Author Topic: One Year  (Read 1804 times)

Nickittynic

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One Year
« on: October 03, 2010, 10:43:38 pm »
Though my one year anniversary was on Sept 22nd, I forgot to post here then!

If anyone's interested, there's a one year update on my blog, and I just posted a picture of my "tumor tattoo" that I got last night.  ;D
25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

Tod

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Re: One Year
« Reply #1 on: October 04, 2010, 06:56:43 am »
Nice ink. It sounds like you are doing really well. Such reports are always good to read for those of su that come behind.

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Jim Scott

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Re: One Year
« Reply #2 on: October 04, 2010, 03:13:44 pm »
Hi, Nikki ~

Congratulations on your One-Year anniversary!  I'm glad to learn that your recovery continues, even now.  Your labyrinth tattoo is creative and expressive.  Good choice. 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

opp2

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Re: One Year
« Reply #3 on: October 05, 2010, 06:46:05 am »
Congratulations Nikki. I just read your blog yesterday. Beautiful girl, beautiful babies. Enjoy!

I'm off to see the tattoo. 
Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

Lizard

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Re: One Year
« Reply #4 on: October 05, 2010, 11:06:56 am »
Congrats to you on one year!!!!! 
Still trying to figure out what to do for a tattoo myself.  Hoping you will inspire me.
Liz
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
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