Author Topic: OK does this make sense to much hearing?  (Read 7330 times)

mikjul1

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OK does this make sense to much hearing?
« on: September 02, 2009, 05:11:44 pm »
OK has anyone hear ever feel like they have to much hearing I guess since I have been hearing for 35 yrs with only one ear that I have to get use to 2 go figure it is like overload makes me tired.Anyone else with this crazy feeling.

                                                                                      Mike
:) BORN IN THE GOOD OLD USA :)
SSD on right side since 1974
BAHA surgery on 4/21/09 Dr. Carla Lawson
BP100 turn on date 8/13/09

Sefra22

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Re: OK does this make sense to much hearing?
« Reply #1 on: September 02, 2009, 05:59:05 pm »
I think I know what you mean, Mike. I have noticed over the last week that paper is really loud ;D I mean of course when I or someone else crinkles it. I am also amazed how loud the bathroom fan is at work,or when I set something down sometimes I think, "What's that noise, oh.... it's me".  Is that what you're talking about?

Lisa

P.S. Thanks for letting me know how to turn off the BP100, I thought I had to see the light to know if it was on or not :P
Lisa from Portland, Maine age 46
Diagnosed June 2006
15mm X 17mm AN right side 80% hearing loss
GK March 14,2007 Dr. Noren, Providence RI
1 Year follow-up MRI shows "slight shrinkage".
2 Year follow-up MRI shows "No Change".
3 Year follow-up MRI "stable".
BAHA surgery 4-22-09 BP100 Sept. 2009

mikjul1

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Re: OK does this make sense to much hearing?
« Reply #2 on: September 02, 2009, 08:27:21 pm »
Yes Lisa that is what I mean I am so use to listening on my left now when I hear on my right it gets confusing is that crazy or what lol. Like when I am listening to the TV and my wife is on my right "deaf side" it is hard to listen to the TV because now I can hear her so I have it coming in from both sides "WOW"  over load my brain is say man I never had this  before ;D . No problem on the turning off question.

                                         Mike
:) BORN IN THE GOOD OLD USA :)
SSD on right side since 1974
BAHA surgery on 4/21/09 Dr. Carla Lawson
BP100 turn on date 8/13/09

leapyrtwins

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Re: OK does this make sense to much hearing?
« Reply #3 on: September 03, 2009, 06:45:38 am »
I think you'll both get used to this in time.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Sefra22

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Re: OK does this make sense to much hearing?
« Reply #4 on: September 03, 2009, 11:41:29 am »
Yeah Jan,I'm sure we'll get used to it, I'm sure it's WAY more of a dramatic change for Mike since it's only been 3 years of SSD for me,35 for him.

Mike, your comment about the TV makes me laugh. I guess we need a "mute" button for our spouses when we're trying to hear something on the TV.  ;D I'm sure my husband would NEVER say that about ME, haha!  Yes, gone are the days when we had an excuse for not hearing them :P

Lisa
Lisa from Portland, Maine age 46
Diagnosed June 2006
15mm X 17mm AN right side 80% hearing loss
GK March 14,2007 Dr. Noren, Providence RI
1 Year follow-up MRI shows "slight shrinkage".
2 Year follow-up MRI shows "No Change".
3 Year follow-up MRI "stable".
BAHA surgery 4-22-09 BP100 Sept. 2009

nancyann

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Re: OK does this make sense to much hearing?
« Reply #5 on: September 03, 2009, 12:01:15 pm »
Mike:  My 'good' ear does seem hypersensitive - I think it's compensating for SSD on the right.
Always good thoughts,  Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
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Jim Scott

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Re: OK does this make sense to much hearing?
« Reply #6 on: September 03, 2009, 01:05:50 pm »
I don't have a BAHA (by choice).  Prior to the AN destroying the hearing nerve in one ear, I had excellent hearing.  I haven't been tested but assume I still have excellent hearing in my functional ear.  I doubt it has improved since I've been rendered SSD by the AN.  I suspect that, as SSD folks like me depend on one ear more than ever before, the perception is that we hear 'better' in that ear.  If that is so, its no surprise that an SSD person utilizing a BAHA would perceive their hearing to be super-sensitive.  Like the posters before me, I believe that hyper-sensitivity will abate in time as the BAHA wearer becomes acclimated to their enhanced hearing.  Of course, I could be wrong (but I doubt it).   :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

CHD63

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Re: OK does this make sense to much hearing?
« Reply #7 on: September 03, 2009, 01:07:36 pm »
What you are describing sounds like a type or level of hyperacusis ...... see http://www.hyperacusis.net/  DHM on this forum talks about having an extreme level of sensitivity to sounds.  I have it and it seems to be worse with certain higher frequencies, like paper crinkling, plates clanking together, etc.  I'm not sure if there is a connection or not but as my tinnitus has gotten worse, so has the hyperacusis.  At the symposium, one of the roundtable discussions was on advances in treatment for tinnitus.  I need to check into the possibilities because this is really wearing me out!

I do not know if BAHA wearers experience as much or more hyperacusis than SSD people.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

TJ

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Re: OK does this make sense to much hearing?
« Reply #8 on: September 03, 2009, 07:22:46 pm »
I was told that this is also a form of tinnitus! 

TJ

leapyrtwins

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Re: OK does this make sense to much hearing?
« Reply #9 on: September 03, 2009, 09:18:06 pm »
I was told that this is also a form of tinnitus! 

TJ

I'm not sure I follow this.  What is a form of tinnitus?  Hyperacusis?

I am a BAHA wearer and don't suffer from either tinnitus or hyperacusis.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

JerseyGirl2

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Re: OK does this make sense to much hearing?
« Reply #10 on: September 03, 2009, 09:24:52 pm »
I do not know if BAHA wearers experience as much or more hyperacusis than SSD people.


I don't think there's any connection between wearing a BAHA and either tinnitus or hyperacusis. I wear a BAHA and have mild tinnitus ... but I have it whether or not I'm wearing my BAHA. And BAHA wearers are SSD.

Catherine (JerseyGirl 2)
Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

leapyrtwins

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Re: OK does this make sense to much hearing?
« Reply #11 on: September 03, 2009, 09:28:31 pm »
Totally agree.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

4cm in Pacific Northwest

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Re: OK does this make sense to much hearing?
« Reply #12 on: September 04, 2009, 08:22:08 am »
Well I am finding this post VERY interesting


One question I asked at the symposium was, “IF I get a baha would my hyperacusis become worse?”

No one had an answer… but perhaps Mike’s experience is providing one for me…

SO what is the difference between hyperacusis and tinnitus? Hmmmm…

Tinnitus is constant for me. No matter how quiet it is I can hear that solid constant high frequency ring.

Hyperacusis is an over sensitivity to sound. For me certain sounds, in my case base sounds or low rumbles like air systems in buildings, make the sound perception in the dead ear increase. Sometimes I use the parallel that it is like talking with a Microphone and you accidentally get in front of the speaker and get feedback. Tinnitus is constant (no matter what the sound around is) but hyperacusis is reactionary to noise.

The crumpling of a bag is a total killer… it makes a weird resonating sound in my deaf (100% dead) ear that hurts.  :o :'( My husband's voice is a bass and his voice it painful for me to listen too- if I do not wear a filter in the good ear.

I am heading to an ENT today… I’ll let you know his opinions. :-\  I am also getting an audiogram of the good ear to see what has changed since pre-surgery.

In this thread I am thinking that not enough is understood about hyperacusis. Even by specialists. :-\ One audiologist told me (at the symposium) that it is somehow related to the cerebral cortex perception of sound.

I woke up with the hyperacusis with  in the good ear, after my surgery. I am wondering if the e-stim to the facial nerve, that was performed during surgery- because the alarm bell went off when my surgeon nicked the facial nerve, may have sent some sort of shock to the good side’s nerves (#6 & #8)… perhaps involving the nerve that goes to the stapedius muscle on the good side. Only a “theory”  :-\ of mine … I wish I had more than a theory to share but that is what I have at this point... like you I am searching for answers too...


DHM

« Last Edit: September 04, 2009, 08:30:19 am by 4cm in Pacific Northwest »
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

sgerrard

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Re: OK does this make sense to much hearing?
« Reply #13 on: September 04, 2009, 09:12:47 am »
I also appreciate the discussion about hyperacusis, though I don't think that is what Mike is experiencing. I think he is just discovering all the sounds he has been missing.

When I first got my hearing aid, I couldn't believe all the high pitched sounds that I had been missing for years. Paper bags, door locks, neighbors fans, birds down the block, all sorts of things were popping up as new to me.

My favorite was a little tip-tap sound that came and went as I walked around the house. After much puzzling over it, I first figured out that it happened when I walked, and stopped when I stopped. I finally discovered that I was hearing the plastic tip of a loosely tied shoe lace tapping on the floor when I walked.

Now they all seem like normal sounds and I don't notice them unless I focus on them. Instead it seems unnaturally quiet when I don't have the hearing aid on. It took a while to get used to it, though.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

moe

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Re: OK does this make sense to much hearing?
« Reply #14 on: September 04, 2009, 09:16:12 am »
DHM
Thanks for clarifying the hyperacusis/tinnitus issue. That is truly a bummer for you.

I had the BAHA put in during the original surgery, since they knew I would lose my hearing.

The constant shrill tinnitus interfered with the BAHA sounds and I had it unscrewed from my head.
Really- the doc just went to get his screwdriver , sterile of course, to remove the abutment.

( I still have the implant in the skull and can try again later, but it was too much chaos at the time, and it kept getting irritated/infected)
So that's my story, but every one is different.....Have you tried the demo BAHA yet?
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
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