« previous next »
Pages: 1 [2]

Author Topic: Newly diagnosed  (Read 5512 times)

alabamajane

  • Hero Member
  • *****
  • Posts: 635
Re: Newly diagnosed
« Reply #15 on: April 17, 2017, 01:37:49 pm »
Regina,
Look into Vanderbilt in Nashville. They are an excellent center and used by several on here. Will be closer for you than CA.
Logged
translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

SP

  • Full Member
  • ***
  • Posts: 178
Re: Newly diagnosed
« Reply #16 on: April 18, 2017, 12:36:03 am »
Hi Regina,

It's worth considering radiation as a possible option.
This coming August will be 2 years since I had Cyberknife treatment on a 3.2cm AN- so far so good.

Good luck with your ENT appointment.

My best,
Stella
Logged
My AN Story – Sydney to Stanford CK
2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

SP

  • Full Member
  • ***
  • Posts: 178
Re: Newly diagnosed
« Reply #17 on: April 18, 2017, 12:40:38 am »
Hi SPX 600,

I had ear pain, (they gave me ear drops) and a gritty feeling in my left eye (they gave me eye drops) about 2 years prior to being properly diagnosed.

Best of luck with everything...

Stella
Logged
My AN Story – Sydney to Stanford CK
2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

ColleenS

  • Full Member
  • ***
  • Posts: 145
  • I have learned to watch birds and smell the roses.
Re: Newly diagnosed
« Reply #18 on: April 18, 2017, 07:17:20 am »
I also live in the southeast and my research directed me to Vanderbilt Medical Center - they do a high volume too. I will be having my surgery in a couple of weeks but so far I am very impressed by them. Maybe others who have had the surgery there can speak about them as well. I know Fl has some great options too...
Logged
5/2/17 @ Vanderbilt Translab approach with Drs. Haynes & Chambless
Readmitted on 5/7/17 for CFL, lumbar drain; CFL repair surgery
10/18 5 Radiation treatments for tumor regrowth
3/19 Pain, swelling, facial paralysis
5/19 Facial paralysis, numbness
10/21 Mild facial paralysis still
Pages: 1 [2]
« previous next »