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Author Topic: Here we go--only 1 day until surgery  (Read 11906 times)

KBL

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Re: Here we go--only 1 day until surgery
« Reply #15 on: May 10, 2012, 05:06:18 pm »
Manders,

Blessing to you tomorrow.  Sleep well tonight, and relax tomorrow.  You have the easy part tomorrow, you get to sleep through it, trusting the team you are working with.

Karen
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5.6 cm. left side retrosigmoid surgery January 2010.  Dr. Villavicencio, Boulder, CO  Cyberknife April 2010  Left side  facial paresis started September 2010.  Gold weight implant Dec. 2010.  Total hearing loss on left side.  As of today, tumor still appox. 28x18x8 mm

mindyandy

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Re: Here we go--only 1 day until surgery
« Reply #16 on: May 11, 2012, 10:15:09 am »
Manders- You are now in surgery and we are all praying for you. I am following your blog to keep updated.
Talk to you when you are feeling better.
Prayers and hugs

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

millie

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Re: Here we go--only 1 day until surgery
« Reply #17 on: May 11, 2012, 10:29:17 am »
Prayers and best wishes.  Millie
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kixit

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Re: Here we go--only 1 day until surgery
« Reply #18 on: May 14, 2012, 06:12:54 am »
Manders,

Letting you know we are thinking about you. I hope surgery went well and you are on a fast road to recovery.  We are all anxiously waiting to hear from you  ;D
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left side AN 9mm diagnosed 2/2012
SSD, loud tinnitis left ear
Translab 5/24/12
Baha surgery 8/1/2012 at UVA
Baha hook up 11/09/2012  : ) 

I am a happy camper : )

LakeErie

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Re: Here we go--only 1 day until surgery
« Reply #19 on: May 14, 2012, 06:39:47 am »
Kixit, there are new updates on the surgery from her Dad on her blog which has a link in her signature - the awkwardturtle one.
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4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

LakeErie

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Re: Here we go--only 1 day until surgery
« Reply #20 on: May 14, 2012, 12:40:05 pm »
Four updates on first three post surgery days
http://www.awkwardturtlesan.blogspot.com/
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4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

Manders

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Re: Here we go--only 1 day until surgery
« Reply #21 on: May 17, 2012, 06:08:54 pm »
Hello everyone!! I know it's been ages since I've been able to get on but I had a second and wanted to just say a GINORMOUS THANK YOU to all of you! You're prayers and comments on my blog were amazing and I've read through each and everyone. They really helped those first few days when it was really rough. I will try to write more when I'm feeling up to it but I just had to get on and let you know that I have gotten all of your messages and I thank you from the bottom of my heart. Continue to check my blog as I will be posting more updates soon.  ;D
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Diagnosed February 2012 * 1.3cm tumor * Experienced sudden & total hearing loss in 2007 in right ear * Translab scheduled for May 11, 2012*Follow my blog at: www.awkwardturtlesan.blogspot.com

LakeErie

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Re: Here we go--only 1 day until surgery
« Reply #22 on: May 17, 2012, 07:29:13 pm »
Welcome back and I look forward to your future posts as you recover. Good luck
Logged
4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

LizAN

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Re: Here we go--only 1 day until surgery
« Reply #23 on: May 17, 2012, 08:30:32 pm »
Quote from: Manders on May 17, 2012, 06:08:54 pm
Hello everyone!! I know it's been ages since I've been able to get on but I had a second and wanted to just say a GINORMOUS THANK YOU to all of you! You're prayers and comments on my blog were amazing and I've read through each and everyone. They really helped those first few days when it was really rough. I will try to write more when I'm feeling up to it but I just had to get on and let you know that I have gotten all of your messages and I thank you from the bottom of my heart. Continue to check my blog as I will be posting more updates soon.  ;D

Thank goodness you are okay!  Take it easy, Manders, and write when you are feeling stronger.  Best wishes for a beautiful recovery!

Liz
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8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz

mindyandy

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Re: Here we go--only 1 day until surgery
« Reply #24 on: May 18, 2012, 09:51:52 am »
Great news. We were all worried. I'm glad you on the road to recovery.

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Jim Scott

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Re: Here we go--only 1 day until surgery
« Reply #25 on: May 18, 2012, 02:20:58 pm »
Amanda ~

It was so good to see your post and know that you are O.K.  Thanks for making the effort and don't worry about posting more until you're up to it.  We'll wait.  Honest.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lrobie

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Re: Here we go--only 1 day until surgery
« Reply #26 on: May 18, 2012, 03:32:16 pm »
I am so glad to hear you are doing okay.  I was quite worried.  Get some rest.  I will check your blog for updates.

Lisa
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6/2009 7mm x 4mm  W&W
8/2011 9.5mm x 5mm
2/2012 UPMC Follow-up , slight growth
Surgery on 7/18/12 w/Drs. Friedman & Schwartz (mid-fossa)
www.caringbridge.org/visit/lisarobie

chloes mema

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Re: Here we go--only 1 day until surgery
« Reply #27 on: May 18, 2012, 04:08:48 pm »
Amanda

So happy to see a post from you.   :D

Was very worried as I'm sure everyone was but now we've heard from you and will wait patiently while you recover. 

Prayers for you!

Karen
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Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back
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