Author Topic: New diagnosis 22 year old son  (Read 26 times)

Hipmom123

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New diagnosis 22 year old son
« on: May 15, 2024, 10:31:49 am »
Hi, so glad I found this group. My 22 year old son just had an MRI yesterday due to his extreme hearing loss in left ear. The Dr. wanted contrast but we said no, my son has extreme phobia of anything medical and it was hard enough doing the MRI. I have viewed the report this morning, have not talked with the Dr. yet but it shows a 1.8cm presumed vestibular Schwannoma and it says slightly reduced T2 signal within the left cycle is nonspecific. Suggest a post contrast study for further characterization. I'm so worried as he is only 22 and it's already grown to 1.8cm. He is already depressed in life and has OCD mainly around health concerns. My questions are:
1. Anyone on here diagnosed at a young age?
2. We don't want the contrast dye at all. But I guess if surgery is recommended then should we?
3. We prefer natural ways first, is there anyone here who has found another way of treating it?
4. Anyone know a good specialist natural or otherwise in Canada preferably western?
5. Because of his young age, does this mean he may have the genetic disorder that goes with this?
Thank you all in advance.

Director

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Re: New diagnosis 22 year old son
« Reply #1 on: Today at 11:21:20 am »
Hi Hipmom123 and welcome -

I'm sorry to hear about your son and glad you are connecting with the ANA.  I hope other young patients will respond and share their experiences here.

In the meantime, please check out our young adult resources for additional information and ways to connect at https://www.anausa.org/community/young-adult

Best to you and your son and please reach out if you have questions or need more information. 

The ANA Team
volunteers@anausa.org