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Author Topic: Could you say a little prayer for me......  (Read 9040 times)

yardtick

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Re: Could you say a little prayer for me......
« Reply #15 on: February 16, 2009, 09:28:21 pm »
Know the pain sweetheart.  Been there along time ago.  I miscarried my first.

Sending you many hugs and kisses  :-* :-* :-* :-* :-*

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

msmaggie

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Re: Could you say a little prayer for me......
« Reply #16 on: February 16, 2009, 09:50:04 pm »
Lifting you up in prayer!  I too have been down this road and I know how heavy your heart is right now.  God's peace be with you, sweetie.

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

MAlegant

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Re: Could you say a little prayer for me......
« Reply #17 on: February 16, 2009, 11:02:06 pm »
Angie,
There really aren't any words that will help.  Only time as many of us here know.  And thanks Brian for the "husband" perspective.  I know this is very difficult on the guys as well. My husband went through the wringer right along with me.  So Angie, sorry for you and your husband.
Best,
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

GRACE1

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Re: Could you say a little prayer for me......
« Reply #18 on: February 17, 2009, 08:38:49 am »
Everyone who reads this is saying a big prayer for you and your family, Angie. 

Grace
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Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

CROOKEDSMILE

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Re: Could you say a little prayer for me......
« Reply #19 on: February 17, 2009, 07:24:36 pm »
Hey. It's me. Not good. Very hard going in for the ultrasound to see "nothing" when the last time we looked we saw the little one and a heartbeat. Oh well. I am 38 years old and don't know that I'll try again. Feel like maybe this is God's way of telling me that I am too old. Pretty heartbroken. Now back to the daily grind......go for surgery consult on my eye in March for canthoplasty and back to Nashville for facial therapy. The pregnancy was giving me something MUCH more exciting to think about. Will be hard when our infant car seat arrives at the front door along with other things that we have ordered. Guess we moved too soon! Now if anyone has any suggestions on how to tell a 7 year old and 4 year old let me know. We let it slip and plus I was already showing. UGH. I'm mentally and physically exhausted.
Angie

I'm sooooooooooooo thankful for my two precious little boys. Blessings for sure.
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saralynn143

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Re: Could you say a little prayer for me......
« Reply #20 on: February 17, 2009, 07:35:17 pm »
So, so sorry, Angie. You have been so eloquent here that I am sure that God will give you the right words to tell the boys. I am constantly amazed at how perceptive and understanding children can be.

You are all in my prayers.

Love, Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Soundy

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Re: Could you say a little prayer for me......
« Reply #21 on: February 17, 2009, 09:10:12 pm »
Tell them God needed another angel... that is what I told my oldest son year old when I lost baby
Brandon at almost 6 months along...David was all excited and couldn't understand why mom was no longer
fat and he didn't have a new sibling ...

almost 30 years ago and I still wonder sometimes  about who he might have been had he been born on
time... a year and 10  days later I had twin boys two month early ... they were a handful once I finally got them
home and I thought at the time I had been given two with one to replace the one I lost ...but he was his
own soul and not replaceable ...

If it is meant to be you will have another... my girls were born when I was 36 and 38 ... some things are easier
with these two because I am older ...and some things are harder with them because I am older...

Sorry you have had to go through this ... hugs to you and your family
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

saralynn143

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Re: Could you say a little prayer for me......
« Reply #22 on: February 17, 2009, 09:21:15 pm »
Angie, can you have someone call and cancel the order for the car seat? Or if you know when it is arriving, arrange for someone else to be there and take care of returning it?

I think you and your husband need to grieve for this little one before you try to make a decision on whether or not to try again. I know a lot of women who had babies in their late thirties and early forties -- that by itself need not be a reason not to. I was twelve days shy of 37 when my not-so-little boy was born.

Take care of yourself. I wish I could be there to pamper you.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Larry

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Re: Could you say a little prayer for me......
« Reply #23 on: February 17, 2009, 11:04:28 pm »
So sorry Angie,

take care


laz
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

Jill Marie

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Re: Could you say a little prayer for me......
« Reply #24 on: February 17, 2009, 11:22:29 pm »
Angie, I have tried to find the words that I think might help you but nothing seems right.  The only thing I can think of is to tell your precious boys as soon as possible as they can sense when something is wrong.  Children tend to handle bad news better than we think they can.  Once you've told them you can all Hug and Hold each other.  I will be thinking about you & your family and hoping the support you get here helps in some small way.  Jill
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Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

sgerrard

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Re: Could you say a little prayer for me......
« Reply #25 on: February 18, 2009, 12:13:49 am »
Sorry to hear the sad news. You have my sympathies.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

LisaP

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Re: Could you say a little prayer for me......
« Reply #26 on: February 18, 2009, 06:17:16 am »
think of you and praying for you!!


LisaP
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

texsooner

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Re: Could you say a little prayer for me......
« Reply #27 on: February 18, 2009, 06:44:44 am »
Angie, I'm very sorry for your family's loss. Take care.

Patrick
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3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

cindyj

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Re: Could you say a little prayer for me......
« Reply #28 on: February 18, 2009, 06:46:45 am »
Oh, Angie, so sorry.  Wish we could help more, but you know we're all thinking of you and your family.

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

nancyann

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Re: Could you say a little prayer for me......
« Reply #29 on: February 18, 2009, 07:13:51 am »
Angie:  My prayers go out to you & your husband.  Please try to keep a peaceful heart during this trying time.
Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis
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