Author Topic: How fast can they grow?  (Read 4751 times)

Notanotherthing

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How fast can they grow?
« on: January 11, 2016, 07:32:16 pm »
If a VS decides to go in hyperdrive, exactly how quickly can it grow? In two months time I have gone from only sway/stumble balance problems & tinnitus to louder tinnitus,increase in ear pressure & now an earache all day & night.

My understanding is it may also just be irritation of the facial nerve causing the symptoms not necessarily compression? 

arizonajack

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Re: How fast can they grow?
« Reply #1 on: January 12, 2016, 09:44:58 am »
My own grew 20% in 6 months and that's when I decided to zap it.

Even if an AN doesn't grow it's still destroying the acoustic nerve (hearing) and/or the vestibular nerve (balance).

The symptoms you describe have nothing to do with the facial nerve although, at some point, a large AN could put pressure on the facial nerve and cause additional problems.

Give us your chronology and AN dimensions. That will help future discussion.
3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

jsanders1379

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Re: How fast can they grow?
« Reply #2 on: January 12, 2016, 02:58:09 pm »
Mine grew 50% in 6 mo.-that's when I stopped W&W
Jeanne
Dx 10-25-2012
5x6x4 mm
3-27-2013 MRI 9x6x6 mm
GK  5-7-13 Swedish Hospital, Denver

Echo

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Re: How fast can they grow?
« Reply #3 on: January 12, 2016, 05:31:20 pm »
Mine grew from 1.8cm to 2.4cm within a year.  I didn't wait for further growth and proceeded with Gamma Knife.

What is important to remember is that your symptoms can change but the size of your AN may not - or your AN can change but your symptoms do not.   That's why it's important to monitor your AN with regular MRI's.  If it's been over 6 months since your last MRI and you are noticing substantial changes to your symptoms, you may want to consider having another MRI to check things out.

Cathie
Diagnosed: June 2012, right side AN 1.8cm
June 2013: AN has grown to 2.4 cm.
Gamma Knife: Sept. 11, 2013 Toronto Western Hospital

v357139

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Re: How fast can they grow?
« Reply #4 on: January 14, 2016, 07:03:25 pm »
Mine grew from 2.7cm to 3.5cm in nine months.  But that is highly unusual.  Usually they grow much slower.  I agree with the previous person, your new symptoms might not mean its growing.  And others might not have symptoms increase, and theirs is growing.  Only way to tell is another MRI.  If you are in wait and watch, might be good to check that part of the forum.
Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!