Quick update.   Tomorrow makes 7 weeks since surgery.  I continue to improve daily and my doctors even seem surprised at how quickly I was able to bounce back, I would say my balance is just as good now as it was before surgery, and it is still improving.  My double vision is fading.  It's not there all the time now only sometimes, and it is getting noticably better each week.   I wish my taste buds would get back to normal, I am getting tired of things that I know I really like having a strange flavor or no flavor at all.  I know that will resolve  itself too, I'm just getting a little impatient with it.   It is hard to believe that I am now doing nearly everything that I did at work before surgery almost like nothing happened.  I only get unbalanced if I turn my head too fast.  The post surgery fatigue has also pretty much disappeared.  When I first went back to work I only did 4-5 hours a day and I got pretty tired.  I am now full time and do not feel any more tired than normal. 
I still can't hear out of my left ear at all even though the surgeon said they saved the nerve, he says I could still get some of the hearing back once all the swelling is gone, which could take some time.


I update this because when I first started looking on here it was really scary, it seems that nearly all the comments were of things that didn't go right.  I suppose that most people don't come back to post if everything went well, and I just want people out there to get a little hope that yes there are positive stories.  Life may be different now because of the acoustic neuroma, but in the grand scheme of things, I feel very lucky to have had such a quick recovery, and such a positive result.  So I hope I gave someone a little hope and a little relief from the anxiety.  I appreciate all the support I had, and I plan to keep an eye on this site and provide any information or support I can for others.

how are you doing now?

I had a similar rough patch a few months after my own head surgery, especially the random breathlessness and chest tingling. It freaked me out at first because every test came back fine, which just made things more confusing. For me, it seemed like the nerves just needed time to settle and I noticed that stress or even small physical activity sometimes made the symptoms show up more. It really did help just talking with others who’d been through something similar because it’s not exactly stuff your doctor always warns you about. When my breathing felt off, I started looking into ways to strengthen my breathing and calm my nerves at the same time. I found it useful to mix gentle breathing exercises into my daily routine. Tips and devices focused on respiratory health can make a difference. I stumbled across something about respiratory wellbeing at https://omhale.com/ if you're interested in more on that.

Jordy, sudden worsening tinnitus with dizziness after AN surgery needs a checkup fast. It could be inner ear issues, nerve irritation, or even tumor regrowth. See your ENT or neurologist soon.

That’s not normal. Could be nerve irritation or something like scalp dysesthesia. Ask your doctor about seeing a neurologist.