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Author Topic: SFSG for me!  (Read 3388 times)

msmaggie

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SFSG for me!
« on: December 15, 2009, 03:14:58 pm »
So far so good for Priscilla!  I had my one year anny MRI and absolutely nothing showed up, I am happy to report.  I have to go back in two years for the next one.  I didn't realize how much I had been holding my breath on this until I got the results.  Meningiomas have a higher rate of recurrence than neuromas, and I was giddy with relief when I saw the doctor.  Whew!  Blessings abound.

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

Kaybo

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Re: SFSG for me!
« Reply #1 on: December 15, 2009, 03:16:19 pm »
Oh Priscilla, I am so happy for you!!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Tricia (horsekayak)

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Re: SFSG for me!
« Reply #2 on: December 15, 2009, 03:21:06 pm »
That's great news!   
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Tricia (horsekayak)-Diagnosed 8/10/09
1.5 cm right side AN
Gainesville, GA (near horses and Lake Lanier)
Linac radiosurgery at Shands Hospital/Univ of Florida  12/1/09  Go Gators!!!

"Excellence is to do a common thing in an uncommon way"...BT Washington

Jim Scott

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Re: SFSG for me!
« Reply #3 on: December 15, 2009, 03:30:14 pm »
Please accept my heartfelt congratulations, Priscilla!  A 'clear' 1-year MRI report is definitely an early Christmas present!  I'm happy to share your elation over this piece of very good news.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

opp2

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Re: SFSG for me!
« Reply #4 on: December 15, 2009, 04:00:40 pm »
Outstanding! Great Christmas Blessing for you!

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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

Pooter

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Re: SFSG for me!
« Reply #5 on: December 15, 2009, 04:04:01 pm »
Congrats Priscilla!  That's GREAT news!  Two years?  Wow..  I guess I will have to tell Dr V hi for ya in May when I see him again.  Hopefully I'll get put on the multi-year plan after that!  You definitely deserve some good news this Christmas season!  I'm happy you got it!

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

texsooner

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Re: SFSG for me!
« Reply #6 on: December 15, 2009, 05:55:00 pm »
Yea Priscilla....that's great news.

Patrick
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3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

msmaggie

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Re: SFSG for me!
« Reply #7 on: December 15, 2009, 06:33:24 pm »
Many thanks to all of you for your well wishes.  When I checked out, the nurse smiled and said "You've paid your dues."  Yep, we all have, but along the way we have become friends with some amazing, compassionate people, and I am proud to be in such august company, even if the dues were $$$. :)

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

leapyrtwins

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Re: SFSG for me!
« Reply #8 on: December 15, 2009, 07:00:01 pm »
Outstanding news, Priscilla!   ;D

I almost PM'd you and asked what SFSG meant, but then I got it  ::)

Congrats!!!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Keri

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Re: SFSG for me!
« Reply #9 on: December 15, 2009, 08:47:35 pm »
Good for you, and I think I figured out SFSG.

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

wendysig

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Re: SFSG for me!
« Reply #10 on: December 15, 2009, 08:55:09 pm »
Hi Priscilla,

Glad to hear that you got a clean bill of health following your MRI.  A truly wonderful early Christmas present!

Congratulations,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Brendalu

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Re: SFSG for me!
« Reply #11 on: December 16, 2009, 11:37:53 am »
What a wonderful Christmas present!!  Good news is always great to hear!
Merry Christmas,
Brenda
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

CHD63

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Re: SFSG for me!
« Reply #12 on: December 16, 2009, 12:21:32 pm »
Priscilla .....

Adding my congratulations for the clean 1-yr MRI.  What a marvelous Christmas present.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011
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