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Author Topic: Sue L Surgery Update  (Read 8318 times)

Lamsue23

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Re: Sue L Surgery Update
« Reply #45 on: August 18, 2008, 05:57:37 pm »
Well, it's official, the bonnet if OFF.......The stitches are OFF.......Shampoo is wonderful!!!!!!!!!.  I called to see when my appt was and to my surprise it was today at 1:30pm.  My daughter and I drove 1 1/2 hrs. and I'm really on my way.  I have vision problems, balance, taste, but the doctor is hopeful that all will clear eventually.

I felt so good coming home and my daughter gave me a long shampoo, we went out to celebrate for dinner.....Thanks for eveyones support. 
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SueL/from NH
Retrosigmoid Surgery 8/6/2008 DHMC, Lebanon, NH 7.5 hrs.
Dr. Erkmen - neurosurgeon
Dr. Morrisson - neuro-ostology
Loss of hearing 70% in left ear.
Vision and Balance issues...Taste!!

wendysig

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Re: Sue L Surgery Update
« Reply #46 on: August 18, 2008, 06:03:29 pm »
Hi Sue,
Congratulations on all your wonderful news and your shampoo.  I know how good that felt!  I hope your taste returns and other issues are soon a thng of the past. 

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

MAlegant

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Re: Sue L Surgery Update
« Reply #47 on: August 18, 2008, 06:27:59 pm »
Whoo-hoo!! ;D
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

NL

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Re: Sue L Surgery Update
« Reply #48 on: August 18, 2008, 06:30:59 pm »
Hi Sue,

I was so happy to read your post - stitches gone, the shampoo, AND dinner out! What a great day!

Wishing you continued healing!

Nancy
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

Pooter

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Re: Sue L Surgery Update
« Reply #49 on: August 18, 2008, 09:04:35 pm »
As was said earlier, woo hoo!  Congrats!  That first shower, even for us guys, is great!

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Omaschwannoma

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  • Life is a journey, not a destination
Re: Sue L Surgery Update
« Reply #50 on: August 20, 2008, 09:59:01 am »
Your doctor is right in saying in time these other symptoms should resolve and I hope they go by the wayside relatively quickly for you.  You sound very positive and this will help in a speedier recovery.  Be cautious of the "brain fatigue" we have all suffered with by taking either 5 minute eyes-closed relaxation or longer as this really helps and if you are not seeing a PT for vestibular therapy then lots of vestibular exercises have been posted here under "balance issues" should be practiced to speed you on your way to better balance and less fatigue.  Good luck.
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1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

Debbi

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Re: Sue L Surgery Update
« Reply #51 on: August 20, 2008, 12:43:33 pm »
Sue - HOORAY for you!!!  I was thrilled to read your post!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

cindyj

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Re: Sue L Surgery Update
« Reply #52 on: August 20, 2008, 01:32:22 pm »
So glad for you, Sue!  Know that shampoo felt great!  Hope things continue to move forward.

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

leapyrtwins

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Re: Sue L Surgery Update
« Reply #53 on: August 20, 2008, 04:28:09 pm »
Sue -

no bonnet, no stitches, and shampoo!!!  Three very important milestones - congratulations!  ;D

From my experience, the vision, balance, and taste will take some time, but you'll get there.

Patience, patience,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Sue L Surgery Update
« Reply #54 on: August 26, 2008, 11:15:17 pm »
Sounds like the scarf worked even though it was late getting there. It really is a magic scarf!  :D

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Dog Lover

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Re: Sue L Surgery Update
« Reply #55 on: August 31, 2008, 08:21:03 pm »
HooRay!!!!!!!!!! Congrats!
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Cathy
9mm x 3mm Left Side AN
Mid Fossa Aug. 21, 2008
Dr. Gantz / Dr. Woodson
Univ. of Iowa Hospitals and Clinics
No facial issues, hearing saved, I keep active and feel back to normal.
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