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Author Topic: satman checking in  (Read 2401 times)

satman

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satman checking in
« on: July 24, 2009, 11:44:48 am »
hello everybody i have stepped back from the forum for awhile and just wanted to say hello to everybody.
i still have no facial animation on the left side and my balance is 80% of what i use to know as normal,the left eye still has no blink reflex but other than that i am good,i guess i finally reached the point of acceptance,nothing i can do but deal with it,so be it.
i hope everybody is doing the best they can and just wanted to say thank you again for helping me get through what was the roughest part of my life,i truly am greatful.
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kicked my little 8cm buddy to the curb-c ya !

Jim Scott

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Re: satman checking in
« Reply #1 on: July 24, 2009, 12:20:05 pm »
Hi John!

Thanks for 'stopping by' I'm pleased to learn that you're doing well and are at peace.  I know many will join me in stating that we're glad we were able to be of help to you as you made your 'AN journey'.  Please feel free to post again whenever you wish.  You're always welcome here!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Pembo

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Re: satman checking in
« Reply #2 on: July 24, 2009, 03:04:47 pm »
Satman, it is good to hear you are in the acceptance phase....Please know that I went through many stages in my mental/emotional recovery and even though I am mostly in acceptance, there are still the occasional bad days and that's okay too. Stay strong my friend.
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Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

nancyann

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Re: satman checking in
« Reply #3 on: July 24, 2009, 05:43:10 pm »
Hi John,  so glad to hear from you ! !
As far as the paralysis,  I know how you feel...

I had the T3 surgery done at Johns Hopkins 2007, & it has given me my life back !
I don't know if you've seen my before/after pictures,
it's at Facial Issues, (right now page 3) under 'Post Temporalis Tendon Transfer.'
On the 2nd & I think 4th page you'll see the progression of the surgery results.

Glad to hear your dealing with it,  what else can we do ?
Everyday throughout the day I have to take time for eye, mouth care,  still get the stares,  but,
I'm happy with my life & that's what's important !

Always good thoughts,   take care,  Nancy
« Last Edit: July 24, 2009, 07:20:31 pm by nancyann »
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

leapyrtwins

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Re: satman checking in
« Reply #4 on: July 25, 2009, 09:12:56 pm »
Good to hear from you Satman  ;D

Thanks for checking in.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: satman checking in
« Reply #5 on: July 27, 2009, 11:25:44 am »

Ditto what Jan said, Satman.  You were such a help to me when I was going through the initial phases of this journey - I am forever grateful.  Glad you are hanging in there.

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Kaybo

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Re: satman checking in
« Reply #6 on: July 27, 2009, 12:08:48 pm »
Hey Satman~
Good to hear from you!  I am glad that you have reached that acceptance phase...I guess you just get used to it!  I have everything that you mentioned but it has been 13 years for me - even though I'm not even 40 yet!!  I'm just glad to be here!! ;D

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Joef

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Re: satman checking in
« Reply #7 on: July 27, 2009, 12:16:28 pm »
Quote from: nancyann on July 24, 2009, 05:43:10 pm
still get the stares, 

I stare too when I see a beautiful woman !
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

satman

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Re: satman checking in
« Reply #8 on: August 03, 2009, 10:14:39 am »
thanks debbi glad i was able to help you out and hopefully helped you get past some fears.
thats why this forum is so great because this is a scary road when ventured alone.
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kicked my little 8cm buddy to the curb-c ya !
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