Author Topic: picture  (Read 3147 times)

Patch

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picture
« on: October 10, 2008, 07:07:16 pm »
Does anyone know how to put a picture with your profile so people can actually see who they are talking to.  Thanks
Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.

sgerrard

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Re: picture
« Reply #1 on: October 10, 2008, 08:11:47 pm »
You have your profile picture (avatar) set to a link like this:
Code: [Select]
http://WWW.MYSPACE/COM/IMPATCH
I think the link you need is the actual picture there:
Code: [Select]
http://a92.ac-images.myspacecdn.com/images01/61/m_18795ae3dbc9510949f74dd46fa9c073.jpg
I'm not sure if myspace pics work, though. Let me try it as an image:



Okay, that seems to work. Try putting that in your profile. I hope that is you. :)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Patch

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Re: picture
« Reply #2 on: October 10, 2008, 09:36:16 pm »
Thanks, it worked
Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.

MAlegant

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Re: picture
« Reply #3 on: October 11, 2008, 06:24:04 am »
Great picture, but which one are you? Patch is a hard name to decipher??? :D
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Patch

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Re: picture
« Reply #4 on: October 11, 2008, 06:33:13 am »
I'm the guy. Yes, Patch is confusing. Its a name my wife gave me because my AN side eye brow, part of it turned white. strange, It wasn't like that until after I got my radiation treatment???????????
Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.

MAlegant

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Re: picture
« Reply #5 on: October 11, 2008, 06:57:41 am »
Thanks for clearing that up.  The picture is beautiful and you and your wife are as well.  Also, thanks for explaining the nickname--it's strange what surgery and/or radiation will leave in its wake.  I know we all have stories about that.
All best,
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Patch

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Re: picture
« Reply #6 on: October 11, 2008, 08:51:22 am »
Marci, I see you are from my neck of the woods. I'm from Elyria but moved down to the columbus area in 2006 after I got married. How are things up there. Thee is so much difference in the area compared to the Cleveland area. I heard University Hospital is a good one, did you consider Cleveland Clinic?
Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.

ppearl214

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Re: picture
« Reply #7 on: October 11, 2008, 08:58:22 am »
Marci, I see you are from my neck of the woods. I'm from Elyria but moved down to the columbus area in 2006 after I got married. How are things up there. Thee is so much difference in the area compared to the Cleveland area. I heard University Hospital is a good one, did you consider Cleveland Clinic?

Hi Patch... good to have you here... in looking at your past posts, you mention you had radiation but not which kind of radiation.... can you please share? Was it Gammaknife, Cyberknife, FSR, Trilogy, etc?

thanks!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

MAlegant

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Re: picture
« Reply #8 on: October 11, 2008, 09:11:54 am »
Hi Patch,
I pm'd you...I'm right down the street in Oberlin!  I go to Elyria often, for various things.  Wishing you continued good health.
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Patch

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Re: picture
« Reply #9 on: October 11, 2008, 10:23:25 am »
I had the Linner accelarator, it was done at Riverside Hospital in Columbus, OH. I went in 3 times a week for 2 weeks. (Mon, Wed and Fri ) That was done in July 2007. I was told I had a AN in March 07. My year follow up MRI was July 08, All was well, No growth but DR said alittle smaller. I have anothr MRI in July 09, I hopw all is stable.

Mark
Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.

Jim Scott

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Re: picture
« Reply #10 on: October 11, 2008, 04:13:18 pm »
Hi, Patch:

Just wanted to welcome you and thank you for the charming photo of you and your lovely wife.  :)

I'm glad to learn from your posts that you're doing well following radiation and are seeing some tumor shrinkage on your MRI scans.  Me too (see my signature).  Please tell us more about your AN experience.  We like to hear from folks who've been through surgery or radiation (or both) and done well.  It's encouraging for the newly diagnosed who visit these forums - and instructive for others.  Again, please accept our collective appreciation for your post and the photo.   Now, don't be a stranger!  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: picture
« Reply #11 on: October 11, 2008, 09:12:44 pm »
Hi, Patch.

Beautiful picture of you and your wife  :)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Patch

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Re: picture
« Reply #12 on: October 13, 2008, 10:02:39 pm »
Thank you everyone for the complements.  ;)
Radiation 7/07 for 17mm AN, Had my 2 year MRI 07/09, An now 13mm.