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Anyone else have this eye symptom?

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Cheryl R:
I did have a facial with neuroma with no twitching.   I have heard alot of people  with twitching and regular AN.        I did start to have facial droop not long before my neuroma was checked and thought to be a facial one.      Mr dr also said can't be sure till do get inside.   Any way it was,  Nerve was severed.     My dr does a immediate graft of a nerve from by the ear at same time.  Took a few months for movement to start and have done pretty well.   No movement at eyebrow.     This was in 2006.
                                                           Cheryl R

Cheryl R:
It would be hard to say.       I don't think it is for sure.  You might just have weaker muscle on that side.      MY symptom from facial neuroma was facial drooping.
  Only way to know for sure is have surgery.                         Cheryl R
       
           

CA Marti:
Hi Cheryl,

Thanks so much for responding! Could you tell me what size your neuroma was when you first experienced the facial droop? Also, did your eye and mouth droop at the same time? Did you have full eyebrow movement when you had the droop? It's just sort of weird because I don't know what would be considered droop. I have full movement in the eyebrow and eye muscles and my mouth isn't effected at all. It's just my eyelid that falls down lower on the side of the eye (AN side). Also, sometimes when I smile I get a small twitch under that eye, but also a tiny bit under the other eye. Can't tell if it's just stress or something else like a symptom.

Thank you!!

CA Marti

CA Marti:
Also, the reply from the neurosurgeon was that it would be very unusual for the facial nerve to be affected, but not impossible. They also said that there is no reason to think that this will progress, and there is no reason to change plan of observation. Any treatment undertaken would increase risk to the facial nerve.

So, I suppose this means my facial nerve is not affected and maybe it's unrelated. But, if that's the case, then why would treatment increase the risk to it? Also, I suppose there's still a chance it's a facial schwannoma, which would not then be unusual for it to be affected now. Still stressful and frustrating because if it is a facial schwannoma, I believe it's important to treat it before the symptoms get worse.

Thanks for listening to my rambling,

CA Marti

CA Marti:

I just had a meeting with a radiologist and they said that the eye twitching or blepharospasm is not related to the acoustic neuroma and that it's likely from lack of sleep or stress. He also mentioned that mine definitely looked like an acoustic neuroma and not a facial schwannoma. His reason was because of where it is located. He looked at my eyes and had me close them very tightly and then said that if they were affected I wouldn't be able to close them tightly like that and there would be weakness. He thought the slightly droopy eyelid was not related at all. I just wanted to update this in the case that it might help someone else.



CA Marti

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