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Author Topic: Not Diagnosed yet but searching for answers...  (Read 25401 times)

CHD63

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Re: Not Diagnosed yet but searching for answers...
« Reply #75 on: July 20, 2010, 09:23:27 pm »
Michelle .....

So glad it appears your MRI report is being read as normal.  Do let us know what the doctors think has been causing your symptoms.  It still might be helpful to others walking this journey.

Best thoughts and prayers for answers to your situation and appropriate treatment.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

moe

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Re: Not Diagnosed yet but searching for answers...
« Reply #76 on: July 20, 2010, 10:37:53 pm »
Great news that you have no AN, but I do hope they find out was is causing your symptoms and that you get relief from them.
Best wishes,
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Lizard

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Re: Not Diagnosed yet but searching for answers...
« Reply #77 on: July 21, 2010, 11:49:45 am »
Michelle,
Congrats to you on your normal MRI...I'm relieved for you  :)
Take care,
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Jim Scott

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Re: Not Diagnosed yet but searching for answers...
« Reply #78 on: July 21, 2010, 01:07:41 pm »
Hi, Michelle ~

Allow me to add my congratulations on your 'normal' MRI report.  I'm always happy to learn that someone with an acoustic neuroma diagnosis hanging over their head has been relieved of that threat.  I do hope the cause of your symptoms can be found and addressed, soon.  Thanks for your prayers and kind words for our membership, too.  We wish you all the best.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: Not Diagnosed yet but searching for answers...
« Reply #79 on: July 23, 2010, 10:36:27 pm »
Michelle -

I'm happy to hear that you don't have an acoustic neuroma.

I hope you are able to get some answers about what is causing your symptoms very soon.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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