Hello,  I'm wondering if anyone out there can reply with successful outcomes at non-expert centers?  I had an appointment with a radiation oncologist at a local hospital & he assured me he can treat my tumor as his team is excellent, but he simply just doesn't see alot of ANs because there just aren't that many that seek treatment where I live. (San Antonio)  He treats many tumors and would do fractionated on my tumor with "The Edge" system.  He also told me he treats many other tumors that are more difficult than mine.  I'd like to go with him because it's the easiest option (insurance wise) and his team does have a reputation for being excellent.  It's just an issue with the lack of patient volume he's treated with ANs & most of my radiosurgery research has been gamma & cyber knife expert centers.  I'm fully aware of the possible caution with having treatment at a non-expert center.  I don't want this to come back and bite me that's why I'm writing as well.

Please reply if desired.  Thanks for reading. 
D

Think I talked to 8or 10 doctor teams. 

I know how it feels.  Email me if you'd like to talk.

Hi Michellebelle007,

I'm sorry to read your post about the possibility of another treatment.  The ANA has a regrowth support group that might be helpful for you, and we can also connect you with peer mentors that have experienced regrowth. 

The regrowth group is meeting Thursday, May 9 at 7 pm ET, and you can register here.

https://www.anausa.org/programs/support-groups/upcoming-events


The ANA Team
volunteers@anausa.org

I feel its inflammation- a cool pack (you get those chemo ice caps but I just press a cold pack to it) I find washing it with cool water helps a lot and when I get the scalp tenderness NSAIDS def help. I got this way worse post covid so I think neuro inflammation. Since I dont get it too often at the moment I feel its improving.