Author Topic: Havent felt good ever since....  (Read 2554 times)

linny

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Havent felt good ever since....
« on: March 12, 2009, 06:29:27 pm »
I had a 3cm An taken out back at the end of 2006 , I have not felt good, extremely tired, ever since. Does anyone else still feel bad after this long after surgery??? ???    Hope everyone is having better times than I  have.     thank you ,linny
Linda-2yr post AN 3-cm left side.  OHSU hospital , slow recovery for me. But then I had to have 2 surgeries with complications swelling of brain,

Sonja

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Re: Havent felt good ever since....
« Reply #1 on: March 13, 2009, 12:34:21 am »
Linny:

I am very sorry you are not feeling well and do hope you feel better soon.  I am only 3 weeks post-op so I am not able to talk from experience. I am sure some of the others will chime in.  I was told by an AN patient that her doctor told her that it could take a year or longer for her to recover. If you had two surgeries I would think it would take you longer. One thing I do know is AN recovery is unique to eash individual.   You did have two surgeries with complications so it could take you some time to fully recover.

Give yourself the time it needs to recover and don't push yourself too hard and don't be hard on yourself. Your body has been through a great deal of trauma.

Wishing you well wishes,
 Sonja
Symptoms 2005
AN diagnosed January 2007
Watch & Wait until now
Surgery (Translab) scheduled February 18, 2009 HEI (Dr. House, Dr. Schwartz, Dr. Stefan)
No servicable hearing in affected ear

jazzfunkanne

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Re: Havent felt good ever since....
« Reply #2 on: March 13, 2009, 03:38:11 am »
hi linda, we had our ops at the same time, my AN was over 4.5 so large like yours, do you work? i find i cant do everything now, so i have gave up work and mayb once my boys are older i might look for part-time work, i now try and pace my self if i do too much it catches up with me. take carex
over 4.5cm AN removed dec 06

Cheryl R

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Re: Havent felt good ever since....
« Reply #3 on: March 13, 2009, 07:15:59 am »
Have you also had a regular physical with blood work to check fotr thyroid,anemia, normal potassium and any other possible problems.       That can be a factor occ also so is good to have it checked out.                         Do you make sure and drink enough fluids as dehydration can cause fatigue?      On any meds which can cause it?                  No fun to be so tired and hope you will feel better in time.                           Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Dantheman

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Re: Havent felt good ever since....
« Reply #4 on: March 14, 2009, 09:40:22 am »
I have to pace myself as well. I still deal with fatigue on a regular basis. My surgery was 2 yrs ago.

Dan
Diagnosed 12/08/2006. 1.7 cm Right Side AN.
Trans-lab performed on 02/13/2007 by Dr. Lawrence Meiteles and Dr. Raj Murali at Westchester Medical Center, Valhalla, N.Y.
TransEar worn since 4/17/07.

linny

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Re: Havent felt good ever since....
« Reply #5 on: March 14, 2009, 04:49:54 pm »
thanks everyone, I just HAVE HAD ONE THING OR ANOTHER SINCE MY SURGERIES. I want to be normal again, guess that's not going to be! today I have a terrible headache.  I wish none of us had to go though this. >:(  peace and love to all of you
Linda-2yr post AN 3-cm left side.  OHSU hospital , slow recovery for me. But then I had to have 2 surgeries with complications swelling of brain,

moe

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Re: Havent felt good ever since....
« Reply #6 on: March 14, 2009, 10:17:26 pm »
So sorry to hear of your ailments. I had my surgery June 06 and YES, I sometimes just feel like doodoo. Have to pace myself. I work part time, my kids are older which is good. I require 8 hours of sleep (which I usually only get 7 ), a nap during the day. My ailments include the deafness and loud tinnitus in the deaf ear. Equilibrium off when I overdo it. I do get  MAD. I want to do so much more, but will have to just pace and accept my limitations.
Hang in there- I know how you feel. And for me I figure I'll always have to deal with these sucky side affects.
Feels good to complain.
THANKS! :-\
Smilin on the right,
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Jim Scott

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Re: Havent felt good ever since....
« Reply #7 on: March 15, 2009, 03:37:18 pm »
Linda ~

It always saddens me to learn that a long-term post-op AN patient is still having difficulties.  Fatigue is pretty common.  I know I don't have the same energy level I used to have, but I attribute some of that to my age (66).  Sometimes, normalcy is simply adjusting to what is but I know we all want to feel better when it hurts.  I'll pray for better days for you, Linny.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Sue

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Re: Havent felt good ever since....
« Reply #8 on: March 15, 2009, 09:31:37 pm »
Yeah, Linney, make sure it's not something else.  Don't jump to conclusions that it is the AN causing you so much distress.  It may be, but then, maybe it's something else.  Not sure if that's comforting or not, though.  See a headache specialists too.  They might be able to help you.

Hang in there,

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode