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Author Topic: Immunotherapy treatment  (Read 2801 times)

Willbur

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Immunotherapy treatment
« on: October 30, 2016, 08:05:59 pm »
Hello All,

Just letting you know that I will be doing a trial for immunotherapy. I was informed by a scientist from Mexico that I got the right profile. She has performed numerous studies in people's and rats that have shown to shrink tumors. Of course immunotherapy requires that I follow a strict diet and exercise, I'm extremely excited to start. She is hoping that I will see results before my next MRI and that I possibly could still save my hearing. I will let you all know if there are any successes with it. I am willing to do almost anything at this point for not only myself but in the name of science.
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Diagnosed@29
10/13/16 - 21x23x19
1/16/17 - 22x23x19
1/24 - Surgery Successful
3/6 - MRI/CT Scan No Regrowth

PaulW

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Re: Immunotherapy treatment
« Reply #1 on: November 03, 2016, 04:57:24 am »
Hi Wilbur,
Thanks for letting us know, it would appear there are a few drugs getting to the trial phase.
Can I ask the name of the drug?
Good luck with the trial.
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10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

ANSydney

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Re: Immunotherapy treatment
« Reply #2 on: November 03, 2016, 03:58:10 pm »
Hi Wilbur, good to hear that pharmacological solutions to our dilemma are being actively sought and progressed. I'd also be interested in knowing the drug that you are trialing.

(We've got similar diagnosis dates and size so I'd be very interested to follow your journey. I'm off to research kombucha tea now.)
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Willbur

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Re: Immunotherapy treatment
« Reply #3 on: November 05, 2016, 07:01:36 am »
It turns out these are supplements available here in the US. I have the website and dosage if anyone is interested. Also, this information came from my wife's aunt who is world renowned. I'm on day 2 and take about 25 pills a day then taper down until my next MRI. It is expensive, but if this works I will be going to tell the world about it. She is so confident that it will shrink because of success with others. For instance there was someone she knew who had a huge tumor in his back and doctors said he would be paralyzed after surgery. He did immunotherapy same one I'm doing now and the tumor shrinked drastically and he was able to have it removed without becoming paralyzed.

There are many other stories she's told me about that makes me feel confident that I too can shrink mine as well. If it does shrink the next question is whether or not I should get surgery at that point.
« Last Edit: November 05, 2016, 07:06:06 am by Willbur »
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Diagnosed@29
10/13/16 - 21x23x19
1/16/17 - 22x23x19
1/24 - Surgery Successful
3/6 - MRI/CT Scan No Regrowth

Willbur

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Re: Immunotherapy treatment
« Reply #4 on: November 05, 2016, 07:02:17 am »
Quote from: ANSydney on November 03, 2016, 03:58:10 pm
Hi Wilbur, good to hear that pharmacological solutions to our dilemma are being actively sought and progressed. I'd also be interested in knowing the drug that you are trialing.

(We've got similar diagnosis dates and size so I'd be very interested to follow your journey. I'm off to research kombucha tea now.)

I drink kombucha everyday. I have been for years.
Logged
Diagnosed@29
10/13/16 - 21x23x19
1/16/17 - 22x23x19
1/24 - Surgery Successful
3/6 - MRI/CT Scan No Regrowth

PaulW

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Re: Immunotherapy treatment
« Reply #5 on: November 05, 2016, 07:54:11 pm »
Hi Wilbur,
If you have the website and dosages I am very interested
Logged
10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!
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