 07:52:57 am »
Hi Sue,

Congratulation on a clean MRI. That is great news. I would defintely conside the Baha. Good luck.

Vivian
Logged
CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

Debbi

  • Hero Member
  • *****
  • Posts: 1921
  • Originator of the Magic Scarf
    • Debbi's AN Blog
Re: Tumor free!
« Reply #10 on: November 06, 2009, 11:24:52 am »
Congratulations, Sue - and I wish you MANY more clean MRI's!!

Debbi
Logged
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Jackie

  • Sr. Member
  • ****
  • Posts: 385
Re: Tumor free!
« Reply #11 on: November 06, 2009, 11:32:06 am »
Yea Sue,

Way to go!! We love clean MRI's!! Congratulations, and may that alway be the case for you!!!
Continued Blessings,
Jackie
Logged
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

Sobes

  • Jr. Member
  • **
  • Posts: 76
Re: Tumor free!
« Reply #12 on: November 06, 2009, 11:56:47 am »
Sue,

This is WONDERFUL news!!! Sending positive, happy vibes to you from Wisconsin:)

Bren~
Logged
Small AN, left side, Oct. 22 2009
Surgery Dec. 22 @ UW Madison (wonderful doctors)
SSD (left side)

msmaggie

  • Hero Member
  • *****
  • Posts: 665
  • Blessings abound!
Re: Tumor free!
« Reply #13 on: November 06, 2009, 05:49:25 pm »
I'm hoping to repeat the same news in another month.  Congrats!  Glad to "hear" you are in the clear!

Priscilla
Logged
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

mimoore

  • Hero Member
  • *****
  • Posts: 736
  • Believe!
Re: Tumor free!
« Reply #14 on: November 07, 2009, 04:23:23 pm »
Donnalynn interesting you have the Cros maybe this is something I should look into. I am afraid of more surgery and the transear is not available here only the Cros. Keep us posted I am very interested.
Michelle  ;D
Logged
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.
Pages: [1]
« previous next »