Author Topic: Six month update  (Read 4769 times)

wendysig

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Re: Six month update
« Reply #15 on: January 28, 2009, 12:34:08 pm »
Hi again!

Thanks -- you all make me feel so special and I guess paying it forward is what it's all about in the end   -- the past six months just flew by, acually the last nine months did. I may have lost my hearing in my right ear and have some small problems with balance,  but I somehow feel I've gained more than I've lost.   It seems kind of fitting that I will (hopefully anyway) be able to start using my BAHA processor right around the one year anniversary of my diagnosis.  Now that 's what I call  coming full circle!

Wendy

Eve -- I guess I'd better come up with a pattern for that cake!  I'm looking forward to it too!  I hope everyone likes chocoalate although I guess the AN part of the cake should be white cake!

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

jerseygirl

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Re: Six month update
« Reply #16 on: January 28, 2009, 03:20:03 pm »
Wendy,

I have a feeling that the flavor of a cake does not really matter but NJ/NY ANers will never forget this day! Our revenge will be so sweet!

                  Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

mimoore

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Re: Six month update
« Reply #17 on: January 31, 2009, 10:01:00 am »
Hi Wendy,
Heading in the right direction.
Michelle  ;D
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

wendysig

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Re: Six month update
« Reply #18 on: January 31, 2009, 07:32:07 pm »
Hi Michelle,

Thanks for your post.  I don't know if you are seriously intereted,but I checked and the following are clinics in Ontario (I hope this is right) that do BAHA surgery:

Children's Hospital of Eastern Ontario
Audiology - Clinic C-10
401 Smyth Rd
Ottawa, ON K1H 8L1
Canada
Telephone: 613-737-7600 2379
FAX: 613-738-4222
Contact: Linda Moran
   Cochlear Implant Clinic Cochlear Implant Clinic
Baha clinic Baha clinic
 
Cochlear Canada Inc.
2500 - 120 Adelaide Street West
Toronto, ON M5H 1T1
Canada
Telephone: 1-866-296-8189
FAX: (416) 972-5083
Website: www.cochlear.com
Contact: cbukowski@cochlear.com
   Cochlear Implant Clinic Cochlear Implant Clinic
Baha clinic Baha clinic
Vistafix Vistafix
 
Elgin Audiology Consultants
66 West Avenue
St. Thomas, ON N5R 5H7
Canada
Telephone: (519) 637-5925
   Baha clinic Baha clinic
 
Lindsay Ear Clinic
10 - 65 Angeline Street North
Lindsay, ON K9V 5N7
Canada
Telephone: (705) 340-5050
FAX: (705) 340-5868
Contact: asinasac@cogeco.ca
   Baha clinic Baha clinic
 
London Health Sciences Centre
University Hospital, CI Program
339 Windermere Rd, Main Fl - Room B1-330
London, ON N6A 5A5
Canada
Telephone: 519-663-3641
FAX: 519-663-3916
Contact: Kim Zimmerman
   Cochlear Implant Clinic Cochlear Implant Clinic
 
Markham Hearing Centre
107-6633 Highway #7 East
Markham, ON L3P 7P2
Canada
Telephone: 905-471-4479
Contact: steph@markhamhearing.ca
   Baha clinic Baha clinic
 
Ottawa Hospital Civic Campus
Audiology Dept, Parkdale Clinic
737 Parkdale Ave
Room 242
Ottawa, ON K1Y 1J8
Canada
Telephone: 613-798-5555 X18003
FAX: 613-761-4312
Contact: Christine Mcllquhim
   Cochlear Implant Clinic Cochlear Implant Clinic
Baha clinic Baha clinic
 
Sunnybrook Health Sciences Centre
Cochlear Implant Program
Audiology Department, Rm M1-102
2075 Bayview Ave
Toronto, ON M4N 3M5
Canada
Telephone: 416-480-6751
FAX: 416-480-5761
Contact: Karina Farrell
   Cochlear Implant Clinic Cochlear Implant Clinic
Baha clinic Baha clinic
 
The Hospital for Sick Children
Departments of Otolaryngology & Communication Disorders, Cochlear Implant Program
555 University Ave
Toronto, ON M5G 1X8
Canada
Telephone: 416-813-7259
FAX: 416-813-6487
Website: www.sickkids.ca
Contact: Vicky Papaioannou
   Cochlear Implant Clinic Cochlear Implant Clinic
Baha clinic Baha clinic
Vistafix Vistafix
 
Toronto Sunnybrook Regional Cancer Centre
Craniofacial Prosthetic Unit
2075 Bayview Avenue
Toronto, ON M4N 3M5
Canada
Telephone: 416-480-4254
FAX: 416-480-7815
Website: www.sunnybrook.ca
Contact: wendy.grennier@sunnybrook.ca
   Vistafix Vistafix
 
Union Hearing Aid Center
123 Edward Street; Suite #710
Toronto, ON M5G 1E2
Canada
Telephone: 416-364-2264
FAX: 416-348-0780
Website: www.uhac.net
Contact: Nick Veronico
   Cochlear Implant Clinic Cochlear Implant Clinic
Baha clinic Baha clinic

Wendy
 

1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

mimoore

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Re: Six month update
« Reply #19 on: February 01, 2009, 10:44:08 am »
WOW you are amazing....thanks for all of your hard work...I am going to call and make an appointment. I would like to try the demo. I have to admit I am afraid of more surgery.
Thanks Wendy, have a great day!
Michelle  ;D
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

bell

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Re: Six month update
« Reply #20 on: February 03, 2009, 12:50:53 pm »
Hi Wendy,
Congratulations, thanks for your sharing story.
I am 10 weeks post-op and slowly feeling better.  Looking forward to 6 months recovery.  This is an amazing site, I always enjoy reading.