Symptoms - Looking for medical references explaining symptoms

[Judy MacPhee]

Thank you for your kinds words and I will keep you all posted. I won't know anything on Thursday, I know that. It is just an office visit,he may do some motor test etc but that is it. He may try and get the CT scan pushed up for me though. This would be good. As of yet I didn't even get a call for one. Tomorrow is my birthday, 59 yrs. old. I am going to have a wonderful day with my sisters, they are taking me out to lunch. Than my husband and kids have something planned for later or for Sunday, either or. I intend to not let this get in the way of my day. It should be great. Thanks again. Judy

[jan]

hi i read your problems with much interest.i had surgury in may 2003.12 x 6 ml.radio.in fort wayne in.i live in south bend,but was refered to fort wayne.only had hearing problem in ear,coudn't hear on phone,some dizziness problems and headaches.my ear felt like there was a pencil in it.the dr.said my tumor was mushroomed shaped and they could not get the tumor off the bone.i go for mri this monday it's been 1 tr.since the last one.then the tumor was 6 x 4 ml.i did have problems with balance and going to grocery stores but went to the balance center in fort wayne for therapy.3 times since the surgury,and it did help.i've been going to a neurologist since june  05 and niow going every 3 months instead of every month.i have been having alot of memory problems and trying to say the right words.last summer i was hardly talking to amnyone.he put me on strattera.i started out with 15mg.and as of last week i am on 60mg.and on aricept.i have come along way from where i was last june.but now i am having more problems vestibular.i am not driving my car anymore.my husband has changed his schedule to drive me to work and dr.appt.i was almost in 5 accidents that would have all been my fault and almost hit a man that i did not see.my neurologist said not to drive,it took me a while to understand that i should not be driving.i close my eyes alot while my husband is driving.we drove to minnesota to see my husbands parents last march 05 and i have never been one to sleep in the car.i sleep in the back seat all the way there and the way back.10 1/2 hr one way. i was told by the neurologist i had hrdrocephalus.the eeg i had for 48 hrs.showsd i was having seizures or the hydrocepkalus was getting worse.there are times i can't think of names or thingsi should know.i have a very hard time learning anything new at work.i can't remember what i did yesterday.i have problems reading and watching tv.being on the computer will cause problems later on in the day.especially at work.i limit myslf to 1 hr.a day for the news and quit reading the newspaper.and don't very often get on the computer.my husband pays the bills.i had problems following a reipe,but now i can ,only sometimes asking for help.my neurologist also put me on sleeping medication because i was only getting 3-4 hrs a night.sorry this is so long,but alot of things have happened.the dr who dod my surgury said they had to stop the surgury 3 times.i didn't think to ask why.later i thoughyt about it ,maybe it was my high blood pressure.i am 54 yrs old.i don't know how things will turn out.just doing the best i can to stay working at my job.  jan

[Captain Deb]

Jan,
Welcome to the AN forum--I hope you find some help here for your problems. A lot of us have been through similar post-op issues. Hydrocephalus is a serious issue--please let us know how your MRI goes. None of us are docs but we have had experience with post-op complications and maybe someone can point you in the right diection so you can get the help you need.
Please keep posting when you are able to and know that we are thinking of you and wishing you well.

Capt Deb

[nannettesea]

Barbara,
My primary symptom leading to diagnosis was severe "motion sickness" after I went on a cruise and a dive.  The rocking, up and down motion you're talking about.  I had mild hearing loss, undetcted on hearing test, which is why my tumor was able to grow another 2-3 years.

After surgery, my dizziness is much worse, unable to work.  You can read all about me on my dizziness threads.

I hadn't been able to sleep without meds for years, still on them, don't know if AN-related or not.  Had acute anxiety, loss of appetite about a year before diagnosis.

Hope that helps,
Nan